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Sjogrens Topics => Living With Sjogren's => Topic started by: gardenlover on November 13, 2012, 06:19:07 PM

Title: Restasis and Cancer?
Post by: gardenlover on November 13, 2012, 06:19:07 PM
hey folks,
I've been really hoping that they'd increase the "safe" amount that we can take Restasis as it really helps me.  I take it one drop 2 times a day, but I'd love to take it more.  In an effort to see if this is possible and if they are doing studies on this, I started researching and found several articles about Restasis and lymphoma (not sure if that is spelled correctly).  Anyone heard of this??  None of my doctors warned of this....
Title: Re: Restasis and Cancer?
Post by: Daisy1234 on November 13, 2012, 06:27:53 PM
Hi Gardenlover:

I haven't heard if there is a connection between restasis and NHL of the eye myself, but I just saw my opthamologist 2 weeks ago and he told me to increase the amount of restasis I was using daily to at least 3 times.  I currently have NHL but not of the eye and had it before I started using restasis so it wasn't a factor for me.

I would suggest that you call your prescribing dr for restasis and just ask if you can increase the dose to 3 times daily in your case.  They might just tell you that over the phone without you having to book an appt and pay out some bucks.

Daisy
Title: Re: Restasis and Cancer?
Post by: irish on November 13, 2012, 10:09:58 PM
I had heard that the company making Restasis was coming out with another Restasis that is stronger. In other words, there will be 2 strengths that the doctor has to choose from. Might want to ask your eye doc about that. Irish
Title: Re: Restasis and Cancer?
Post by: gardenlover on November 14, 2012, 03:38:15 AM
This is exciting news!!  I hope they do have a stronger one or one that I can take more often.  I think the cancer may have been only in rats thus far.  Just hoping someone has heard something on this.  Thanks ya'll.
Title: Re: Restasis and Cancer?
Post by: Cheryl on November 14, 2012, 04:36:05 AM
I wonder if the common link between Restasis and lymphoma is Sjogrens.   Sjogrens patients would make up a big part of all Restasis users, and we are also more likely to get lymphomas.  I do want to hear more about the research, though.  (As for me, my lymphoma occurred years before I started using Restasis.)