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Sjogrens Topics => Living With Sjogren's => Topic started by: AnaGamble on December 03, 2011, 03:03:35 PM

Title: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 03, 2011, 03:03:35 PM
I've completely adopted one of my BF's massive dark blue fleece sweaters with big pockets.
In these pockets I keep my lipbalm, eye drops, nail file, mobile phone, anti acid pills and so on.
So just pondering if I am the only one who's given up trying to track down stuff like that when I need it and instead simply carrying it all around with me in my "pouch".  ;D
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Narablueeyes on December 03, 2011, 03:43:15 PM
<raising hand; waving wildly; imagining myself jumping up and down wildly>. ME!!!!!!!!  ME!!!!!!!!!
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Patze on December 03, 2011, 03:47:02 PM
Hi AnaGamble,

Nah, you're not the only one! ;) :D  I can only speak for myself, but man-o-man, I have a "pouch" similar but a stand alone kind of thing that I take with me all the time (SJS girl never quite knows what she'll need in five minutes or even five seconds later :)).  Yep, the lip balm, the daily meds, a pen & small pad of paper (often forget as soon as I "remember"), hydrating lotion, and a couple of different kinds of eye drops.  Used to always have a mirror in there too, but got tired of seeing how "tired" I really looked every day! ;D

Take care of yourself -

Patze
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: KellyG999 on December 03, 2011, 03:50:07 PM
I actually carry a big "mom purse" that has a big section in the middle with all my meds. Yes. I also have 4 different types of lip balm, itch cream, biotene spray, eye drops, etc.....

My husband makes fun of me. I arrange a bunch of this stuff (and a big glass of water, of course) on my bedside table before I can go to sleep. You should see me when I have to travel for business. My suitcase is huge and people always comment. But I actually travel with a facial steamer for my throat/nose dryness!

KellyG
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 03, 2011, 03:56:19 PM
Quote from: Patze on December 03, 2011, 03:47:02 PM
Nah, you're not the only one! ;) :D  I can only speak for myself, but man-o-man, I have a "pouch" similar but a stand alone kind of thing that I take with me all the time (SJS girl never quite knows what she'll need in five minutes or even five seconds later :)).  Yep, the lip balm, the daily meds, a pen & small pad of paper (often forget as soon as I "remember"), hydrating lotion, and a couple of different kinds of eye drops.  Used to always have a mirror in there too, but got tired of seeing how "tired" I really looked every day! ;D

He he the small pad of paper I forgot about those, I got a different pad of paper and pen jars in every room of the house.
Only place I don't have any is in the bathroom.  ;D
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Patze on December 03, 2011, 03:58:37 PM
Have a large pad of paper and a pen in there as I often do my best "thinkin" in there! ;) :D


Patze
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 03, 2011, 04:02:28 PM
Quote from: KellyG999 on December 03, 2011, 03:50:07 PM
I actually carry a big "mom purse" that has a big section in the middle with all my meds. Yes. I also have 4 different types of lip balm, itch cream, biotene spray, eye drops, etc.....

My husband makes fun of me. I arrange a bunch of this stuff (and a big glass of water, of course) on my bedside table before I can go to sleep. You should see me when I have to travel for business. My suitcase is huge and people always comment. But I actually travel with a facial steamer for my throat/nose dryness!

I've started having a water bottle next to the bed, I am sure I should refresh the water every day but rather use a bottle and only have to remember to refill it every 3 days or so, hurts too much getting back out of bed when I realize I forgot it.  :(
The nose dryness is nasty, got told by the doctor to use some sort of saltwater rinse in mine but not sure if it's doing any good at all.
Went to the pharmacy to ask about what they have for dry noses and the girl behind the counter just stared at me as if I was an alien who just landed.  ???
She then told me I could use vaseline... just as long as I didn't use it every day... great help right? :P (<--sarcastic smiley)
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Narablueeyes on December 03, 2011, 04:03:28 PM
Quote from: Patze on December 03, 2011, 03:58:37 PM
Have a large pad of paper and a pen in there as I often do my best "thinkin" in there! ;) :D


Patze


;D you sound like my hubby!!  LOL!!
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: KellyG999 on December 03, 2011, 04:20:45 PM
Ana - Please don't take the pharmacy clerk's advice. I wouldn't use Vaseline on any part of my body, especially in the nose. Ayr makes a nice water based nasal gel. It's OK but I prefer to lightly steam a few times a day. My ENT turned me on to the facials steamers you buy at Bed, Bath and Beyond that are labeled for "wrinkles." He said it does nothing for wrinkles BUT will help your nose and throat. I have to have it in the cold, super dry winter months especially!
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: susanep on December 03, 2011, 04:21:33 PM
My big purse goes everywhere I do with my lip balm, eye drops, sun glasses, meds for pain, etc. Been doing this for quite a while now.

susanep  8)
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: jmkboyer on December 03, 2011, 05:16:35 PM
LOVE my big hoodie sweatshirts with the pouch!  I also can throw my keys and cell phone in there when I'm out because, with my brain fog, I'm always losing them.

