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Sjogrens Topics => Living With Sjogren's => Topic started by: Daisy1234 on January 14, 2012, 08:36:26 AM

Title: Restarting Chemo Tomorrow
Post by: Daisy1234 on January 14, 2012, 08:36:26 AM
Hi Everyone:

I'm re-starting my chemo regime tomorrow for the treatment of Non-Hodgkins Lymphoma caused by Sjs.   Hoping that this round goes a bit better than last time as the Oncologist stopped my chemo after the 4th round because she said it was literally killing me.  Also told me that my treatment was more challenging because my Sjs was already pretty severe and I had so many complications.

So happy to report that a number of the more serious side-effects from the last round of chemo have subsided and are not nearly as bad as they were.  It has been confirmed recently that the cancer is still there though and since the beginning of December, all of my "B" symptoms have returned in force, but that was to be expected.

If things go as planned I'm also to be continuing my Rituxan infusions for about 30 months (things do get reassessed after each treatment so its hard to say exactly what will take place).

My spirits are pretty good though and I am blessed to have a wonderful husband who has been helping me so much and has been there for every single infusion.   

Crossing my fingers that I'll be up to this go around and that the cancer will respond appropriately. 

Wishing you all better health too.
Hugs,
Daisy
Title: Re: Restarting Chemo Tomorrow
Post by: Bucky on January 14, 2012, 10:18:10 AM
My dear Daisy - what a coincidence that you posted this morning.  I was sitting here at my computer desk this morning looking at "my daisy" and wondering how you were doing.  You beat me to posting to ask you.

I wish you all the best as you resume your chemo treatments.  I pray that they will do their job and take care of that nasty cancer that you are dealing with.

I wish I could give you a real hug vs. a cyber one - but, this is the best I can do.

BIG HUG to you my friend.   

Bucky

Title: Re: Restarting Chemo Tomorrow
Post by: gold55 on January 14, 2012, 10:25:45 AM
Hi Daisy,
Wishing you only the best in your fight against NHL!  My sister had this in college and went through quite aggressive treatment.  I can report that she is now 32 with child and living a full life. 

My prayers are with you.....I don't know how you stay so positive but this will get you through.  Big hugs for you and your hubby.  I will be thinking of you.  Jill
Title: Re: Restarting Chemo Tomorrow
Post by: Nancy60 on January 14, 2012, 11:07:53 AM
Hi Daisy,

Just wanted to let you know my thoughts and prayers are with you as you go through this treatment.  I think your positive outlook is great and it will help your body respond positively to the chemo treatment you are getting.  I watched my aunt battle Lymphoma in the 1970's (not sure what type, but it was a B-cell Lymphoma, non-hodgkins type).  It was a tough battle but even back then she was able to beat it and lived into her 80's without it recurring.  Just wanted you to know I'll be thinking of you!

Nancy
Title: Re: Restarting Chemo Tomorrow
Post by: lolo1979 on January 14, 2012, 12:16:40 PM
Good luck daisy! I hope your body has recouped enough to handle it better this time. Make sure you are stocked up on good magazines, books on tape, crosswords, or whatever will keep your mind occupied with other things.

Keeping you in my thoughts!
Title: Re: Restarting Chemo Tomorrow
Post by: Joe S. on January 14, 2012, 12:38:04 PM
I am so sorry (((Daisy))) that you have to go through this again.
Title: Re: Restarting Chemo Tomorrow
Post by: Katybarstool on January 14, 2012, 02:26:55 PM
Daisy

Thank you for lettin gus know about your next round of treatment. I will keep you and yours in my prayers.

Kathyx
Title: Re: Restarting Chemo Tomorrow
Post by: mshistory on January 14, 2012, 02:35:05 PM
Wishing you the best and keeping you in my prayers (((HUGS)))
Title: Re: Restarting Chemo Tomorrow
Post by: Cheryl on January 14, 2012, 03:35:32 PM
Daisy,
I hope that the chemo is tolerable this time around.  Stay positive.   You have a whole squad of cheerleaders here in Sjsworld!  Thanks for keeping us posted.
Hugs and prayers,
Cheryl
Title: Re: Restarting Chemo Tomorrow
Post by: lindaneall on January 14, 2012, 03:48:25 PM
Daisy, your positive outlook and courage always amaze me.  I am praying that this round of chemo goes better for you.  I'm sure it must be extremely tough.  Please keep us posted.  I think of you often.

