I have bee reviewing a number of article on Bio-identical Hormone Replacement Therapy. This is not like the tradition Synthetic Hormone Replacement Therapy which doctor promote but I am against for a number of reasons.
Any way has anyone tried the Bio-identical Hormone Replacement Therapy?
I am also concerned about possible cost.
Here is some more info.
Please search: health.harvard.edu/newsweek/What-are-bioidentical-hormones.htm
Joe, I switched from traditional HRT to biodentical HRT after about 20 years on the former. I was on bioidentical HRT and shortly after my SJS diagnosis (six months later) I was found to have breast cancer. Obviously couldn't have been the bioidentical stuff as I was only on it a short time. My surgeon stopped me cold turkey on bioidentical ---saying "as far as she was concerned, it was no different than the regular stuff." My GP didn't have any problem trying me on bio when I asked him to. I believe all thes
drs have their own private views on this stuff. I do think my long term use of the HRT 20+ years likely had some cause of my breast cancer. I had a seasoned gyne tell me that it did not cause any cancer and it might have even kept the cancer from getting bigger all this time. This posting goes without any advice any way about either HRT and we are all free to do what we choose. 8) Lucy
Ive been on them for the last 5-6 years, and Im not even sure they are helping or hurting me at this point. Ive tried to tolerate any form of estrogen, even synthetic, and I get super ill..not sure if the autoimmune thing is just getting aggravated by the hormones, or lack of hormones?
All my docs are telling me I need some estrogen bad. I still use my bio-estrogen cream daily, but very small amount. I have my levels checked as well, and they are almost non-existent. I know some women have extremely high levels at 300-400, which to me, is very scary. I would say possibly a greater chance for cancers, etc.
There are so many kinds of bio-identicals as well. Some the pharmacy can compound into creams, pills, gels, etc, while others
like the patches are manufactured. The compounds made we have no idea what is going into them. Ive had multiple times where I think
they changed something and it didnt feel like it was working anymore, etc, so Im leary of this stuff. But, I would say estrogen is estrogen..no matter what form..bio-or synthetic. Just would recommend to start with the lowest doses possible and see how you do.
They can be expensive. I know a months worth of cream is about $40.00-50.00 a month, but if I could find something that really helped me feel better, I would pay $1000 (ha ha)
gursie
Joe,
I don't know if you are interested for yourself ie; testosterone or possible estrogen for your wife. I have been on bio-identical hormones for 21 years after having a hysterectomy at a young age. I need them to have any quality of life. I have recently tried to lower my dose and this resulted in headaches, joint pain, lack of sleep, anxiety and lower energy. I will continue to try to lower my dose at a very slow rate.
Dr. Oz just said yesterday, the WHI study completed in 2002 was flawed and physicians over-reacted. They actually gave estrogen to women as old as 80 y/o, who had been off for years and this did show some negative effect. But he gives bio-identical to women between ages 40-60 to help with symptoms. Yes, he did emphasize bio-identical. He uses patches, creams gels ect. This allows the hormone to bypass the liver and results in fewer side effects.
Anna
With my recent broken femur I am looking into other supplements and Bio-identical hormones. My testosterone levels are near zero. I tried Androgel to the point I was bathing in it and I had no change in my levels. Later I found out it works for about 1% of men. To me it was a very useless expense.
Vitamin K2 is supposed to remove calcium deposits from your blood vessels and return to your bones. The articles that I was reading mentioned hormone replacement of testosterone and HGH to help reverse osteoporosis.
Next I have to find a doctor who has some experience with this to talk to. I have not had much luck with doctors so it may be a long search.
Joe on another forum I came across posts regarding success with Forteo/Osteoporosis
Johns Hopkins Medicine
Osteoporosis Special Report
Treating Osteoporosis with Forteo
How Does Forteo Work?
Forteo contains the active portion of parathyroid hormone, a substance naturally produced by the body and involved in the maintenance of calcium and phosphorus levels. When given once a day, Forteo stimulates the growth of new bone by increasing the number and activity of bone-forming cells called osteoblasts. As a result, bone mass and bone strength increase.
the site has a bookstore so I can't post the link / just copy and past the below into search...hope this helps
search for johnshopkinshealthalerts.com/reports/osteoporosis/JohnsHopkinsHealthAlertsBackPainOsteoporosis_225-1.html
Interesting article. I do not like the side effects. It makes sense since we have gland issues.
I would weigh the side effects Vs. the severity of a bone/ hip fracture and all that would entail.
I know you want to do things naturally, and of course I/we do not know the severity of your bone lose. Is it progressing; at what rate?
How are you mending? So is it more prudent to try something proven vs. "supposed to" help.
But, in looking at the Bio-identical information there is no information on the type of animal, plants that are used to cultivate these chemicals...ie are they "organic". In my mind organic plants, free range, anti-biotic/drug free animals = natural, and I don't see any mention of that. So I think you are paying for the words/ concept.
So how are you mending and enjoying that AC???
http://en.wikipedia.org/wiki/Bioidentical_hormone_replacement_therapy
I usually find the citations interesting
I am walking with a crutch or cane. There are still three place where my muscles like to splint. They are responding better to movement and I am getting stronger.
The bone loss was severe when I looked at the Xrays. There were many areas of faded bone and areas of floating bone. I was told that it may be a year yet before I can walk without help. I am trying to shorten that estimate. The therapists hear my knee and hip pop and get very concerned looks on their faces. I tell them it is normal.
