Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: warmwaters on July 24, 2014, 09:17:57 AM

Title: How to moisturize?
Post by: warmwaters on July 24, 2014, 09:17:57 AM
Ok, I feel silly asking this, but most of my life I had fairly oily skin, so moisturizing was never something I really did, unless I got a sunburn.

My skin is much drier than it use to be, especially my limbs and bottom. I'm in my 50s, and I'm sure it's a combo of aging and the Sjogren's.

I've tried a variety of moisturizers, and within an hour of putting them on my limbs, I want to jump into the shower and get them off of me.  They feel sticky, clammy, and I feel like I can't sweat (not true, as I sometimes start sweating profusely around my face).  It feels like my poor skin can't "breathe".

So how do you use skin creams? Is there a trick to getting it on very thinly? What brands are effective but don't make you feel oily or clammy?  Are these sensations something you just get used to?

So funny to be learning a new grooming skill at my age!
Title: Re: How to moisturize?
Post by: Carolina on July 24, 2014, 09:49:02 AM
Oh WW, at 72, I'm still not doing real moisturizing.

My skin 'turned oily' when I was 27 and my eczema went away (Hallelujah!)

I don't use soap on my body, just a bit of the shampoo suds when I shower and wash my hair.

In the bath tub I use Nivea oil/lotion.  At the end of the bath I put some on a wash cloth, and then rub it on, in the water.  It isn't sticky at all.

I also put that Nivea oil/lotion (let me look up the exact name) (Nivea Body Daily Lotion, Essentially Enriched for Very Dry, Rough Skin) on my legs and feet some times. 

I have used this particular brand for ages and ages and swear by it.  I buy it three bottles at a time from Amazon.

I last bought three in December 2009, and am now on the last bottle.  So a bottle lasts for ever!

It has no perfumes and I like it.  But we all have to find what works for us.

When you speak of 'bottom' I'm not sure which part of the bottom you are referring to.

Hugs,  Elaine


Title: Re: How to moisturize?
Post by: warmwaters on July 24, 2014, 10:02:38 AM
Elaine - "bottom"= my euphemism for the part of you that you sit on.
Title: Re: How to moisturize?
Post by: Carolina on July 24, 2014, 10:30:52 AM
WW,I think the key may to only put the lotion on the part that is dry, not all over.

I totally understand the intolerance of having it all over.  I would get creepy crawlies and my fabulous sweating would be even more fabulous if I put anything all over my body.

We are such am amazing bunch!  Talk about the Princess and the Pea!  We are high maintenance ladies of the first order, and proud of it.

Hugs, Elaine

We could write a book of beauty and skin and eye care tips, you bet!

Title: Re: How to moisturize?
Post by: Jasper on July 24, 2014, 11:39:18 AM
I use Jason body wash in the shower or bath.

I use Eucerin cream (in the jar) for my legs and feet. My legs were a mess, with a lot of skin rashes and lesions and very dry flaking skin. Plus the skin was weird, probably from all of the skin issues, sort of hard and stiff.

I use Eucerine intensive repair lotion for my arms and sometimes on my legs (in between using the Eucerine cream). My arms are dry, but not anywhere near as bad as my legs.

The Eucerine cream is thick, even when you rub it in and spread it around. But it works wonders. My legs and feet have greatly improved since I started using the Eucerine cream. It lasts a long time. I put it on one day and don't need anything for a couple of days. I usually put it on after a shower and when I am not going anywhere, so that I can walk around in shorts and sandals to give it plenty of time to soak in. It will stick to stuff (and stuff like hair and feathers will stick to it) so don't hold your long haired cat right after you put on the Eucerine cream, LOL. Also, I don't put it on and then put on long pants right away. I put on shorts or a short nightgown.

On my arms I use Eucerine intensive repair lotion as it is not as thick as the cream and it soaks in faster. Plus, my arms are not as dry as my legs. I also wait awhile to go to bed after putting on the cream or lotion, again, to give it time to soak into the skin.

My skin has improved dramatically. I think my legs are gradually getting more normal skin, still dry, but not as weird and not AS dry.

I don't usually use lotions anywhere else.
Title: Re: How to moisturize?
Post by: daisymay on July 24, 2014, 01:03:46 PM
I'm the same way, in that I hate the heavy "feel" of lotions and creams. I have to need it pretty badly to slather it on.
Title: Re: How to moisturize?
Post by: wildforwater on July 24, 2014, 01:24:01 PM
Always had normal skin, but it has become a bit dry since Sjogren's so I do slather moisturizer on after every shower, using a specific one for my feet.  It feels great to me.  The richer the better. Love the cocoa butter one I get at Trader Joe's.  I'm using a Jergen's one now that I like as well. Don't remember which one, but it smells so good.

