Hi Everyone
Just recently I read somewhere and I can't remember where I read it,that everyone with sjogrens should be taking 5000u of Vitamin d daily.
I am just wondering how much vitamin d is too much, can large amounts like this be harmful, and do you take Vitamin D, if so what doseage are you taking?
Cheryl
Hi Cheryl--I had been taking 1000u a day,as advised by my doctor.Began feeling worse,so I stopped it til i see him this week.I read that different people tolerate different doses.
Good luck
Lesley
Cheryl,
my doc recommended 4000 units a day! I have been doing it now for 2 weeks, I am not sure if I feel better or not, the jury is still out. but I will let you know when I figure it out. =hooty
I take 2,000 I.U. per day. This is after having a subnormal blood level and taking mega doses to bring my level to normal. I have been on this maintenance dose for about a year and my levels have been normal.
Duchess
On my GPs recommendation I take 1000 IU daily, and go up to 2000 IU when the time falls back in the fall until it goes forward in the spring (the timing is just a reminder, it's seasonally based because of the shorter days and lower refraction of the sun in the winter).
Because I also have Sarcoidosis, which has the potential for increased calcium and Vitamin D levels because of intra granuloma production, I am monitored carefully with both 25-hydroxyvitamin D (to detect deficiency) and 1,25-dihydroxyvitamin D (to detect Vit D metabolism discrepancies)
My levels remain in the high normal range, whether because of the disease process or the supplementation, but as long as they are normal the regimen continues! I don't know if I feel better for it, but I'm unwilling to go without, just in case.
I take 5000 iu of D3 twice per day.
I take 2000 IU daily, per my Family Physician's suggestion. It did help to improve my energy and decrease the pain somewhat, at least initially.
Hi,
I take 5000 D3 daily as per my neuro and it does help with my energy and mood. I tested low.
Thankyou so much for replying your answerers have given me some food for thought!!!!!!!
Cheryl
I just tested low (16.8) so I'm on 50,000 once a week until further notice.
smallfry,
Good question of "how much is too much"? As with everything, it seems best to check with your doctor of choice and get their recommendations.
My doctor has told me to take 1,000 IU of Vit. D daily along with 1,200 IU of Calcium, so I've done just that. Your needs may be different.
Hi smallfry,
No matter what a member takes, I would absolutely go with your doctors advice; they know you best.
I go between 50,000 units once or twice a week (depends on how low the level goes). The rheumy lowered it to 2,000 per day one time and my D level plummeted down again; back up to 50,000 units twice a week. I like the rheumy, but I'm going to have to follow the internist on this one as she's called it right every time (stay at a normal level instead of the yo-yo'ing that the rheumy has me doing).
Patze
I just read this article from a nurse (NOT A DOCTOR) who said that the doses the docs write scripts for are so conservative that they end up LOWERING your D levels :o That they give children with rickets one-time dosages of 600,000 IU's. Also, she couldn't stress enough that there are 2 types of D~ D2 (the prescriptions) and D3 (the OTC stuff). The D3 is supposed to be much better. And we should also be taking it with magnesium because she said we need to have magnesium in our bodies to process the D or there's no point in taking it. I'm not really worried about mag, since my levels were normal, but it's food for thought. Normally I'd take a dr over a nurse any day, but my experience with my rheumy has been one that she must have gotten her license in the bottom of a cereal box >:( So what are your thoughts on this?? (the nurse's findings, not my rheumy, lol!!!)
I'm on 5000 units a day three day a week and the other four days I take 1000 units. I go back in February to see if my levels have come up any.
Vitamin D is actually a hormone, not a vitamin. D3 is better synthesized by the body.
D3 and magnesium work hand in hand. It helps the body to utilize D3 better.
Duchess
That's nice to know about the magnesium. I wonder why more doctors don't prescribe that too when they tell you to take Vitamin D? I do know mine sure didn't. Have to check that out with him next time I see him.
I just got back from the doctor. My Vit D is down to 18 again...... He has me taking 50,000 IU three times a week. I read that low Vit D can cause leg pain. I have been experiencing chronic leg pain. I hope this will improve. I will let you know.
Hi Derry,
I would get terrible leg craps with the mega doses of D so I eat a lot of yogurt and cheese to help cut down on them (don't get many these days thankfully).
Take care of yourself -
Patze