hello SJS folks.
Last night I got up to pee and it burned, afterwards it was uncomfortable enough I couldn't go back to sleep. Got up and worked all day today, every time i peed it burned and urine was getting orange. By the end of the day I had low back pain and bladder/urethral spasms.
Got home, tried to drink alot of water to help.. next time I peed...bright red blood, no visible urine and clots.
Husband took me to Urgent care. First time ever...was seen by a PA, loved her! Of course I knew i had a UTI (had one last year too). She told me i had "hemmorhagic cystitis". Was given Amoxicillin for 10 days.
Interesting thing is..she asked me about my meds and my diagnosis, etc...I told her I had sjogrens, RA and low thyroid..possibly hashimoto. She went on to tell me she has MS and her mother has sjogrens, lupus and Hashimotos.
We had a good time discussing AI problems. So, I had an interesting and informative evening at Urgent care tonight even though I hurt and felt lousy.
eye2dry
Always good to meet someone who "gets it". Glad you got our immediate problems dealt with, and met someone who has a clue.
I'm glad you had a sympathetic PA and are getting your UTI treated. I mentioned my diagnosis to my daughters' pediatrician and she told me her mother and aunt had Lupus - she lost her aunt, but her mother's is better controlled. I just thought it was surprising because we tend to think of these AI diseases as so rare (at least until we ourselves are diagnosed) but when we talk to others about it, it often seems they have family members with one (or more) or they themselves are affected!
Thanks for sharing that story, I am so sorry what you ad to go through, but it is nice, like everyone has said, to meet someone who " gets it".
I had a long conversation with my new pharmacist about chloroquine vs plaquenil my new rheumy wants me to take. My pharmacist has RA and sjogrens and is now on methotrexate injections and she totally gets it. She told me stick with the plaquenil for sure. I loved her advice and aporeciated and respected her opinion.
I hope you are feeling better
Funny how you had such a terrible day only to end up meeting someone who "gets it." I wonder where this friendship will lead?!?!? :D
It is interesting how people come into our lives, isn't it?! ;) I'm so glad you were able to connect with the PA in such a good manner, and hope that you're beginning to feel better.
Take care of yourself. ;)
Melinda
So sorry that you are dealing with this nasty UTI, but so glad that you got immediate treatment from someone who truly understands. That must a nice feeling and give you an immediate sense of trust.
Hope the meds help and that you are feeling better soon!
ouch, I hate UTI's - hope your meds have kicked in so you're back to being comfortable.
But what an amazing luck you had to find a PA who has and understands AI.
Im so glad you had someone who understands and was kind to you and helpful. I hope you are doing better now.
Luna
Like Skylar said, "ouch!". I think I may have interstitial cystitis and have bad bladder cramps, so I understand how painful they are. I'm glad you had a good PA that you liked. That makes all the difference.
I've never had blood in the urine or blood instead of the urine, but that would have really scared me!
Eye2dry, I think you should think about following up with a urologist too . . .