I think it's just trial and error to find the perfect one.  You, of course, would prefer something light.  Body Lotion by Neutrogena is supposed to be very light.  My friend who has oily skin uses it and loves it.  I Googled fast-absorbing and it came up, along with Deep Replenishing Mineral Therapy Body Lotion by St. Ive's.

Hope you find something that makes you feel great soon!

Maria
Title: Re: How to moisturize?
Post by: mshistory on July 24, 2014, 06:21:51 PM
While your skin is still damp from the shower or bath, apply a thick layer of CeraVe Moisturizing Cream (the cream in the tub, not the lotion) liberally to body. If your face is prone to breakouts, they do make special facial moisturizers.

I have two daughters with eczema and with severely dry skin myself from Sjogren's, CeraVe Moisturizing Cream has been a miracle in a tub for us. There is no odor at all, it leaves no residue, and it actually keeps my skin feeling hydrated for 24 hours. Once I started using it about five years ago, my skin stopped flaking off!
Title: Re: How to moisturize?
Post by: quietdynamics on July 25, 2014, 03:38:24 AM

I find with SJS and skin.. that my skin needs to be gently exfoliated in the shower.
The dry skin just is there...
The best thing for me has been a exfoliating Mitt.. they can be found all over and are inexpensive.
I use only Dove soap .. put it into my palm with the mitt on.. (no more dropping the soap in the shower) and gently massage/wash my body.
When I do not exfoliate.. I just do not feel clean.

I pat dry..
I got really tired of buying lotions, etc that did not work for me.
Did some research and use Virgin Olive oil on skin.
Has anti-oxidants, other great things, is a natural sunscreen..

I simply keep some handy and lightly dip my fingertip pads (not even whole fingertips) in the oil and they spread on dampened skin.
For me it readily absorbs, is not greasy, contrary to what one would think.
At the time I started using the oil, it was on my face when I noticed capillaries (and some very small lesions.. at that time I was Dx'd SJS/Lupus).
I tried Olive oil.. the capillaries receded and the tiny lesions near my nasal fold went away.. Could it be due to the Olive oil anti-inflammatory property (phenolic compound oleocanthal)?
I do not know. But, something helped.. so I stay with it.

*Last year the bottoms of my feet became red and raw .. that time I put a lot of olive oil on, slipped my feet into plastic bags, then socks.. then went squishing around the home before bed.. yes, it sounded funny. Next day I was able to walk without pain and the bottom of my feet were healing. Why? Maybe combination of natural factors in the oil? I do not know .. just that it worked for me.
And I did not go out and buy yet another product that did not work.  ;)

It is the only oil my family and I consume as well.

So if you have some olive oil handy at home.. just put a very tiny drop on your skin and try it..
Title: Re: How to moisturize?
Post by: Carolina on July 25, 2014, 06:49:50 AM
Ahhh QD, I must try Olive Oil ASAP.

What could be easier?

Hugs,  Elaine
Title: Re: How to moisturize?
Post by: warmwaters on July 25, 2014, 09:32:31 AM
Thanks all- useful things. The olive oil intrigues me.

When I have really dry cracking skin on the bottom of my feet (tends to happen in the winter), I put Udder Balm on them. Udder Balm is sold at agricultural product stores, and is for cows. My family has used in for years, and it heals things fast, but is terribly smelly in a Ben Gay sort of way.  I'd never use it as an all over thing, though.

Any other favorite moisturizing tips?
Title: Re: How to moisturize?
Post by: daisymay on July 25, 2014, 10:11:35 AM
I've never used it, but a friend of mine loves pure lanolin. You can find it in the baby aisle (with the nursing supplies)

One of my skin issues is cracks at the top edges of my fingernails. So painful! I can feel them before I even see them.
Title: Re: How to moisturize?
Post by: grammad97 on July 25, 2014, 07:05:46 PM
I too have tried every type of lotion;oil and cream and had a drawer full of them.
Several years ago while getting my hair done my stylist suggested Amlactin. Its expensive but is worth it. I buy the bottle at COSTCO for $18. It lasts for about six months. I only have to use it twice a day per directions on bottle. No more cracked throbbing skin at nail edges and smooth skin and feet now. I use it in morning after shower and just before bedtime.
Nothing else worked like Amlactin.
Its sold elsewhere but they smaller bottle or tube is $13 so the large one from COSTCO is the better deal.

