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Sjogrens Topics => Living With Sjogren's => Topic started by: iraisin on July 12, 2012, 06:09:53 PM

Title: good info for newbies and old timers
Post by: iraisin on July 12, 2012, 06:09:53 PM
I was looking into what gastroparesis is and stumbled upon this site. Evidently it is instruction for pharmacists on what sjogren's is and what over the counter and meds help us. Along with stats on some of them.

http://www.uspharmacist.com/content/c/10376/?t=mental_health,women's_health
Title: Re: good info for newbies and old timers
Post by: gold55 on July 12, 2012, 06:27:41 PM
great article iraisin...I'm saving that one.  Thanks for posting!
Title: Re: good info for newbies and old timers
Post by: Joe S. on July 12, 2012, 06:30:07 PM
ditto
Title: Re: good info for newbies and old timers
Post by: Cindy on July 12, 2012, 08:51:38 PM
Thank you for posting this link. Is a great article. One of the things that I will do is have my husband and twin sister read it. Hope they can understand a little bit more. I do wish there was an OTC for fatigue and brain frog. That would be awesome
Title: Re: good info for newbies and old timers
Post by: Belsey1 on July 12, 2012, 09:57:31 PM
Iraisin,  thanks so much for this link.  It is one of the best I have seen.
Title: Re: good info for newbies and old timers
Post by: eyeamdry on July 12, 2012, 10:18:02 PM
Thanks for posting this.  This article puts things in one place @things to know about Sjogrens.  I see this was printed in 2007 and I'll bet many pharmacists (as well as other medicals) know little or nothing.  Little advances do help and this article is great.

Lucy
Title: Re: good info for newbies and old timers
Post by: cargillwitch on July 13, 2012, 04:49:10 AM
that is a great all encompassing article! great find.


I am going to make copies to hand out to co-workers who have been asking about the illness.

Thanks for sharing it!
Title: Re: good info for newbies and old timers
Post by: mshistory on July 13, 2012, 05:52:00 AM
Thank you!! Isn't it strange that the pharmacy article is more thorough and accurate than the one put out by the Sjogren's Syndrome Foundation for their awareness day thing!? Ha! I am also saving this one!

I thought it was a great article, but I disagree with one part - the tip about managing dry skin and bathing infrequently. I learned this from having two children with eczema. Frequent bathing in warm water (NOT hot) is actually very beneficial for dry skin conditions - the key is to keep the water warm and not hot, and to apply a good moisturizer like CeraVe cream or Vanicream while the skin is still damp - within 3 minutes of leaving the bath. Moisturize at least twice daily with a hypoallergenic cream, preferably one with ceramides as ceramides help the skin retain moisture.  Vaseline is not a moisturizer but when applied to wet skin, it can be used to trap water to the surface of the skin, so when applied in the bath after having soaked for five minutes, it can be effective at combatting dry skin (but this does get messy) :)
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