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Sjogrens Topics => Living With Sjogren's => Topic started by: Myshkin on January 23, 2013, 01:38:47 AM

Title: Neuropathy and neurotic pain as a side effect of Plaquenil?
Post by: Myshkin on January 23, 2013, 01:38:47 AM
I went for an emergency visit today at the reumatology ward at the hospital, but it wasn't my regular doctor. A young guy who kept checking with an older doctor.

The last week I have had the worst neuropathy, jerking and pain shooting down my legs. It has been killing me...

They ended up suggesting that I try to stop Plaquenil, that I resently started. I was a bit sceptic - them not being my regular doctor, whom I am a big fan of.

But then I got home and looked at when I actually did fill in my prescription for Plaquenil. One week ago exactly... The day before this heck started.

There could be one more contributing factor - I have epilepsy also and I am also on epileptic medicine, Topamax. So maybe some weird interreaction.

So based on the timing I guess they could be right after all. But have anyone else heard of this? I can see neuropathy listed as a rare side effect, but they'll list anything on those lists....
Title: Re: Neuropathy and neurotic pain as a side effect of Plaquenil?
Post by: Ark mom on January 23, 2013, 07:12:56 AM
So to hear that you are in pain!  I wish I had advice for you or knew something that could help you.  At least I can offer my support! 
Title: Re: Neuropathy and neurotic pain as a side effect of Plaquenil?
Post by: Myshkin on January 23, 2013, 08:46:19 AM
Quote from: Ark mom on January 23, 2013, 07:12:56 AM
So to hear that you are in pain!  I wish I had advice for you or knew something that could help you.  At least I can offer my support!

Thank you. That does mean everything. No one else really understand
Title: Re: Neuropathy and neurotic pain as a side effect of Plaquenil?
Post by: gardenlover on January 23, 2013, 08:56:33 AM
Timely post.  Sorry to hear your trouble!  I just started plaquenil myself and had to go to the doctor because of such intense back pain and pain down my legs.  Interesting....
Title: Re: Neuropathy and neurotic pain as a side effect of Plaquenil?
Post by: Myshkin on January 23, 2013, 10:17:21 AM
Quote from: gardenlover on January 23, 2013, 08:56:33 AM
Timely post.  Sorry to hear your trouble!  I just started plaquenil myself and had to go to the doctor because of such intense back pain and pain down my legs.  Interesting....

Really? When did that start? I got the dates wrong (ofcourse...) I started Plaquenil on january 7th, and my troubles began wednesday 16th.
Title: Re: Neuropathy and neurotic pain as a side effect of Plaquenil?
Post by: Myshkin on January 23, 2013, 10:18:16 AM
But.... I think I have just started to experience an increase in energy due to the plaquenil. Oh how that was good. I don't want to stop that :'(