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Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: Cricket on August 11, 2012, 09:02:43 AM

Title: Got Nothing!!
Post by: Cricket on August 11, 2012, 09:02:43 AM
Feeling like I got nothing today! :(

Yesterday I had so much pain, today not any better.  Pain from my fibro, from my gland (or tumor) a headache and not sleeping well.  You all know the game, but sometimes it seems what is the purpose to going on just to be in pain everyday and then try to still do things for our family, yes we worry that their lives are changing, God forbid they might have to change and do a few things for themselves or us!!   So sick of all of it, taking the pills to feel better for a few hours, but then so sleepy I want to go to bed, when I wake up the pain is in full force so take more pills!!

Hoping tomorrow will be better!  Friday appt with oncologist to Find out when I will get chemo treatment  started, I am sure this is contributing to my pain filled days.
Cricket
Title: Re: Got Nothing!!
Post by: Dee on August 11, 2012, 10:00:37 AM
big HUG
Title: Re: Got Nothing!!
Post by: Gayle on August 11, 2012, 12:00:35 PM
Hugs Cricket!!!
I am sorry your having such a difficult time. I can only imagine what all is going on. I wish I could help! Rest and take care of you. If anyone needs anything, they can do it. You are not supposed to be chief cook and bottle washer at the moment. I hope you get some relief and good answers this next week!

Know we're all thinking of you, sending up prayers and positive vibes and warm thoughts!

Rest, breath and rest some more!

Gayle
Title: Re: Got Nothing!!
Post by: Katybarstool on August 11, 2012, 12:07:28 PM
Cricker

I'm not surprised you are feelings so low. You have had far more than your fair share to cope with. Sending you a big sisterly hug. Let's just hope tomorrow is a better day.

Kathyx
Title: Re: Got Nothing!!
Post by: Pisces24 on August 11, 2012, 01:15:45 PM
Hang in there. Talk to the doctor frankly about your pain and get something that will help you better. The onocologist should have a nurse or someone there. Call them about your pain and see if you can get something prior to your appt.

I just finished my 4th chemo treatment and have the headache and all over muscle aches. The 3rd one knocked me for a loop but I got through it. You just have to hang in there and vision tomorrow better. The onocologist gave me hydrocone to use when I need it and so far it has worked for me. Not sure what you are taking?

Get outside help if you even think you need it. I had a house helper come in and do some physical stuff that I just could not do after my 3rd treatment. It was so nice to have the house orderly and clean. The onocologist also has a nurse and therapist vist me at home next week and it sounds you could benefit from that too so bring that up with the doctor. I know it is hard to ask for help at this time but ASK! It helps.

Good Luck.
Title: Re: Got Nothing!!
Post by: iraisin on August 11, 2012, 08:14:06 PM
Cricket, I so wish this wasn't happening. It is frustrating when your down on your butt and everyone is still sponging your energy.

You're better than me. I would use my little bit of energy to give them all a good "what for" and then go to my room and shut the door. Let them live in their mess a while and just hide in my sancturary.

My prayers are lifted up for you and your peace.

God bless you and may He keep you in the palm of His hand.
Title: Re: Got Nothing!!
Post by: irish on August 11, 2012, 10:45:38 PM
Please know that I am thinking of you during this difficult time.

I wanted to tell you that in order to save yourself some stress it might be wise to just wipe all friends and relatives from your thoughts at this time. Only the ones who give positive vibes need enter your thought for a while.

You are too stressed out and in pain to have to even think of otherhs. just concentrate on taking care of yourself.  When you are through with treatment and the pain is past you might want to reassess your relationships with some of your family. May need to talk with them regarding the past year and how they felt about your illness.

It can be strange what other people can think when acute and chronic illness is thrown in their face. No one wants to face their own mortality and people are usually very bad at watching others suffer as they have no clue what to do or say. They also do not like to face the reality of life.

Please rest and concentrate on your own complete healing. Irish
Title: Re: Got Nothing!!
Post by: quilt4fun on August 12, 2012, 12:22:09 PM
Cricket,
Sorry to hear you are having such  rotten day!  I'll be in prayer for you.  God can be such a great comfort.
Title: Re: Got Nothing!!
Post by: Cdbhappy on August 13, 2012, 09:29:50 AM
Cricket,
Hope today and this week will be better than you can imagine!
Cdbhappy
Title: Re: Got Nothing!!
Post by: Cricket on August 13, 2012, 09:36:49 AM
Thanks everyone!!

Today seems to be better so far, over the weekend I started taking the Xanax again and I am starting to feel like me again. 

It sure is nice to be able to come here and you all understand, sure helps a lot.

Thanks again. Cricket
Title: Re: Got Nothing!!
Post by: Meld256 on August 13, 2012, 10:42:27 AM
Cricket,

I'm so glad you're having a better day. :D

Irish has some great advice.  When we're going through "crisis mode" it's the time to take care of US and what is it Elaine here says?   Let 'em whirl?  :)  (meaning, I think, let everyone else have their drama, etc. without us)

As we all know, we cannot be all things to all our family and friends, and even more so when we are dealing with health trials.  As hard as it can be, we need to focus on our emotional and physical health first.

Happy that you know you can come here anytime for some understanding, love and encouragement.  :)
Blessings,
Melinda
Title: Re: Got Nothing!!
Post by: Sleepy In Seattle on August 13, 2012, 01:21:17 PM
I have no extra wisdom beyond what everyone else has said, I just wanted to add ((((((HUGS)))))))..... :)