I havent been around for a while. I have been having the same old same old health issues. If anyone remembers me, I have TTP, which is a rare blood disease that is fueled by Sojgerns and my other autoimmune issues. I have had blood transfusions, Rounds and rounds of IVIG, 5 rounds of Chemo, 67 days straight of Plasma exchanges. ( one time) and too many drugs to list.
So, a group of my girlfriends all go out to dinner and they have an intervention with me and want me to follow the diet that the tennis player, Williams is on since she is now cured and back playing tennis. "If she can do it, you can do it"
Are you fricken kidding me..??
While I understand that they are looking to help you, They are kidding themselves if thay think that is the solution.
Amazing... guess it is nice they care... tell them next time ya'll go out it is strictly for the party!
Hope you feel better!!
Gayle
Yeah, if the patient doesn't get well, blame the patient.
She's not cured. She had to bail out of her last match due to fatigue. Go look for my post from a couple of days ago titled, "Good info for newbies and old timers". There's a link in there that you can send your friends - it explains sjogren's pretty well.
I'm on the vegan diet, it has helped, but there's no magic bullet for this disease. I was down most of the week last week and am still hurting and whiney.
Good luck to you with this stuff. I find situations like the one you described very demeaning. They belittle what you are going through as if you are wanting to go through it. Give me a break. I'd much rather be spending my medicine money and doctor visit money on new clothes and new shoes and a vacation in the bahamas...on a jet ski.
I'm so sorry. Unfortunately, with chronic illness you find out who your friends are and are not. I see others say that they are "caring," but what I hear is "deaf." They don't understand, and they don't want to. They want you to accommodate them, not the other way around. It just doesn't work that way.
I hope you can find some new friends who truly care and try to help you, not bully you.
Hugs, Sharon
Quote from: iraisin on July 16, 2012, 11:48:23 AM
Give me a break. I'd much rather be spending my medicine money and doctor visit money on new clothes and new shoes and a vacation in the bahamas...on a jet ski.
-Amen to that!
Unbelievable! All I can think of as a response to this "solution".
"If ignorance is bliss"...your dinner table was filled with some extremely happy campers! ::)"
However I prefer to use this adage a little differently.
I try not to take ignorant comments personally and my bliss is unharmed but not unaware.
Wow...I don't think I would even want to be a fly on the wall during the planning sessions...geesh!
I would have handed them the tab for my dinner ;)
I think it's great that people care enough to do research, and want to help enough that they are willing to alienate you with an "intervention" to do it.
If they love you that much, they should also love you enough to do some MORE research and realize that they can help you more by offering to help with things like running errands, bringing over food, rent a movie and come keep you company while you rest, etc....
As far as using the life example of a single person because they're a celebrity, if we all did that the world would fall apart. Celebrities are a bunch of whackos!!!!! ::)
Sleepy .. you are right!!
Nancy... what did you tell them???
Yeah.....they are freakin' kidding you!
eye2dry
I'm sorry you found yourself in such an awkward position nancylee, and in the middle of a restaurant, no less. ???
That was stupid. Sorry you had to deal with that.
Luna
Wow! With friends like these, ...
And on that note, I need to get ready for yet another doctor's appointment for yet another potential lung infection thanks to this lovely disease that Venus' superamazingallhealingdiet will supposedly "cure."
Well, for ever and ever people have hoped that diet would cure just about any and everything.
Assuming that you live in a society with enough resources and money to BUY different foods, it's always worth a try I guess.
But I think the food thing is far overrated. For several reasons.
1) You CAN control food, so it is wonderful to think that by controlling food you will improve your health.
2) There is always a new theory, plan, supplement, whatever that gets a lot of publicity.
3) There ARE genuine food allergies, and illnesses that are triggered by specific substances in foods, so it seems possible that changing YOUR food will help you.
4) In the past 50 years, our diet has changed dramatically, as we've moved away from farms, foods from all over the world are available year round, food in the USA is cheap compared to any other country in the world due to heavily subsidized farm products, and there are so many processed foods that we can and do eat.
5. Diet restrictions, prescriptions and proscriptions have been and are part of many many religions.
6. We all CARE A LOT about food!
However, most of us are not allergic to, sensitive to, or otherwise made ill by WHAT we eat. Most people eat too much, and many processed foods are 'designed' to make you keep eating. I find that Crystal Lite for example, actually makes me feel thirsty!
Food designers are instructed to make a product that doesn't satisfy you until you've eaten quite a few of whatever the product is.
The current fad for low carbs produces quick weight loss because it is HARD on your kidneys and causes you to lose more fluid weight more quickly, which is confused with actual weight loss. In addition, consuming fewer carbs may help some people to eat less, since carbs can be an eating trigger for many people. More emotional and psychological than physical, but you end up eating more!
Here is a link to the article about low carb weight loss:
http://www.nytimes.com/2012/07/10/health/nutrition/q-and-a-are-high-protein-low-carb-diets-effective.html
We are omnivores by nature.
If you think you have an allergy and sensitivity, have a certified allergist immunologist test you.
If you think a specific food plan will help you, ask your doctor to look at it first.
Most of us can't eat too crazily for too long, our bodies won't stand for it.
Keep us all posted on how you're doing.
I've lost 26 pounds in the past 3.5 months, eating three moderate meals a day, and registering what I eat at LoseIt.com which is free and which will help you calculate calories and credit your for exercise done, as well.
Being aware of what I'm eating, making choices, and stopping when I've reached my calorie maximum for the day is helping me.
Hugs
Elaine
Elaine said,
In the past 50 years, our diet has changed dramatically, as we've moved away from farms, foods from all over the world are available year round, ............and there are so many processed foods that we can and do eat.
========
That's 90% of the problem with obesity in this country. Processed foods. Food additives are killing us.
So....a couple of questions here...what did they eat for eat for dinner?
Did they offer to join you in this diet for support? Even one of them??
What type of restaurant did they take you to for this intervention??
food...such a sticky subject....too much for me tonight..But I do know friends!
Yours may have thought they could or would help you, but it also sounds like they miss the old you and just want you to get over the problem and get rid of this silly old cold/flu/whatever....
They should care enough to look into what you have.. I bet they did no research on it or of if it is working for her...they just read the word Sjogrens...diet...and what a brilliant idea , now you just do it and get on, so we can all go back to what it used to be like...
she lost today also...But I have Sjogrens too and I would have lost.. All Atheletes loose and win...so if she is off her game, it could be just that or it could be her diet isn't working for her. It could be an excuse or a legitimate reason..
regardless........ you were disrespected and that should not have happened..not the sharpest tools in the rack are they?
Has anyone of them tried to get back in touch with you.....Unbelievable! ~sass~