One of the things that makes me really sad about Sjogren is that it is destroing my dreams and hopes on a good carrear. I'm reallizing just now that I cant manage a more challenge position in this conditions. I m always tired and always with some trouble in my eyes....problems have get worse in the last two months.
Every day I wake up and cry (I still have some drops) I cant see my eyes always red....I look at the mirror every 5 min....I cant stay in front of computer all the day....my daughter is only 2,5 y and is really hard to take care of her when the only thing I want is close my eyes and lie down in my bed. I'm stoping dreaming and only see a black future for me and my family.
How about you? How do you manage yuor job? Children?family?
Emanuela
I'm sorry this has happened to you.
Everybody is different, and some people have a harder time than others. I'm sorry you're having a hard time!
I've had a great career in the financial field, starting as a receptionist in a bank, then a teller, then on "the platform" (opening accounts and loans), and then studying for and passing the Series 7 (securities rep) exam and the Series 9/10 (supervisory) exam. I now have a great job as the assistant to two busy financial advisors.
Probably ignorance is bliss, in my case. I wasn't diagnosed until about 5 or 6 years ago, although I've had symptoms and had been sick for, easily, 30 years. I remember thinking that somebody could put all my symptoms together and find something wrong, back in 1985!
But because I didn't know there was anything wrong with me, I pushed and pushed. When I finally hit the wall, I was bedbound for more than a week. Then I was diagnosed and started taking Plaquenil, which was a miracle drug for me. It took 6 months for me to start feeling better, and a year to get the full effect.
Now I'm not disease-free by any stretch of the imagination, but I have many more good days than bad. I work hard during the week, with an hour commute each way, and I spend my weekends doing NOTHING most of the time. But I have a great job and great friends and have a pretty full life.
What are you doing to help you cope? Has your doctor prescribed Plaquenil?
I am so sorry to hear what you are going through. Especially with the little one. I understand how are this can be. I can honestly say that I am happy I am retired. But when I have a flare I get so desperately ill with the worst flu like symptoms. I can't move from the couch/bed. I have educated my family and friends and they know when I am out of commission that it is what it is.
With that being said I too vote to ask your doctor about Plaquinil. I believe that has helped be for the times between my flares.
Best of everything to you
Sallie