..how can I possibly have all these things :) Its a mathematical improbability hehe, but yet here we are. Sometimes I think its not all these things, but just one big disease simply because of the odds. I am waiting for the day the research world goes..Ladies and Gentlemen we want to announce that after decades of study research blah blah we now know that *reads off list of conditions* are all part of a single disease process. ;)
Well, yes I used to. But then I was diagnosed with Sjogrens and the doc said: "Lady, all your diseases and troubles can be attributed to.....: Tadaaaah
Or sort of... I have felt like crap for years, wondering why I kept getting all these strange problems. But Sjogren's explains them all
INFLAMMATION is a common factor in MANY MANY "illnesses."
Quote from: Tivia on January 24, 2013, 03:22:17 PM
..how can I possibly have all these things :) Its a mathematical improbability hehe, but yet here we are.
As I said on another thread, when I first came to this forum 5 years ago, I thought you all were a bunch of whiny hypochondriacs.
Now I'm one of you, and I know better :) Poetic justice perhaps.
Styx
Yep, on my good days, I still try to rationalize symptoms as something far less serious ... like this persistent malar rash? Nah, it's probably just rosacea. Hair loss? Genetics. Hives? Coincidence. Other weird rashes that love to pop up from time to time? I'm on a boat load of medication... why wouldn't I get weird rashes?? Sore in my nose? Who doesn't get those from time to time?
Doctors love to have categories for us; neat labels like lupus or Sjogren's or rheumatoid arthritis but I sometimes think we as patients might be better off with a diagnosis of rheumatic disease so that every doctor - not just the rheumatologists who understand (or are supposed to understand) these diseases the best - can treat us symptomatically rather than worrying about whether or not a particular symptom fits into a particular diagnosis (like the urgent care doctors who don't think Sjogren's causes fevers and flares ::) )
mshistory, very well said.
Styx
I had read an article some years back that said that researchers have been tossing around the theory that Sjogrens is the "main" or basic autoimmune disease from whence all autoimmune diseases are derived.
I do think that they are basically all from the same cause. It is the symptoms or cluster of symptoms that cause the docs to give them certain names. Very easily could be just one big umbrella under which all these syndromes are hatched. irish
Living with brain fog, I usually try not to think!! ;)
Jennifer
I've always had sores in my nose, like little zits. They hurt like heck until they come to a head and I can lance them. In med tech school I learned that I am a staph carrier.
I didn't know anyone else did that!
Sharon
I think there's some kind of T-cell/B-cell/inflammation thing that is at the root of all these things - arthritis, MS, Lupus, Sjogren's - I think someday they will find that it's all basically the same, but expresses itself differently depending on your genetics, body chemistry, etc.
I think they'll also find that it operates differently depending on how it's triggered - by stress, a virus, physical trauma, pregnancy, etc - and then it progresses and changes according to what ELSE you are exposed to or experience...
...but I think it's all going to come back to the same processes at the root of everything. And HOPEFULLY they can find a way to help correct imbalances there, and help us ALL - not by suppressing or destroying the immune system, but by re-educating or re-balancing it.
My Rheum is part time in the clinic and part time at a big research center and I participate in the rsearch they are doing - I took a half-day tour of the place and it's amazing.
It is easy for me to be optimistic about this stuff because I saw first-hand how many exciting things they are working on, and how many very good, smart people are trying like mad to solve these mysteries. Many of them went into this field to begin with because somebody in their family suffers from Rheumatological diseases.
I am not a scientist and don't know what the answers are - but I know they're out there, and we're getting closer!
Hi
I've never really wondered. I think that's because I never had a prolonged period of 'wellness' like ever. My childhood was plaqued by ear and throat infectons. I think I had about 22 minor operations before I was 21. (ENT stuff and an appendectomy and then a couple of D&Cs) I had all except 2 of my baby teeth removed by the dentist because of gumboils. (Not all at the same time)
I'm just grateful for 'good spells'.
Take care - Scottie :)
What if they are researching under wrong assumptions? They may never find a cure that way. The problem isnt the disease's, the problem is a faulty immune system. That is the disease everything else is just a symptom/complication.
And really I dont think there is much demand to find cures for anything. That would put so many people out of business, and call me paranoid but I think the pharm co's and the specialty doctors and clinics would not want to go out of business. You really think a company/person that makes its living off the sick want them to get well? There would be no need for lifelong care and drugs were that the case, they would go bankrupt. I think there is no drive to find cures for chronic illness, its big business.
Quote from: Tivia on January 30, 2013, 10:57:34 AM
What if they are researching under wrong assumptions? They may never find a cure that way. The problem isnt the disease's, the problem is a faulty immune system. That is the disease everything else is just a symptom/complication.
And really I dont think there is much demand to find cures for anything. That would put so many people out of business, and call me paranoid but I think the pharm co's and the specialty doctors and clinics would not want to go out of business. You really think a company/person that makes its living off the sick want them to get well? There would be no need for lifelong care and drugs were that the case, they would go bankrupt. I think there is no drive to find cures for chronic illness, its big business.
Ok. I'll call you paranoid! Nobody is going to go out of business when they find a cure for something, at least, not in our lifetimes. Believe me, there are plenty of chronic illnesses that will still need treatment if they cure one. And there are injuries.
Sharon
QuoteOk. I'll call you paranoid! Nobody is going to go out of business when they find a cure for something, at least, not in our lifetimes. Believe me, there are plenty of chronic illnesses that will still need treatment if they cure one. And there are injuries.
Sharon
HAHA this us why I love your posts Sharon, set me straight and back to reality ;) Somedays I read the forum to remain sane, thank god you are all here.