Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: Sooki on April 27, 2013, 07:40:49 AM

Title: MedPage article on complications of SjS
Post by: Sooki on April 27, 2013, 07:40:49 AM
Here's a link to an article summary by MedPage Today on statistics of people with Sjogrens getting complications.  Pretty sobering. But we all knew that. 
http://www.medpagetoday.com/MeetingCoverage/BSR/38713

Here's one interesting set of statistics:
"Three-quarters of the patients were seropositive for anti-nuclear antibodies, more than half were positive for rheumatoid factor, and a third were positive for anti-Ro/La antigens. "

So, something to show doctors - how many of us are seronegative!
Title: Re: MedPage article on complications of SjS
Post by: Carolina on April 27, 2013, 08:20:14 AM


""We have carefully observed these patients over 25 years, and the main message of this study was that patients with primary Sjögren's syndrome have a substantial burden of disease over their lifetime, and careful surveillance is clearly warranted," she concluded"

Thanks, Sooki, for the link.

Hugs

Elaine
Title: Re: MedPage article on complications of SjS
Post by: long time dry on April 27, 2013, 12:33:14 PM
Thanks for posting this.  It is indeed very sobering.  Seeing the statistics puts the entire situation in perspective.
Title: Re: MedPage article on complications of SjS
Post by: odie on April 27, 2013, 12:46:58 PM
This abstract is short and to the point so that if it's presented to a doctor at an appt he or she can see the relevant information quickly.  Now I want to get my hands on the full study to see the details. I'm trying to arm myself with as much information/ammunition as I can to bring to my doctors to bring them up to date.
Title: Re: MedPage article on complications of SjS
Post by: Skylar on April 27, 2013, 12:56:41 PM
Definitely sobering, but not surprising.
Title: Re: MedPage article on complications of SjS
Post by: Cassi307 on April 27, 2013, 01:05:58 PM
Thank you so much for the link. I shared it with my boss so he has a better understanding of what I am dealing with. They have been pretty supportive so far but I don't think they understand that it goes beyond the dry eyes and joint pain. Great article.