Thanks, KellyG, for the steamer recommendation.  I've been looking for a good one.  The one I got at Walgreens sucks.

MB
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: KellyG999 on December 03, 2011, 05:34:58 PM
MB - just ran and took a peek to be sure: My steamer is a Conair and I love it. As a side note, if you happen to get stuffy like I do, it helps that as well.
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: jmkboyer on December 03, 2011, 05:42:15 PM
Thanks, Kelly--just ordered it on Amazon!  My sinuses get so dry and stuffy even with the humidifier blowing in my face at night.  Can't wait to try it.

MB
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: newhorizons on December 03, 2011, 05:49:33 PM
All you folks that posted seem to be going somewhere.  90% of my time is spent at home and to help 'brain fog', I sew a pocket on each of my knit gowns...btw, that's on the right side of gown! ???

Why, since you mentioned it, guess mine could be described as a pouch as I carry chapstick, drops at all times.

And, often write myself a note and tuck it in there and GUESS what? Find it and 'march' myself and take care of that little issue...

The past few pieces of outerwear I ordered has to have two outside pockets and also two large inside pockets. Any of you into this yet?  Past using anything that hangs on the shoulder or around the waist...even aprons. 

Live in Southeast and it is not bitter cold most of winter so have ordered a couple of vests that have pockets outside with zippers and inside pockets that have velcro.  In fact one, has a place for a cell phone.

Why vests you ask?  No longer can I get one of my arms back far enough to put on coats by myself.

My biggest thing-ie now is counting the times I put a pull-over shirt on backward and deciding if I'm going to turn it around or not...

Don't worry about my gown, as guess what? All it does is turn my pocket around and I have a hip pocket for the day...hehe!!!  :)


 
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: DragonflyC on December 03, 2011, 07:47:35 PM
Of course! Where else would I keep my preservative-free eye drop vials :)
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 03, 2011, 11:55:04 PM
Quote from: KellyG999 on December 03, 2011, 04:20:45 PM
Ana - Please don't take the pharmacy clerk's advice. I wouldn't use Vaseline on any part of my body, especially in the nose. Ayr makes a nice water based nasal gel. It's OK but I prefer to lightly steam a few times a day. My ENT turned me on to the facials steamers you buy at Bed, Bath and Beyond that are labeled for "wrinkles." He said it does nothing for wrinkles BUT will help your nose and throat. I have to have it in the cold, super dry winter months especially!

Hm will look into it, and as you say it's during the winter months when the heating is on that it becomes unbearable.
And no I don't intend on greasing my nose up with vaseline.  :P
Been trying to place jars of water near radiators to try and get more moisture in the air in the bedroom.
Can't afford anything extra atm so it's all about making do with what I got.  :-\
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 04, 2011, 12:09:45 AM
Just realized how much I NEED things to be in the right hand pocket.
Whenever my keys or lipbalm isn't in the right hand pocket I get that cold feeling down my spine; "NOOOO I didn't forget it at home did I!?".
Lost so many things in the house because of all those "good places" where you put things and then never ever find them again.   :P
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Meld256 on December 04, 2011, 01:08:38 AM
Yep, and yep...love the hoodie sweatshirts.  I can have my cell in one pocket and keys/eyedrops in another.  I sewed a purse with extra pockets for all the balms and drops and mouth spray.

I'm home alot, too, so my robe pockets are my kangaroo pouches.   ;) Not that I'm in my robe all the time...ok, many days I am part of the day.  :-[ 

If I can't find something, I've probably put it in my robe pocket.  When the brain fog was worse, I was always finding pills in there!  Then I couldn't remember if they were ones I was supposed to take earlier, later; were they from last night?  Since I didn't remember putting them there in the first place! 

Oh, putting things in a "good place" and forgetting them? Yep.  My husband laughed at me because when I moved things around and organized the closets, I typed little summary charts of what was in there and put it on the inside door.  He said "Going all Martha on us?"  ;)  Nope...just trying to find it later.
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Debbie48 on December 04, 2011, 04:59:59 AM
Quote from: KellyG999 on December 03, 2011, 03:50:07 PM
I actually carry a big "mom purse" that has a big section in the middle with all my meds. Yes. I also have 4 different types of lip balm, itch cream, biotene spray, eye drops, etc.....

