Hello all,
I hope this message finds you well. My name is Nadia, I?m 25 and was diagnosed with Sjogrens just over 2 years ago. My symptoms have worsened over the two years, and developed from just being a dry mouth and eyes to a number of issues that are too many to list! I live in London, and although I greatly appreciate the care that I?m receiving in the hospitals here, i?ve been told for the past year that I?m a ?medical mystery? and they?re not quite sure what to do with me! Whenever I try and do research online, America always seems to have to strongest amount of research, and awareness on Sjogrens, so I had a thought and wanted to know if anyone was interested?
I shall be coming to New York at the end of this month (August 2014) and may also be going to Maryland. I wondered if anyone had any advice on centres that I could be seen at, or if any other Sjogrens sufferers wanted to have a support meeting? If someone already does these meetings, i?d love to join, if I could have any information on them?
If anyone has any other ideas, I?m all ears!
Many thanks,
Nadia
Nadia,
There is a Sjogrens center in Baltimore Maryland at Johns Hopkins. I personally have not been but I will if I get worse in the future. Someone else may know more information about the center. I hope you find good doctors here.
Kimberly
We have a number of members in the British Isles. Maybe one of them will help. I did not see other members on my month long trip.
Nadia,
I private messaged you with some information about a friend of mine that runs a Sjogren's Group for folks under 40. Please check your messages.
SjoDry
Just want say Hello and Welcome! :) I'm sorry to hear things are worsening and I hope you can find the help you need.
Best, Marie
Thank you so much for all your messages, it's lovely to hear back from you. SjoDry, I've responded in a private message!
If anyone knows of any support meetings happening soon, please let me know... I looked online and they all seem to have been in May-July - just missed them!