I was wondering if anyone knew of a youtube video or DVD that talks to kids about parents who have Sjogrens. I feel like I'm constantly saying.. don't touch me there, I cant, sorry I'm too tired. I have so much guilt for not being able to do the things I want to do with my kids. I was hoping that there was a good way of explaining that sometimes mommy just can't.
A Spoon Theory demonstration may help. My daughter did not understand it until she got sick with an AI disease. Then her attitude changed.