hello All.
I have a rheumy appt next thursday, if he cannot reassure me the Methootrexate is not responsible for my hemorrhagic cystits...I beleive I will discontinue with it.
i have not had a UTI in 15 years. I started with MTX one year ago, and have had 2 terrible bouts of cystitis requiring antibiotics, and have resulted in low WBC which made me have to give up MTX awhile to recover my WBC. Last night was AWFUL, bloody urine with clots and PAIN. Urgent Care run was made.
My rheumy took me off MTX today d/t my Amoxicillin I have to take for 10 days now.
I read an article on the internet and in my Nursing Drug handbook that methotrexate could cause cystitis.
I will be brave...and stand up to him if I must.
eye2dry
There must be other treatment options for those who can't take methotrexate. Perhaps those are the newer ones though that cost a fortune, which is why doctors still rely so much on MTX? I just know I'm scared to have to be put on MTX at some point... I've already asked my rheumatologist about other options if we have to go that route! It seems silly, but I just always seem to be in that 1% of people with weird side effects, and given that SjS has already caused asthma, I don't want to risk lung problems from the MTX (or worsening hair loss... I've got enough of that as it is).
Good luck and keep us posted!
never feel you have to " stand up to him"!!
We really need to stop feeling pressured into any treatment, test or drug that we aren't comfortable with.
Your body, your call. Always
Do what you feel is best. You know your body alot better than your physician does....
Eye2dry, I sure hope you can go off it. My friend just went off it due to some hair loss and she had to go right back on it due to pain from her RA! I know my Mom has been on it for a few years.....she doesn't have a choice as her body feels on fire when she is off it! It's so hard to weigh the goods and bads of these drugs until something awful happens!! urggggghhhh!! I wish you better health off of MTX!
You might ask your rheumy about cellcept as a substitute for MTX. It's been wonderful for me, with no side effects (everyone's different). He wanted me to try lowering the dose after I had stabilized. I got down to one pill a day just fine. But when I just tried eliminating it last week, my dryness skyrocketed and my joints are starting to inflame again. I'm pretty happy with cellcept.
My sister had liver problems with MTX.
Yeah, I had read that MTX can cause increased UTI's, which I'm nervous about because a few years ago I got a few very painful ones, and haven't had any in awhile. I'm hoping they don't flare up again on the MTX.
Could you maybe run it by a pharmacist that you trust? I find often they know things that doctors don't, and maybe a pharmacist could tell you one way or another.
Well everyone..after I see my rheumy on thursday I will post what he says after I tell him I suspect MTX caused my UTI's. He'll probably "bellow" so loud you'll hear him yourself. tee-hee.
I just cannot endure another painful bloody UTI, 2 of them in 8 months time, when I hadn't has any in 15 years. Too much coincidence.
eye2dry
Quote from: cargillwitch on April 13, 2012, 12:43:37 PM
never feel you have to " stand up to him"!!
We really need to stop feeling pressured into any treatment, test or drug that we aren't comfortable with.
Your body, your call. Always
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AMEN!!! .. I sure hope you feel better SOON!! Oh, the pain!!