Title: Re: Restarting Chemo Tomorrow
Post by: genko_b on January 14, 2012, 04:08:15 PM
All our loving support to you with this next round of chemo!

Take care,

Genko
Title: Re: Restarting Chemo Tomorrow
Post by: irish on January 14, 2012, 05:03:41 PM
Daisy, My thoughts are with you as you start this chemo again. I will keep you in my prayers. May a miralce keep your body in better shape this time while the medicine kills off the bad cells. Irish ;D
Title: Re: Restarting Chemo Tomorrow
Post by: annabelle on January 14, 2012, 06:11:49 PM
As someone also battling cancer, I know what a roller coaster you are on!  Good luck as you begin your chemo and be sure to take good care of yourself while you are going through this.  I too have a husband who helps me tremendously - in that sense we are very lucky.
Title: Re: Restarting Chemo Tomorrow
Post by: ohiolady on January 14, 2012, 08:35:51 PM
Daisy,

You know I will be rooting for you all the way.  My prayers will be with you as you continue the fight.  When you are able, let us know how you are doing.

Sending a big hug your way.

Anna
Title: Re: Restarting Chemo Tomorrow
Post by: season on January 14, 2012, 08:51:33 PM
May you stay strong in your fight.

I give you a hug.
Title: Re: Restarting Chemo Tomorrow
Post by: Meld256 on January 14, 2012, 11:35:46 PM
Our dear Daisy,  ;)

I, too, was just wondering today how you've been feeling and what your schedule has been.  You are so encouraging to all of us, so kind and helpful.

Please know that we're all cheering you on, sending cyber-hugs, prayers and positive thoughts for some miracles to happen, and that you are able to tolerate this round without all the side effects you had before.

Take care,
Melinda
Title: Re: Restarting Chemo Tomorrow
Post by: 4Kids on January 15, 2012, 06:51:03 AM
Daisy,

I will pray for you and hope this round is gentler on you and that in general it is well tolerated and gets the cancer.

remain strong. You are such an inspiration.
Title: Re: Restarting Chemo Tomorrow
Post by: mom2many on January 15, 2012, 10:47:28 AM
Daisy,
I, too, am undergoing chemo for NHL. I'm not sure the cause. Could be untreated inflammation from my Ankylosing Spondylitis, which I've had for over 30 years.

I hope the treatment is successful for you.  Good Luck.

Title: Re: Restarting Chemo Tomorrow
Post by: Dolly Dimples on January 15, 2012, 11:22:07 AM
   Chin up Daisy,
                 You can do it !! and get through it .
                                    All good wishes, Dolly x
Title: Re: Restarting Chemo Tomorrow
Post by: elliea on January 15, 2012, 04:16:21 PM
Daisy-recently finished my first round of maintenance Rituxan-scans in March.I know how crummy the chemo and side effects are(still dealing with them),but I promise there are good days ahead.I know you can do this!

Sending you hugs and love(buy junkie magazines and candy-it helps get through the infusion)

Lesley  ;)
Title: Re: Restarting Chemo Tomorrow
Post by: Cricket on January 15, 2012, 04:19:04 PM
Good luck tomorrow Daisy!

Will be praying for you!
Title: Re: Restarting Chemo Tomorrow
Post by: soycoffee on January 17, 2012, 12:50:31 AM
Wishing you the best possible course of treatment and outcomes.

Best,
Soycoffee
Title: Re: Restarting Chemo Tomorrow
Post by: Chickpea on January 17, 2012, 04:12:52 AM
Dearest Daisy - you probably won't feel like posting for a while but I do hope you're able to read the loving messages from all your friends here. 

You've been in my thoughts and I hope this round of chemo isn't as hard on you as the last one was.  Two years ago I had one type of chemo stopped  because it was too tough to tolerate. I have a small sense of what you've been enduring.

It's so good to hear that your husband is taking such good care of you.  Sending him hugs too!

Thinking of you - Chickpea