Remission...?
The past two weeks as my system has been eliminating toxins, I have been thinking about the possibility of remission or Sjogren's symptoms. I have been wearing my polar fleece mumps scarf to bed as I have done in the past. I have been taking my supplements and diabetic medications as before. I still use Reiki and Reflexology to help me deal with the pain. I have used frequency to kill bacteria from time to time. I have used other tones randomly to help me heal. In short I have not used frequency on a regular basis like I should.
A couple of weeks ago, I got moisture in my sinuses, eyes, and mouth (as long as I did not mouth breath). The pain in my muscles and joints reduced to the point that I thought it had gone away. I went from 4-8 liters per day of fluid down to 1-2. I do not know what caused this change and I am not complaining about it. But is remission possible?
I know that I have been told that remission does not happen. Symptoms just seem to progress. This period may just be the calm before the storm. I choose to enjoy it as long as I can. Sleep patterns have started to change; my meditation at night puts me to sleep for 4 to 7 hours. I take several naps during the day now at lunch and supper. Maybe remission is possible. Maybe it is just a change in symptoms.
I hope it is remission!
Joe, that is such great news and I'm feeling very hopeful for you. Keep us informed of your continued progress! :D
Hi Joe :)
I had a bad spell in my 30s - but dryness was not my main issue then. I then had about 10 years worth of remission and everything kicked off with the approach of menopause. Hashimotos developed and the dryness arrived. I, personally, think remission is possible but I have also read that it isn't.
Take care - Scottie :)
At least you don't have to worry about hitting menopause, Joe! I hope you feel so good for the rest of your life!
Sharon
Joe
With everything that you have experienced in the last year, you definitely deserve a break. I also have periods of no symptoms, although I don't have the severe symptoms to begin with. Feeling normal is wonderful and cherish every moment, but don't over-do it!!
Winnie :)
Maybe you have balanced a few things. I definitely have periods where my symptoms get better. Actually I am sure most of mine are hormonal. Or related.
At any rate, enjoy this time!
Thank you all for your responses. This is typically a bad time of year for me, late fall through early spring. I was hoping to start a discussion on the possibility of remission. This was not something that I was expecting. I hope it lasts.
I really hope you do have a remission Joe, and dont worry about the calm before the storm. Just enjoy the ride. My endo says my thyroid is in remission, I am going to take it for all I can....now if the other AI's would leave me alone for a while lol
Joe,
I think there is remission! I hope that it lasts for you. I hope it comes back for me too :)
I went for over a year with no symptoms at all. Mind you I do not have dryness (yet) and I guess mine are mild but I had them none-the-less.
I hope your remission continues-hootyhu
Hoping it is remission, but thankful for the relief you are experiencing, remission or not.
I think remission must be possible. We all have times that are better and times that are worse. Why not have the better times go to remission? I'm doing all I can through diet because it's easier for me, but I also think there must be a way through meditation to quiet body responses to perceived threats. Long ago, I used meditation to increase the temperature of my finger tips (it was a biofeedback exercise) and to change heartbeat. Why not communicate with the immune system? Why not open up clogged glands? Maybe my next project.
Sometimes feeling better just seems like grace. Enjoy it and be grateful when it comes!
Joe..I love hearing good news.
Here is a definition of remission (illness)
Remission is the state of absence of disease activity in patients known to have a chronic illness that cannot be cured. .... A complete remission is defined as complete disappearance of all such manifestations of disease. Each disease or even clinical trial can have its own definition of a partial remission.
Joe you do so many positive and proactive measures: I am convinced your hard work and research had benefited you. And you have so freely shared with others.
I am in the inflammation control corner to control symptoms and detoxifying your body has benefited, lessened the stress on an already challenged body/mind.
Then you have been de-stressing the mind....mind--->body---mind. Interrupted the Cycle of pain/stress/inflammation.
So many kudos to you. Now the due diligence. With the better sleep, this is actually when our bodies/mind heal themselves...you are on a positive course. This is when you want to continue the course. If the disease, virus? is dormant, remission?, you want to continue helping your body/mind.
I am hoping 1-2 weeks turn into many more and that if symptoms return they will be weaker, and weaker as you stay your course.
Great news..can't wait to hear more!
Joe, great news I hope it is remission!