Title: Re: How to moisturize?
Post by: Sooki on July 25, 2014, 07:22:19 PM
Another lightweight suggestion:  Just before getting out of the shower, I spread a thin layer of hair conditioner all over my bod and rinse.  It makes my skin feel smoother and not so dry.
Title: Re: How to moisturize?
Post by: daisymay on July 25, 2014, 09:05:29 PM
Some great ideas! Glad for this forum and the ability to share. :-)
Title: Re: How to moisturize?
Post by: SjoGirl on July 26, 2014, 04:09:01 PM
I use Tree Hut products and have found them very helpful. The body wash is very mild and I use the body butter after.

I can't take fish oil, but would if I could because what we put in us can make as much difference as what we put on us.
Title: Re: How to moisturize?
Post by: pweidema on July 28, 2014, 07:52:01 AM
Just curious SjoGirl - why can't you take fish oil?
Title: Re: How to moisturize?
Post by: Helene on July 28, 2014, 11:42:57 AM
I don't use soap on my face or body either. I shower and swim every day and use Trader Joe's cream lotion. It's one of the few I don't get a rash from. I think the combination of moisture (water) followed by moisturizer keeps my normally dry skin from getting too dry. I think that people who avoid water have more trouble with dry skin than those who bathe every day.
Title: Re: How to moisturize?
Post by: soycoffee on July 28, 2014, 11:29:17 PM
I was born with a skin condition called Ichthyosis (Greek for "fish skin"!). For the first year of my life my mother bathed me with mineral oil (I think). I outgrew that dry kin condition by age 45 or 50. Then came Sjogren's and the dryness came back; the scaliness not so much.

What I do now is use only NOW Almond Oil (Amazon has it). It is particularly good for my face; I find that small irregularities seem to heal over very quickly with almond oil. For especially dry spots I use Vitamin E Oil.

Best,
Soycoffee
Title: Re: How to moisturize?
Post by: susanep on July 29, 2014, 12:53:27 AM
On my face the only soap I use is glycerin soap. It somehow works with holding on to the moisture in the air. I love it.

During a shower I let the hair conditioner run over me, and it does help.

After a shower I then use a moisturizer while my skin is still damp.

I have been using some extra emollient night cream on my face by Mary Kay that my daughter in law got for me a couple of years ago. I have 2 jars of it, and it does help over night with a faint light scent that agrees with me.

I love sharing these tips with each other.

susanep :)
Title: Re: How to moisturize?
Post by: cccourt1942 on July 29, 2014, 05:50:39 AM
This thread keeps bumping back up...so I am going to chime in.  A dermatologist advised Lubriderm decades ago.  I had not been diagnosed with psoriasis yet...as dermas used to only think placque psoriasis and  I have a different type.  I thought I had lupus about 25 years ago.   I still wonder about it.   My skin is dry...and sensitive.  My children ("Old people now") are both red heads...and have more sensitive skin than mine.  But their skin doesn't keep them "on edge" like mine does. 

Over the years, Cetaphil came along, and derma says Cetaphil and all Cetaphil products.  The "Gentle Cleansing Bar" is NOT soap.  They have  thick cream or lotion.  It is advised to put cream on when your skin is still moist. 

As I have gotten older, I think I have adjusted to feeling scaly.  It's really not scaly..it's "bumpy".  Anyway..I also love Eucerin.  But Cetaphil is my everyday go to.  I use specialized non soap products on my face as well (for comfort..not beauty--   ;D )

I believe the key is putting on any lotion when skin is moist.  I am old..and finally have stopped working.  (At 72).  I worked thru last November...I am widowed and live alone.  It is simpler for me to bathe, moisturize...wander around scantily or unclad and allow cream to sink in.  But even when I worked, I still got up early enough to do treadmill, pilates reformer AND bathe and let that cream absorb..and  then get dressed.  Had to or my skin literally crawled all day.  Bothers me to even think about it! 

Thanks to all on this topic.  Very interesting posts.
Title: Re: How to moisturize?
Post by: warmwaters on July 29, 2014, 04:23:55 PM
I'm glad this one keeps bumping up, as I'm learning lots, including the various ways that our skin can feel dry.

Wow!

Thanks all
Title: Re: How to moisturize?
Post by: Chris on July 29, 2014, 05:28:41 PM
Aveeno works for me! After shower......????