My husband makes fun of me. I arrange a bunch of this stuff (and a big glass of water, of course) on my bedside table before I can go to sleep. You should see me when I have to travel for business. My suitcase is huge and people always comment. But I actually travel with a facial steamer for my throat/nose dryness!

KellyG

This sounds exactly like me!  (Except the facial steamer which I intend to look into).  While sleeping, I use a cool mist humidifier pointed directly on me from October through April. I have all my essentials in different stations around the house and work (anywhere I plant my rear for awhile) like by the TV and the computer.  I have the huge Mom purse.  My essentials include, different levels of eye drops/ointments, Blistex complete moisture lip balm, sugar-free Jolly Ranchers, Biotene gum, kleenex, and water.  I do the pouch thing when I walk the dog.     
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Patze on December 04, 2011, 06:42:29 AM
Ahhhhhhhh Narablueeyes, great minds "thinkin" a like! ;) :) :D

And the brain fog, oh my!  I don't bother to take out pills anymore other than to put them into a daily pill container - I often get confused if I don't work it that way (did I take the pill today?  Maybe, maybe not....and when?).

Thanks for the idea of putting extra pouches on my house coat; I wear them suckers out so fast as I usually wind up falling asleep in them (not intentionally that is :P).



Patze
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Sooki on December 04, 2011, 07:44:32 AM
I just hate carrying a purse around with me. It's uncomfortable.  I'm also afraid I'll leave it somewhere with everything important in it.  But now I need to have things with me. 

I've tried several purses, but usually wind up just taking my license and debit card out and stuffing them in my jeans pocket.  Money in a front pocket. I keep looking for the perfect purse.  Lots of pockets, small, but just big enough to carry my iPad when I want to.

I found the perfect one at a craft fair yesterday - for $125.  So now I'm motivated to sew a purse.  The difficult part is planning all the pockets etc. before I sew any of the parts together.  This may be an iterative process. Hopefully not a lifetime quest.
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Sadie963 on December 04, 2011, 09:37:27 AM
I carry a 16 or 20oz bottle of water and a little leather backpack w/me everywhere.

It holds my Genteal eye drops (moderate & moderate to severe) plus I keep a spare bottle of eye drops in my desk at work. Ibuprofen (achy joint pain) & Excedrin (headaches), mobile w/charger, Kindle (for days w/Dr. appts) plus scripts or requests for blood tests if I need to get any that day. Some days I don't think even a vampire could keep up the amt of blood drs. need for testing.

I usually take all my meds in morning except for my 2nd dose of Plaquenil. If I know I will be out around dinner time, then I usu. place it in my pocket for later so I do not forget.

At night, I always have a bottle of water, eye drops, and sugarless candy. I take sips of water or decaf. tea while I read or knit to relax before bed.
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: prunella on December 04, 2011, 10:51:10 AM
OK, when I saw this thread, I thought it referred to belly flab! ROFL

Sooki, there is a brand of bag called Haiku that has styles with many pockets.  I have an older ToGo bag that holds everything I could possibly need, including a water bottle in an outside pocket. They have especially good sales.  haikubags.com

beth
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 04, 2011, 11:19:01 AM
Quote from: Sooki on December 04, 2011, 07:44:32 AMI keep looking for the perfect purse.  Lots of pockets, small, but just big enough to carry my iPad when I want to.

I found the perfect one at a craft fair yesterday - for $125.  So now I'm motivated to sew a purse.  The difficult part is planning all the pockets etc. before I sew any of the parts together.  This may be an iterative process. Hopefully not a lifetime quest.

It always feel like the perfect purse only exists in ones own imagination, guess I should try and make my perfect one too.
No way I am paying those kind of amounts for a bag ever.  :o
Atm using a pretty much square bag with only one pocket inside which of course leaves me digging all over before I find anything.   :P
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Chickpea on December 04, 2011, 11:55:23 AM
This is a great thread!  (Loved Prunella's comment, by the way!)

I suppose I have three sorts of pouches: 

- my big handbag/purse which I load with water bottle, diary, purse, meds, lip balm etc and which I secure with the seat belt of my wheelchair.  It has three main pockets and then a couple of little internal ones - but I still lose stuff.

- the central section of my wheeled walker which holds a water bottle (of course!) plus spare folding walking stick, and whatever I've thrown in there.

- the pocket at the front of my (not sure what to call it) sort of muumuu from the time we lived in Zimbabwe.  I LOVE this garment as it covers all of me and more!

Sooki - can you describe the purse you found at the craft fair?  Like everyone else I'm still searching for the 'perfect' one.

