Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: Lost163 on August 01, 2014, 12:10:24 PM

Title: Update and scared
Post by: Lost163 on August 01, 2014, 12:10:24 PM
So after test after test it seems that I may have pulmonary hypertension. I have to have a heart side catherization. I'm waiting to get a name for someone at U Penn.
Title: Re: Update and scared
Post by: anita on August 01, 2014, 12:14:26 PM
I'm sorry to hear this.  I was afraid to even suggest it the times I did, but I'm glad they are going to check for it properly and this way you can get a jump on treatment sooner.  I'm not up on all the latest treatments, but maybe there is something they can do to help improve your quality of life.

Please keep us posted and know that we are all thinking of you.

Title: Re: Update and scared
Post by: wildforwater on August 01, 2014, 12:29:58 PM
My thoughts and prayers are with you.

Please keep us posted.

Hugs,

Maria
Title: Re: Update and scared
Post by: Jasper on August 01, 2014, 01:35:32 PM
I hope that when they get a definite diagnosis that they will be able to offer you some treatments that will help you.

Keep us posted. Thinking of you and sending wishes for the best for you.

Title: Re: Update and scared
Post by: susanep on August 01, 2014, 03:30:06 PM
Praying for you. I was told this not too long ago, but after some tests with my cardiologist it turned out I didn't. I pray the same for you. They did tell me though that if I did there is more treatment for it than there use to be.

Hugs,
susanep :)
Title: Re: Update and scared
Post by: finallyadx on August 01, 2014, 03:30:52 PM
Sending positive thoughts and prayers your way.

keep us posted.

Hugs

Kim
Title: Re: Update and scared
Post by: Carolina on August 01, 2014, 07:38:09 PM
Dearest Lost,

You will carry on.

Life isn't easy, and you will figure out what to do.

Hugs,  Elaine
Title: Re: Update and scared
Post by: Thea on August 02, 2014, 03:04:38 PM
Well, I hope not. But it if it is, I understand there is a fair bit they can do to improve your quality of life these days. Got my fingers crossed for you.