Hi there,
I just thought this was a great PowerPoint. Perhaps to share with our families or friends about our life with Sjogren's.
http://dry.org/DrRobertFoxUtahSSF.pdf
page 43+ mentions the types of systemic treatments...
love that he is promoting patient participation and support with community afterwards.
This may especially good for folks that do not have a diagnosis yet. Or do but would like to review treatment options...
Perhaps they can email, copy to disc or print front back or 2 pages onto each paper page front and back
and send to doctor before their appointment (for review) or when we check-in or even with the Doctor?
I am blessed that I have an efficient Doctor that listens to me - it took awhile but I found her.
Bravo Dr. Fox :)
PS Remember to tell all your Specialists everything you do
to feel better
and what makes you feel worse -
make sure EACH Specialist has the same story and Medication list!!!!!!!!!!!!!!!!!!!
Excellent! Thank you for sharing.
Quote from: olmphoto2 on January 04, 2012, 06:00:14 PM
Excellent! Thank you for sharing.
Thanks Olmphoto :) Hope the visual helps people = such a simple format :)
Thanks for sharing! Though for a split second I was hoping it might be in iambic pentameter or some other type of poetry. Sjogren's poetry probably wouldn't be very entertaining. :(
Quote from: GeorgiaGirl on January 04, 2012, 06:33:02 PM
Thanks for sharing! Though for a split second I was hoping it might be in iambic pentameter or some other type of poetry. Sjogren's poetry probably wouldn't be very entertaining. :(
Hey there is a lady online I saw did poetry. It was beautiful and touching. She was on some forum that has many health challenges - not sure which one though... They were hopeful and sad mixed. If I can find her I will post a link!