I am new here although diagnosed about 4 years ago. Past two weeks of suffering encouraged me to look online for a site like this. I am learning more in 4 days than I have from my Reumy. Thank you.
Welcome Judy.
Welcome, Judy. I am glad to hear you are learning a lot from reading about our common experiences on this forum. I believe knowledge is critical and we have loads of that here. Lots of smart cookies too!
Why don't you tell us something about yourself when you get a chance? We would love to hear all about you.
Dearest Judy,
Welcome, welcome welcome!
I'm a Grandma, too. I'm in the process of adding one more grandchild: the 10 year old daughter of my son's fiancee. Well, she really IS my granddaughter already. So I have six, ranging from 21 to 7 years in age.
Of course, I'm sorry you had to go looking for us. But here we are. And we are always here because, for me, this group is the source of my support, my knowledge, and serves as a sounding board, allowing me to work through the complexities of my conditions in real time with real friends.
In my so-called 'real life' no one is interested and no one has the experience and knowledge to help me. And I've found a great doctor (Immunologist at Duke Medical School) but I see her every six months, and we all know how much time any doctor really has for us.
It makes our discussions more useful to you if you find your signature line in your profile and enter information like your diagnoses, treatments and medications, and other information you think will be useful to us.
Welcome again, Grandma Judy!
Hugs, Elaine
Thank you Carolina so much. After my next appointment, with many more questions to be answered by my Reumy, I will put that info in my profile.
Hugs to you,
Judy
Welcome Grandma Judy, Glad that you are finding information that helps you. Use the search feature and any phrase for information. We have so many threads and posts on so many different subjects. Irish
Welcome Grandma Judy.
I am a long time member, but tire so easily these days that I am in and out of everything. lol...
susanep :)
I, like Grandma Judy am also thankful for this site. I have been looking for some sort of support group, and a place to share my thoughts and concerns that go along with having chronic illness. It seems when you get Sjogrens, you get a lot more than just the Sjogrens, I seem to keep getting more and more diagnosis to the point that it gets overwhelming at times. It is hard for those that are not ill to understand when you continue to say you are tired, or that you don't feel well. They get tired of hearing that, but they should try to LIVE that!! I do my very best every day, but I miss my old life, and my old active self. I know I am in my body somewhere, but I haven't been able to find it for a long time!! LOL! I am hoping to make some friends, and to share some encouragement at the same time. I am home on disability, have been married for 36 years, and have a cute KC Cat, "hint, my name" LOL! Thank you for listening.
KCcat,
Thank you for sharing. It is exactly how I feel so many times. I cannot wait to see my Doctor for more tests for more symptoms and hopefully some relief.
Grandma Judy,
Do you have appointments scheduled with your doctor? I miss the days when you didn't have to go to so many doctors for each and every symptom. I would think it would be helpful for all of our doctors to work together, we are actually one body!! One part of our body does affect another, I do think that if they worked together it would be helpful? What do I know, I am just the patient! LOL! I am sorry that you are feeling poorly, and will look forward to what you are going to find out. Hopefully they will find the right mix of medicines to help you. Please keep us posted!!
Warmly,
Michelle :D
My appointments are next month...one with my Primary and the other my Rheumy. I will let you know. Thanks, Michelle
Judy
Welcome Judy. I am a Newbie too. Just got diagnosed last month. I checked out this site a few times in the past b/c I suspected SJS. My lip biopsy confirmed mine, most of my blood work was negative. This forum is really great!!
Good luck to you. I hope you have a good, understanding Doctor.
We have been in Myrtle Beach since Feb 1 and plan to leave for home, Troy N Y on Monday where I have an appt to see my Reumy on the7th. However I was feeling so weak and my shoulders and arms pained so badly I went to a Doctor here on recommendation of a nurse friend. He took blood work, gave me a cortisone shot and 12 days dosage of prednisone which takes me to my appt. date home. He diagnosed me with Polymyositis and whatever the other blood tests show when they come back. He will fax them to my Reumy. Right now my arms feel better and I begin to feel like getting off the bed. Got to keep going, God willing. Thanks for being here. By the way this internist knew about Sjogrens, and what tests to take. I just wanted to be able to make the long trip home, and am feeling now I will be ok.😊