I'm wondering if anyone else notices a pattern of their hair falling out during flares? Before I got my symptoms under control I lost a ton of hair every day. Started plaquenil and the same week I started feeling more energy I noticed I also stopped losing my hair. Now that I am flaring, I noticed it's falling out in handfuls again. I wonder if they are just coincidental or connected.
Anyone else notice this?
I've lost so much hair. It's just constant. It has gone through a few periods of less fall out, but has never completely stopped. It definitely gets worse with a flare. I sure wish I could stop it!
I just posted elsewhere about this. My hair is thinning bad. My family tells me ',"Only you notice it..."...Trying to to be nice, I am sure ...lol...EVERYTIME I talk to someone they are looking at the top of my head. :'(
I am in theprocess of getting a new Rheumy...mine shrugged and said, " No. Your thinning is from heredity....SS doesn't 't do that."...HELLO!!?? Yes it does.