Sjogrens World Forums

Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: Bobbie on August 09, 2012, 07:30:15 PM

Title: Sass
Post by: Bobbie on August 09, 2012, 07:30:15 PM
How are you?  Very quiet.
Title: Re: Sass
Post by: Sleepy In Seattle on August 09, 2012, 08:12:46 PM
I have been out of town and away form the computer for about 12 days and also was wondering....
Hope you're doing well, Sass!!!!!!
Title: Re: Sass
Post by: iraisin on August 10, 2012, 04:05:37 PM
Just chatted w/her. She's fine, she'll be on in a bit!
Title: Re: Sass
Post by: sass on August 10, 2012, 07:29:48 PM
hello!  Hope this note finds everyone in good spirits and as healthy as possible!  I have not been able to make any posts for a couple of reasons..Computer problems..but about to get a new one!.  Internet problems...as rural as we live, that will never change..but my problem is more out of stupidity on a human error at Verizon's, not a technology issue! I could get on, to only be booted off.  I still have to address Verizon on it..just no time!

Mother-in-law was visiting for 3 days and we had a lovely time..even went to town and then

day 2 my daughter joined as and we went to a larger town...which left me completely and totally exhausted and wasted!!

Day 3 I had a dental appointment, 2 fillings done, my mouth issues with the bone growing out and combined with the lung issue, my dentist says that I scare him!!!  lol. well he aught to be in my boots! 
He is only doing the mininum work at this time, to take a wait and see approach.  No sense spending too much on dental work now, just get the main things that will cause pain in the future. 

Then Daddy pulled some stuff on us as well, but that is neither here nor there right now, but it was a pretty big issue that left me winded and worried, as well as drained.

Now you find me at today and I am out of town at my son and his wife and the twins moving into their new house!!!Yay out of the tiny little rent house;;;;;;`and I can barely keep my eyes open and still yet to bathe!

I am doing pretty well and am so sorry that I have worried anyone.  Iraisin told me I have to check in daily from now on! So I will follow her instructions. 

I am also having more pain in my back than I ever have.  They have increased my Nerotin to  600 mg twice a day..still no relief..The tramadol is a joke..and at this point so is the Vicodin 7.5's...I can only sit and lay down for the most part..standing and walking is so horrible..just don't know what to do...am asking for pain patch, but they wanted to see how the increase in the Neruotin helps first! 

lungs...same ole same ole!!!    nothing new to report there, other than some whezzes have returned and the shortness of breath has gotten some worse...but I am sure that has that one person, that as you progress, you have people that either says how great you look or how bad you look..me i look like the penguins on the movie Happy Feet!!  I keep moving my feet, but look like I am going nowhere!  lol...my face is a huge blob of round swollen mask.  I have no resemblence of what I used to look like!       again, my apologies   ~sass~
Title: Re: Sass
Post by: Bobbie on August 11, 2012, 07:48:12 AM
Hi Sass,

Whew!!  You have been a busy girl.  It was just so quiet that I had to inquire.

Good to hear from you.  Take Care, Bobbie  ;)


Title: Re: Sass
Post by: sass on August 11, 2012, 08:16:33 AM
Bobbie,

Thank You for checking on me!  I  feel very cared for!  You, sleepy and iraisin keep me on my toes that I needed to check in even when  so busy!  I really do feel the love and sending some back to you!  ~sass~
Title: Re: Sass
Post by: Cricket on August 11, 2012, 08:21:08 AM
Hey girlfriend
Glad to hear you are doing as good as you can.  Are you by the twins today enjoying them?  Well have a good one.
Cricket
Title: Re: Sass
Post by: Gayle on August 11, 2012, 12:01:16 PM
SASS!!! geesh you scared me!
Title: Re: Sass
Post by: sass on August 12, 2012, 05:19:05 PM
Gayle,
sooooo soooorrrrryyyyyy!!!!   I am here lurking from time to time..Been so busy and am missing my BED time!  Have not had a nap in days.  I beginning to wonder if instead of being one of the ones that don't have a lot of flares....if instead I live in one and just never knew the diference...the pain NEVER stops!!  never!!!! I am to the point now that I can walk 15-20 steps and have to sit down...stand for a 1-2 minutes and sit down...I do not know????      ~sass~
Title: Re: Sass
Post by: Gayle on August 12, 2012, 05:25:44 PM
Oh Sass, I am so sorry!

I know I lived in a FLARE for about 2 years (at which time they didn't know what it was, tried on the hats of MS and CCD but they did not fit). It then went away, like magic... when I quit my job,,, so blamed stress. Maybe once things calm down you too will be better! That is the prayer. AMEN.

Take care, GET YOUR REST!

I took a nap today and slept so hard I could not move when I woke up. Some sort of sleep paralysis? Thought someone har put a lead blanket on me... finally was able to move a finger, then 2 and I finally was able to start moving, think it took quite a while though. I know I was so exhausted and no nap for days and not sleeping at night.

SO.... my whole point of writing this 'book', is to tell you that when you finally sleep, if you wake and can't move... it's okay. and much of this is from stress and you need to take care of you! Hugs and prayers every day!!!!

Gayle
Title: Re: Sass
Post by: sass on August 12, 2012, 06:13:08 PM
i don't know how!   :-\ :o >:( :'( :-[ :P ??? ;D