Poll
I had a positive ANA 1:160 speckled pattern and a positive lip biopsy with mild-moderate infiltration of the salivary glands. My SSA/SSB were negative as were all other markers/bloods.
Thanks God for the pos. lip biospy as I would never have gotten the dx altho I had all the symptoms. Here in the UK at least where I live (Wales) I find the GP's and Consultants (altho have not seen a Rheumatologist in 2 yrs) quite dismissive and lacking in knowledge...not impressed one bit by the NHS!!!
>:(
Question: What does your blood work say about you 
?
?
Option 1: positive blood work
Option 2: negative blood work so doc says NO Sjogrens, no medicines
Option 3: negative blood work and doc says no Sjogrens DX but gives you meds for Sjogrens
Option 4: negative blood work but doc says Sjogrens anyway
Option 5: other, you may explain if you like
Title: all this talk of blood work has me wondering
Post by: artistangie on July 21, 2012, 06:47:03 PM
Post by: artistangie on July 21, 2012, 06:47:03 PM
thanks for participating!
Title: Re: all this talk of blood work has me wondering
Post by: sass on July 21, 2012, 08:28:54 PM
Post by: sass on July 21, 2012, 08:28:54 PM
nice study!
Title: Re: all this talk of blood work has me wondering
Post by: gold55 on July 21, 2012, 11:39:08 PM
Post by: gold55 on July 21, 2012, 11:39:08 PM
Artist, I did "other" because I do have positive bloodwork but I don't clinically present with all the symptoms of SJS so......they aren't committing to anything except "arthralgias".
Title: Re: all this talk of blood work has me wondering
Post by: artistangie on July 22, 2012, 07:14:52 AM
Post by: artistangie on July 22, 2012, 07:14:52 AM
Another word for me to google... :)
ok I googled and i see its really more of the same, different word, sigh, how many words do you think they can come up with for us?
ok I googled and i see its really more of the same, different word, sigh, how many words do you think they can come up with for us?
Title: Re: all this talk of blood work has me wondering
Post by: artistangie on July 22, 2012, 06:44:53 PM
Post by: artistangie on July 22, 2012, 06:44:53 PM
bump
Title: Re: all this talk of blood work has me wondering
Post by: iraisin on July 22, 2012, 06:53:34 PM
Post by: iraisin on July 22, 2012, 06:53:34 PM
crispy bump
Title: Re: all this talk of blood work has me wondering
Post by: artistangie on July 24, 2012, 03:57:06 AM
Post by: artistangie on July 24, 2012, 03:57:06 AM
one last bump to see if anyone eles wants to vote... the results thus far are interesting to me and pretty much what i expected
Title: Re: all this talk of blood work has me wondering
Post by: matildamillicent on July 24, 2012, 04:15:27 AM
Post by: matildamillicent on July 24, 2012, 04:15:27 AM
This is really interesting. Thanks for postings.
It's a relief to see I'm not alone in the "negative blood work and doc says no Sjogrens DX but gives you meds for Sjogrens" group!
It's a relief to see I'm not alone in the "negative blood work and doc says no Sjogrens DX but gives you meds for Sjogrens" group!
Title: Re: all this talk of blood work has me wondering
Post by: artistangie on July 24, 2012, 04:17:44 AM
Post by: artistangie on July 24, 2012, 04:17:44 AM
thats my group M and why I did this, i just knew i wasnt the only one and had to see!
And my doc said to me that he know it's sjogrens !
And my doc said to me that he know it's sjogrens !
Title: Re: all this talk of blood work has me wondering
Post by: seren on July 24, 2012, 01:18:05 PM
Post by: seren on July 24, 2012, 01:18:05 PM
I had a positive ANA 1:160 speckled pattern and a positive lip biopsy with mild-moderate infiltration of the salivary glands. My SSA/SSB were negative as were all other markers/bloods.
Thanks God for the pos. lip biospy as I would never have gotten the dx altho I had all the symptoms. Here in the UK at least where I live (Wales) I find the GP's and Consultants (altho have not seen a Rheumatologist in 2 yrs) quite dismissive and lacking in knowledge...not impressed one bit by the NHS!!!
>:(
Title: Re: all this talk of blood work has me wondering
Post by: artistangie on July 24, 2012, 04:11:59 PM
Post by: artistangie on July 24, 2012, 04:11:59 PM
seren hugs!
Title: Re: all this talk of blood work has me wondering
Post by: jazzlover on July 24, 2012, 06:15:58 PM
Post by: jazzlover on July 24, 2012, 06:15:58 PM
How do I "view results"?? I clicked on it and nothing happened.
Title: Re: all this talk of blood work has me wondering
Post by: artistangie on July 25, 2012, 05:58:22 PM
Post by: artistangie on July 25, 2012, 05:58:22 PM
If you vote you should see the results... Idk other than that :(
Title: Re: all this talk of blood work has me wondering
Post by: Reanne on July 25, 2012, 07:27:14 PM
Post by: Reanne on July 25, 2012, 07:27:14 PM
As far as I know my only positive blood work is the ANA. I will ask for a copy next time I see the rheumy. She remarked on how dry my mouth and eyes were the very first time she saw me. It was "normal" for me. My skin is dry and I have joint/muscle pain most of the time.
Title: Re: all this talk of blood work has me wondering
Post by: malew/sjogrens on July 25, 2012, 11:06:57 PM
Post by: malew/sjogrens on July 25, 2012, 11:06:57 PM
Other: Positive ANA and SSA ro and positive lip biopsy.