For those of you with IC, have you tried Cystoprotek for your Interstitial cystitis? I ordered the supplement and I started taking them last night and my symptoms are worst. I was very hopeful and I feel so sad again. None of the medicines I take really help me, plaquenil?? Ummm maybe with my hair loss, evoxac?? NOT, prenisdtone? Not really and now this. I feel my body is not responding to anything. I have a bday party for my son tomorrow and Im so upset not crying but angry.
What's in it?? Have you tried Elmiron?
Diet?? (no acidic foods)
Im taking prelief before eating anything and Uribel to calm the symtopms. I found Cystoprotek when I was reading the IC-network. They sell it there and in amazon, the reviews are great but like all the medications it doesnt work in everybody. Not sure whats in it.
I read Elmiron only works 30% of the time with my luck is not going to work with me. My gyn called me today which I was surprised, he wanted to check on me and told me that he was going to send a prescription for a bladder relaxer and take it from there, he said that to have an IC diagnosis we have to go step by step, he can prescribe Elmiron but not yet :(
Cystex helps me - nothing else will - but everybody is different. SO SORRY you are going through this - it is absolutely the most miserable pain...I don't think anybody who hasn't had it can understand. :-[
Quote from: Sleepy In Seattle on December 08, 2012, 09:11:48 AM
SO SORRY you are going through this - it is absolutely the most miserable pain...I don't think anybody who hasn't had it can understand. :-[
- TRUE!! It was so severe for me that it ended by teaching career.
Cindy .. Did you read the thread on the connection between cortisol and IC?
Jazzlover are you better now? Yes I read the post, Im sorry but what is cortisol? Are you still taking it? How do you if your body needs them?