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Sjogrens Topics => Living With Sjogren's => Topic started by: valene2009 on August 28, 2012, 01:16:33 PM

Title: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: valene2009 on August 28, 2012, 01:16:33 PM
i just read that plaquenil can cause eyes to get more dry--- wow.. i am now wondering if that is why my eyes have gotten worse-it seems since i have been on plaquenil.. its been years but i wonder...
anybody else notice more of a dry eye on it???
i will be going to a new rheumy in oct..but i have a feeling she will say its not a side effect...and keep me on it.
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: matildamillicent on August 28, 2012, 03:55:24 PM
Nope, mine have improved on Plaquenil. Sorry to hear yours haven't.
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: drylady on August 28, 2012, 04:27:16 PM

Hi Valene.  My eyes only started bothering me about 3 years ago. After I started Plaquenil 2 years ago  my eyes definitely have improved (dryness, blepharitis and sensitivity).
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: valene2009 on August 28, 2012, 04:42:09 PM
wow..ok. thanks... maybe im just too stressed..working on that too.. thanks for your replies..
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: Scottietottie on August 28, 2012, 05:06:11 PM
Hi  :)

I also feel that my eyes improved after Plaquenil. I'm really sorry that it does not seem to be helping yours. My Schirmers numbers improved after taking it - and fish oil.

Take care - Scottie
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: CandyBar on August 28, 2012, 07:36:48 PM
Hi Scottie: 

Do you remember how long it took to feel that improvement on plaquenil?

CandyBar
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: CandyBar on August 28, 2012, 08:34:22 PM
P.S.  I should have added that I'm asking because today makes exactly three months that I have been on plaquenil and I'm looking for hope that it can still bring me improvement.
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: valene2009 on August 28, 2012, 08:41:59 PM
well it prob didnt make me any drier..just not anymore tears.. i have mgd bad too-where the oil glands get clogged..and my mouth so dry... thanks gals.
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: Gayle on August 29, 2012, 03:15:39 AM
Candybar- it can take a lot longer than 3 months also. I did not notice a difference for 6 months and then went into a flare... it was not nearly like flares I had previously so think the Plaquenil helped a lot... hope you see some improvement soon!
Gayle
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: iraisin on August 29, 2012, 04:44:46 AM
Candybar,

I had a bad bout after I started Plaquenil, my rheumy told me to push thru it and hang tuff. I did, saw improvement at about 3-4 months, was happy w/that and thought that was it for me.

Recently, I've gone thru a lot, enough to put me in a flare. I was pleasantly surprised that no flare - not even fatigue hit me! So, what I am trying to say is, that around the 6-8 mo. marker, there will be even more improvement!

So hang tuff - it will come!
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: CandyBar on August 29, 2012, 08:17:28 AM
Gayle and iraisin,

Thank you so much for those words of encouragement.  I know that plaquenil takes time to be effective, but it is especially reassuring to me to hear that from my sisters in the trenches.  I will be patient and hopeful!

CandyBar
Title: Re: plaquenil causing dry eyes to be worse?? anybody have this?
Post by: Scottietottie on August 29, 2012, 06:33:09 PM
I don't think I noticed improvement in my eyes for about a year. I felt fatigue improvement after about 6 months.  :)