Does anyone have problems with heat? I was out in the heat/humiidity this morning, trimming the lawn for only 45 minutes but I feel washed out and nauseous now. Never had this before...is it common with Sjogrens?
Yes I have it bad. I have had it for years too way before my diagnosis. I have actually thrown up because of it.
It is common. You are not alone. I did end up getting Central Air for my home because of it and I live in a relatively mild climate. The summers were just that bad for me.
I have had this happen before long before Sjogrens and I know a lot of people in high humidity this would get to that dont have the disease. I wouldnt blame it on the disease entirely. Its fairly common especially as we age.
Kimberly
Kimberly is right, but if this is a new symptoms for you and you have other neuro type problems (especially autonomic symptoms), then you might want to see a neuro for testing/evaluation.
There really isn't much that can be done about heat intolerance...other then stay out of the heat. But if you have other problems as well, you should be evaluated.
Same intolerance here. Especially when I'm in the sun! And it's going to be over 100 for the next 10 days or so. Sounds like inside time for me! But when the air conditioner is going I always have a blanket over my feet ;D.
Temperature dysregulation and severe sweating from localized parts of the body are part of the 'joys' of Immune disorders.
My hair is often wet, and sticking to my head, just sitting quietly in an air-conditioned room!
We carry on.
Hugs, Elaine
Just developed this within last 6-7 months. Just running the vacuum (in 1 room) winter and summer with central air running constantly! I become "overheated". My face turns very red and I sweat PROFUSELY but only from my head and neck. In order to get my temp. "regulated", I literally have to sit perfectly still and blow a fan on myself. My head will literally be soaked through to my scalp from the slightest exertion. It also "wipes me out". It's like my body is working so incredibly hard to "stabilize" my body temp that when it is complete and back to normal, my body has no energy left. It's a very embarrassing symptom as it happens to me everyday. I'm sorry you too have to suffer this horrible symptom.
Thanks all. Was outside in the morning, and started to feel wiped out and sick, then got sicker as the day went on. Upset stomach all nite. Maybe the flu?I don't know.
If it is only happening outside in the heat thats common for a lot of people especailly in high humidity. We take time to get used to extreme heat and not having enough hydration can cause heat sickness my mother has always said and she is a nurse. I live in Virginia and our summers can reach 100 plus in July. I drink a lot of water and it definately helps and only working outside early mornings or late evenings at almost sundown. If you are not getting ill from doing things indoors like some have said I would definately say the humidity is the factor mainly and it takes getting used to or you could have flu also.
Kimberly
Ditto to all the complaints. Fainty, nauseated, burning from inside....
I really hate the I'm freezing and five minutes later burning up. Going back and forth.....
yep I have this---it seemed to slowly start after had heat stroke but wasn't too limiting and then got worse as aged and got heat stroke again when was outside for several hours in hot sun and since then I avoid it---if its 67 degrees and sunny forget it--more than 5 mins out can cause some problems for a day
Anita--what sort of tests can we get? what is there to look into?
I just want to move to pacific northwest for retirement or sooner so I can hike all year---right now I am in midwest which is bad climate for me--winter too cold to be outside long and summertoo hot--and I love to walk---but feel like a prisoner better part of the year -----!!
I had heat intolerance for years now long before I knew that I had Sjogren's. Any heat makes me sick. I can't sweat and then I started to itch. And sometimes I even get a rash from too much heat.
Yes, I too suffer from heat intolerance. I was invited to go away to visit a relative at the beach tommorrow and I am on the fence about it. I will have to let my sister know by tonight because everybody is leaving in the morning.
The sun just puts me into a trance like state, my face usually swells and then of course will come the rash. This disease seriously puts a damper on ones social life. I may choose to go and I will just have to stay indoors most of the time. Well, at least I will be able to spend some time with family.
Sjogrens, the gift that keeps on giving.
If you search on heat intolerance on the Forum you'll find many people have this issue. Some things that can help:
A Frog Tog (absorbent towel-like, holds water and you can keep it on your neck while outside).
H2O -- salt water spray that you can find at Ulta.
Use an umbrella -- I carried one today while we were at an outdoor festival, made a huge difference in my ability to stay there.
You know, if you have heat intolerance and get a letter from your doctor, the AC can be tax deductible as a medical expense.
Sharon
For those of you that cannot sweat - have you tried a far-infrared sauna? I don't sweat at all during exercise but have recently found that I do in a detox cabin. It slowly increases in temp and is very good for joint pain and swellings, but best not to overdo it on your first go. I stayed in too long last time (half an hour) and felt like I was cooking. ;)
I have also found that high dose Vitamin D has helped with heat intolerance too - I used to get a really bad prickly heat rash after being in the sun but since taking 10,000 IU of D3 every few days I haven't had a rash so far this summer (fingers tightly crossed).
Until last summer I used to say "I can never be too hot."
Sigh. Yes. Now I get a bit of warm and my body temperature goes through the roof, and I'm exhausted.