Hi
I dont know what type of joint pain you all are having and was hoping you could try to describe it for me...
My joints havent been too bad. My large joints in my hands ache alot. I get random sharp pains in all my other joints...sometimes it lasts for a little while sometimes its very short(like maybe a minute). I am wondering if this is from sjs or is it just random pains?
Mine is achy & I have it most of the time but gets worse when I push myself.
Carie
My regular pains seem mostly like tendon pains. There are really sore spots where the tendons attach to the bone (elbow and wrists especially, sometimes knees). They ache when I'm still and actively hurt when I move. (Meds take care of it most of the time).
Lower back pain is on straightening up. When I take pain pills and it doesn't hurt, I do flexibility and movement exercises so it gets moved around.
I have had sticking pains (little pins in the joints) after eating peanuts (I know, weird) but not usually.
I have RA (supposedly?) and my worst joint pain is in my shoulders. Literally feels like somebody took a knife, jabbed it into my joint and continues twisting and twisting. Hmm, now that I think of it, I think that would actually feel better...........
Oh, this is not easy.
Quote from: Autoimmunity on January 16, 2012, 08:38:03 PM
I have RA (supposedly?) and my worst joint pain is in my shoulders. Literally feels like somebody took a knife, jabbed it into my joint and continues twisting and twisting. Hmm, now that I think of it, I think that would actually feel better...........
I recognize that; it's the "voodoo knife pain" identified by someone on this list. I've got nice quiet bad knee pain, that sometimes hurts. My left big toe hurts. Apparently most of my joint pain, in hips and shoulders, is bursitis.
I have back pain (sacroiliac) that, I'm realizing, is made worse by the slackness of my stomach muscles, and the weakness of my thigh/quadriceps muscles. There's a little pain at the end of the day in the back of my neck, probably also made by weak muscles/myopathy.
I am so glad my hands are still going strong. I've had one day in the last year when one knuckle on my left hand felt hot and swollen and painful. Otherwise, they've been usable and okay. Except that they don't seem to obey commands from my brain to "touch type," which is aggravating and slows me down.
I can't figure out how to take all that to a rheumy or other doctor. Usually their eyes glaze over after about two joint pains have been listed.
Sigh,
Soycoffee