I have written the following poem in an effort to explain this syndrome. You have my permission to copy and share it (for personal use only.)
Cheryl
Please Understand About Sjogren's Syndrome
My knuckles are bumpy
Aches make me grumpy
I'd love to feel 20 again
I hide from the sun
And most outdoor fun
Like a hermit since Sjogren's began
Bright lights make me hurt
Eyes feel full of dirt
Drops are my very best friend
The pill box is bursting
(even one for thirsting!)
But symptoms appear without end
Muscles are tight
Digestion's not right
My skin is all spotted and dark
Thyroid's gone whacky
Memory's lacking
(I can't even find where I park.)
So be patient with me
When I act differently
I'm not intentionally feeling this way
Symptoms may worsen
But I'm still the same person
And tomorrow I'll have a good day!
Good job, Cheryl!! ;D Well put! Thanks for sharing with us.
Bucky
ooooh! very nice!
I wonder if you are planning on contributing this to the Sjogren's Art League I am trying to set up for Sjogren's awareness?
Iraisin,
This has been on the burner for awhile, so I can't say that I wrote it specificly for that project :). Will it be a non-profit publication intended to educate others? You can pm me about it!
Cheryl
You hit the nail on the head! Thanks for sharing this with us Cheryl...very nice! :D
BRAVO! well done!
Thanks, y'all!
This is great! Good job!!!! I will be sharing!
That was great!
What a poetic talent you have. I think you must know my symptoms like the back of your hand because I couldn't have described them better!
Cdbhappy
Cdbhappy,
Yes, I know them well :). (Thank you!)
Cheryl
I LOVE IT!!!! you are very talented indeed! ~sass~