What are the Drs. suggesting for the bone loss? Did they do a density test? ...will resistance exercise for your arms help with those bones?
I have to start my drive; Mom has a brain MRI @8am and other tests ...hope you stay cool and learn some "bon-e"fied information...sorry a bit corny..couldn't resist.
No suggestions, no tests, no exercises. I have done isometrics for years though and I often pace the length of the house for long periods of time.
Has anyone tried to get estrogen by eating soybeans??? This has been advised to people some years ago. Seems like it would be safer than any drugs. I would think that blood tests would still be needed to make sure the estrogen levels weren't geting too high.
Joe, are you on the vitamin D and calcium regime??? THat is also the latest thing. I am also wondering if any of the testing done on diets have shown positive effects on osteoporosis. Wondering if Mediterranean diet would have foods/oils that increase the calcium absortion and uptake by the bones. Good luck on the walking. You can do it. The hot weather sure isn't great for geting outside though, is it. Irish
I am taking D3 and a magnesium-calcium supplement. I have read that I should also be taking K2 to promote calcium going to bone and not to arteries. I was looking at bio-identical hormone replacement as that was also suggested in my readings.
I just had my bone density and was horrified. Now, I have osteo from the lack of estrogen and added long-term steriod use. My rheumy was very insistant that I try some of the osteo drugs, but I said 'No way". First time in 13 years I think she was mad at me. Im looking into other options. My alternative doctor did a bone density accuDEXA test right after that and it showed I was just fine? bones good?confusing?
I was reading about natural supplements that had great user reviews, Like one called "Bone UP" by Jarrow...Im going to try that.
What about DHEA? I know that raises testosterone and even estrogen levels. I used the Pure encapsulations brand and only took 10mg a day, but my rheumy said you can take up to 200mg...should help with the autoimmune things too?
Im using my bio-testosterone cream and I cant get my levels up either. Maybe those of us with autoimmune have issues with this? I have a friend just like me and she has the same problem..cant get the hormone levels up? strange?
Soy Protein I think will raise the estrogen level. I was eating mcdonalds all last year and felt better and my estrogen was a bit higher, then, I stopped eating it and my levels dropped to almost nothing now. I do have some soy allergies so Im kinda stuck right now.
Good luck
Gursie
Did you ever get a bone density test? That is the best way to truly determine the amount of bone loss. Then treatment should be tailored based upon the findings.
If you are a fan of Dr. Weil, his question of the day addresses bone building drugs. drweil.com
I've been on bioidentical hormones (triestrogen and progesterone) for about 15 years. My menopause symptoms were pretty severe. It was mostly flashing and insomnia. The latter so bad, I was desperate for some help. I tried Premarin at first and it was horrible. My innards felt like they were twisting around.
When I tried the bioidentical hormones and got the dose right, it was like blissful nothing. I just felt good again, so side effects, just no flashing, and sleep. I was very happy on them.
I've stayed on them because whenever I tried to quit, the symptoms would come back. I got tired of the cost ($55/mo) when I started taking Sjs drugs so I ramped the concentrations down over several years. I'm finally off them this week.
There is apparently a 5 year study of their safety which still has another year or so to go. I wouldn't assume they have the same risk as Premarin, etc., especially with the experiences I had. But their risk hasn't been quantified yet.
I also started taking DHEA but at a very low dose - 5 mg/day. It's made a huge difference (that and the ALA (200mg) and ALC (200 mg) that you recommended - thank you). Before DHEA, my muscles were getting weaker and weaker. I'd exercise and they'd just feel tired, not stronger. With DHEA, my muscle mass is growing again and I'm getting stronger. When I use the elliptical trainer, my muscles feel good, like they're enjoying the workout. When I mowed the lawn yesterday, I could push it rather than have to leverage it with my body like I usually do. My rheumy said that sometimes DHEA can increase cholesterol levels, especially in women, so I'm watching that.
Weight-bearing and resistance exercise are the best for rebuilding bone. Parathyroid hormone and calcitonin are also involved, but I don't know if dietary intake of them has any effect.
I hope your bones knit together well and quickly, Joe, and get really strong. It sounds like you're doing a monumental job of rehab.
I don not remember why I stopped taking DHEA, HGH has also been recommended in the literature to reduce the other hormones. It is supposed to modulate there effectiveness as I remember. I will try to pick some up this weekend.
I really think you should request (demand if necessary) to get a bone density test. You used to (a ways back) encourage others on this forum to pursue things like this...not guess. You have no idea what your bone density is. Did a doctor confirm "your" findings on the xrays?
Please follow up on this. Then continue with your plan...which I think sounds good. After some time has passed you should retest (bone density) to actually see if you've made progress...it's the ONLY way to tell for sure whether you've improved density.
You need to know your baseline, so you can gauge improvement or continued loss.
The doctor was the one that told me about the Xrays. I see him again on the 24th of the month. At this point I am trying to heal. I have a lot of fatigue from trying to push my limits. Tonight is the second night that I went for a short drive. We have a long drive tomorrow and Sunday. I know that I will not be sleeping well for two more nights. I went shopping today and walked the whole time.
I have been checking the hospital system that we are locked to for a new doctor that will talk with me..