Chickpea
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Carolina on December 04, 2011, 02:18:29 PM
I have everything in my purse:

bottle of water
aspirin
Aleve
Tylenol
Ibuprofen
antihistamine
beano ???
moistened wipes
reading glasses (for my husband)
umbrella
coupons
compass (no sense of direction at ALL)
lip balm
comb
lipstick


Everyone knows to ask me if someone has a headache, or sticky fingers.

This colder weather is drying me out something fierce!  I keep the humidifier running full tilt, and my husband assures me the one on the furnace is running too.

How do people live without a humidifier.  We've always had one, long before my Sicca.

Hugs

Elaine
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: AnaGamble on December 04, 2011, 03:05:37 PM
I love how BF's and husbands don't want to carry a bag and mock us for using ours and then demand we hold something of theirs in our "silly bag".  :P
My BF doesn't like picking up the dog poop when we take the dog for a walk, but I gladly do it just for the chance of seeing my BF's face every time I hand him my bag and say "hold this while I pick up the poop". 8)
Extra funny since it has a big QUEEN logo on it (The band) with big pink letters saying QUEEN across the bottom, so he'll start turning it over to make it look just black while he holds it.
Priceless!  ;D
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Sooki on December 04, 2011, 05:03:38 PM
Prunella - the Haiku ToGo bag looks great. I'll bookmark the site and look for sales.  That could be the answer.

I may also to redesign my pattern to include those features, like a water bottle pocket.  My pattern will have shallow upright pockets for eyedrop vials and lip balm, medium depth pockets for my phone, and deep pen slots and eyeglass pocket.  An large outside pocket for ferry schedule, programs, map, etc..  Pocket for car keys.  Zippered pocket for license and cards.  Money probably in separate zippered coin purse.  Iterative project for sure!

The craft fair one was beautifully pieced fabrics in bright colors.  The shoulder strap was attached to the left front and right back top edges.  The strap then slid through metal loops on each opposite edge, so you could rummage around in while still on your shoulder, but it would close by gravity when you were done. (sorry - hard to describe in words)  It also had a magnetic snap to hold the edges together.  Then pockets inside and out.
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: Doxie on December 04, 2011, 05:23:10 PM
I put all of my paraphernalia in a makeup bag, which I keep in my purse. Since I work, I have to have it portable. I leave it in my purse, cuz I'd just die not to have it at work.  I also keep most of the same things by my bed, and yet some more I keep with me in the front room.

Prunella,  I'll definitely check out the Haiku purses.

I thing I'll look at the steamer. I have a humidifier in my cpap, but right now I wish I had a little steamer to steam my face. 

y'all sound like you take care of yourselves very well.  Me, I need to start taking better care of all my Sjs issues. Dry everything can be such a pain!
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: prunella on December 04, 2011, 05:26:40 PM
Another bag strategy that I use when I am using a bag without enough pockets, is to organize stuff into small zippered pouches.  Pouches aren't as easy to get into a attached pockets, but they beat the big cavern when I dump it all into one compartment.

My haiku ToGo bag is a muted green color, a suede sort of man made material. Fine for most occasions, but I didn't pay attention to the strap color when I bought it on line. Lime green! I usually wear it as a cross body bag.  The color may protect me if I wander into traffic. ;D

Healthy Back bags are also pretty good for organizing.

beth
Title: Re: Anyone else doing the kangaroo pouch thing
Post by: newhorizons on December 04, 2011, 08:16:43 PM
Well, thought my day was done but having been one of first to post find so many ideas about pouch/bag/purse/

And, if need more organized space when I get to venture out, I use the small snack plastic bags that the grandkids take their snacks to school in.  They are half the size of the sandwich bag which most of us are familiar with for food.  BUT, with the snack size being clear, in my for what's its worth opinion, one could see an item/s in your pouch/bag/purse or even briefcase.

Mentioned in my previous post that I wore gowns lots of days. With this recent diagnosis of peripheral neuropathy, the supima cotton knit is what I wear close to my skin.

Tip:For this winter I have ordered in early fall 4 long sleeve gowns that have a design on them. Find that when you sew a colorful pocket on one, it takes on the look of a shift dress.

And, the design helps hide all the 'food' or 'drink' that misses one's mouth and ends up on front of apparel you are wearing. And, MOST of all they are all supima cotton and are as soft as a baby's bottom! :o

Just thinking, if you wanted to use the extra fabric and do your personal design on a purse/bag/whatever, you could grab it on those get ready in a minute times when hubby is in such a rush... usually to go to McDonald's and eat! ;D

Please forgive me for hijacking this post... :-\   Love my time each day with this bunch! :-*