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Sjogrens Topics => Living With Sjogren's => Topic started by: toddb on September 04, 2013, 11:44:44 AM

Title: SS without dryness?
Post by: toddb on September 04, 2013, 11:44:44 AM
After months of chronic fatigue, I tested positive for SSA and SSB.  Other than the fatigue and brain fog, I have no dry eyes, joint pain, etc, associated with classic SS.   Rhemetologist said I don't have it, but can't explain the other symptoms.  Asking everyone out there:  is it possible to have SS without the dry eyes, etc? 
Title: Re: SS without dryness?
Post by: Carolina on September 04, 2013, 12:34:13 PM
Yes, it sure is.

Keep us posted.

Hugs

Elaine
Title: Re: SS without dryness?
Post by: Helene on September 04, 2013, 12:35:49 PM
I tested positive for ss with lip biopsy et al, and though I drink  lot of water because I'm very thirsty, I wouldn't say that dryness is my major complaint. I have extreme fatigue and arthritis, but no dry eyes. I assume that the symptoms will come though plaquenil might stave them off.
Title: Re: SS without dryness?
Post by: deniselb on September 04, 2013, 02:24:29 PM
Diagnosed two years ago based on high SSA, ANA and symptoms of fatigue and joint pain. Only my nose is dry, nothing else. I'm not convinced that SS is what I have, but whatever it is, it responds well to Plaquenil.

I did ask my doctor if she was 100% positive it was Sjogren's and she said no - did I want a biopsy? I said no, because if it came back negative she wouldn't change my treatment. She said it could turn into lupus or something else, that these conditions have a tendency to morph.

If I had no idea what was wrong with me I would want to keep looking for a definitive diagnosis, but I already know it's some sort of systemic autoimmunity, and I know I'm getting the right treatment. Whether it's Sjogren's or lupus or something else may become clear over time; I hope it never does, because that will mean I'm doing well.