Cricket~
Joe I am so glad to hear this news. It is good news that is enough.
susanep :)
Well, I still am in remission from Sjogren's and Fibro. My eyes will get dry if I over do computer screen time. My mouth will get dry if talk more than I listen or mouth breath. I sleep with my mumps scarf and slippers on. I take my supplements and medications.
It snowed here last night after a brief rain that froze. Shoveling today may be interesting. I may have to find spikes for my boots and cane.
Be careful Joe, and glad to hear things still in the good. I am using the ole cain more these days. But we do what we have to do.
susanep :)
Joe, I like hearing good news, so hooray. I believe in miracles so I definitely believe in remission. Glad you are feeling better, you deserve it. Keep on having those positive thoughts. Take care. CK
I watched an old movie today that pulled tears. Real tears not the ones that hurt so bad. This included a stuffed nose. I wish everyone here could experience this remission also.
Yeah, Joe! So happy for you. What movie did you watch?
So glad to hear you are feeling better, Joe. May it continue indefinitely. :-) Lucy
I forgot to wear my mumps scarf last night, so I am dryer this morning. I will try to remember to wear it tonight. It is interesting how the little things affect our health.
I may be challenged in December if we travel to see our grandsons.
Quote from: Joe S. on November 29, 2012, 05:22:31 AM
I forgot to wear my mumps scarf last night, so I am dryer this morning. I will try to remember to wear it tonight. It is interesting how the little things affect our health.
I may be challenged in December if we travel to see our grandsons.
Grandsons: you know one will want your mumps scarf!! My granddaughter, here with me now says:
"Sharing is Caring"
Did you get a spider plant for the bedroom? I used to give these as a baby shower gift extra (along with the little green machine...another story..lol)
Benefits: NASA places this plant among the top 3 types of houseplants that are great at removing formaldahyde. Also removes carbon monoxide and other toxins or impurities. http://www.sustainablebabysteps.com/types-of-houseplants.html
Hope you get to travel in Dec. Think positive.. ;)
Very happy for you Joe!!! You deserve this remission and I hope you have many many more that give you good long breaks and some happy times :D
Joe you have helped all of us by sharing your treatment plan & experiences. Your good news makes my heart happy!
We had just started our trip to see our grandsons when I ran out of filtered water. I filled my bottle with tap water (Fluoride and Chlorine). Sjogren's came back and bit me hard. 2.5 hours west Jan purchased some bottled water. It started to come under control by the time we got to Ellensburg, Washington. I had other problems to deal with as we went through the pass in the cascade mountains. I am trying to bring things under control while we are visiting our grandsons. I may have to run tones. Friday looks like it may be a good day for that.
Lots of Christmas post card views on our trip west.
Joe, Sure glad to hear that you are feeling some better. Also, I think that it is great that you and Jan are able to take this trip. You both deserve it as it has been a rough year or so with both of you laid up.
We know that life is not without pain, but it is nice to have some "fun" things to look forward to. Pictures are great, but seeing the grandkids is better. Have a safe trip and I hope that you can avoid the nasty winter weather that is not whipping up Irish
Joe S...so happy to hear you and your wife have started your trip.
Given all the work you have done, your body/mind, toxins and all, due diligence is key for you (?). You will bounce back in your 'new top form'...you earned it!
I also hope you will consider setting up a Fickr so we your SJS family can share your trip photos ...spread the JOY.
Keep us posted, best to you.
Thinking of you and your wife on your wonderful adventure - grandkids are truly golden & seem to grow up even up faster than our own kid(s)"Nothing gold can stay." (Robert Frost).
...and thanks again for all of you your tips and advice - I am loooking into 'tones'.
Here is wishing you and your dear wife a wonderful, stress free, pain free trip. You both deserve it. I pray you keep staying in remission.
susanep :)
I am allergic to pork. I stopped for lunch at a local Chinese Restaurant in Duncan. I did not realize that their chicken wings were fried in pork grease. I started peeing every half hour and sleeping in between. Water was the only thing I could keep down for over 48 hours. I was finally able to keep carrot juice down and now 24 hours later I am feeling much better.
Sorry you went through that ordeal, but glad you are better. It is getting harder to eat away from home because of our foibles & allergies!