Anyone get the itchies?
Started last week, my skin felt wind/sunburned without a mark on it. I'm in Florida folks and it hasn't dropped below 60 so I'm pretty sure dry skin season isn't here yet.
So here I am debating... is it allergies, dry skin, or nerve prickles? Its all over an my hair is all standing up. Annoying as heck.
i have the same problem i have dry skin already but I'm in Ohio too so it's about that time of year for me. i was wondering the same thing. It's been jumping all around in temperature's here upper 30- 70;s so i dono i have been using lotions but it don't seem to be helping much.
I get a burning feeling on my fingers down to the knuckles so at first I thought it was the arthritis but it doesn't seem to be in the joints, moreso on top of my skin. also, creams soothe it and water too, so I'm assuming it's the SJS affecting my skin. It hurts!
My skin is always itchy....feels like little ants crawling all over....annoying! I have more kinds of lotions in this house than a darn drug store. I have found out though if it has a perfume smell to it I can't wear it....makes me itch more! (And I was a Bath/Body junky) Now everything I buy has no perfumes, colors etc....back to the plain old Ivory soap!
For me, that always means candida/yeast.
I have the itchy skin, too, and also live in the deep south - even though our temperatures aren't dropping yet, the humidity is and that is leading to drier skin for me. I use CeraVe moisturizing cream which is a WONDERFUL product, but I may need to start using it twice daily now because my skin is starting to flake off again :(
Hi all,
Count me in the Itchy Club! I have numerous allergies, even year-round, and I rarely have an itch-free day, so I know how you feel. I can relate to the ants-crawling-on-me feel and despite my prescription and OTC lotions and creams, I continue to itch. I even get the deep-down burning/itch sensation too!
If anyone has found any lotions or creams that are especially helpful with the itches, please share!
Thanks,
Mickey Mate (aka Becky)
If it's not the dry flaky itchy skin or the stuff that makes hives pop up all over like I used to get, it could be a mild form of neuropathy and might be worth asking your doctor or neuro about. Just a suggestion, not meant to scare. Mild neuropathy is very common with SJS and doesn't mean you'll get the major kind.
You might think about whether you've been eating more sugar/white starch lately. That would increase the yeast side of the flora (as jazzlover suggested). Plaquenil can cause itching sporatically. And of course be sure to get your liver enzymes checked on a regular schedule while you're on meds.
Hope in a Jar has really helped the dry skin on my face big time. It's a little expensive for a small jar but it goes a long way....Lubiderm is the choice for the rest of my skin!
A friend of mine just told me about Artisana Raw Coconut Butter. She eats 3 tbs a day; lost 4 lbs in a week; her hands are the softest they've ever been and has not had one hang nail since starting. I ordered a jar of it and Cacao Coconut Butter. I'm willing to try anything once. A d this stuff sounds delish!!
The coconut butter is delicious. It makes a good frosting base.
Quote from: Sooki on October 28, 2011, 10:28:50 AM
The coconut butter is delicious. It makes a good frosting base.
Oh do tell! Cream cheese? Powdered sugar?
lol ! Pretty much by the time you're making frosting with coconut butter, cream cheese isn't on the table :)
Here's a recipe with coconut butter, honey, and coconut flour:
http://www.thespunkycoconut.com/2011/05/coconut-buttercream-frosting-gluten.html
You could probably make a tasty frosting with coconut butter, vanilla, and powdered sugar, though.
Quote from: Sooki on October 28, 2011, 02:51:53 PM
lol ! Pretty much by the time you're making frosting with coconut butter, cream cheese isn't on the table :)
Here's a recipe with coconut butter, honey, and coconut flour:
http://www.thespunkycoconut.com/2011/05/coconut-buttercream-frosting-gluten.html
You could probably make a tasty frosting with coconut butter, vanilla, and powdered sugar, though.
Thank you! I'll give it a try.
Quote from: Sooki on October 28, 2011, 02:51:53 PM
lol ! Pretty much by the time you're making frosting with coconut butter, cream cheese isn't on the table :)
Here's a recipe with coconut butter, honey, and coconut flour:
http://www.thespunkycoconut.com/2011/05/coconut-buttercream-frosting-gluten.html
You could probably make a tasty frosting with coconut butter, vanilla, and powdered sugar, though.
Here we go .. back to ITCHING by eating sweets. (I know... party pooper!) :P
Well the itching has sorta ended from the neck up. Went to the dermatologist and she just told me my skin was inflamed, gave me a foam-based corticosteroid and told me to keep taking Claritin. Its the weirdest thing. The skin feels like its about to tear whenever I rake it by accident. Then if I do nothing it just itches when the air moves my hair about. Found out today that normal sunlight burns like a SOB.
/sigh
I get the itchys too. I have a couple of prescription creams for that. I get the ants feeling too. I felt like little ants were biting me all over. The doc prescribed gabapentin (neurontin) for peripheral nueropathy for it. Ants gone. Not all the itchys and rashes, but most of it.
Itchiness, how do I love thee. Let me count the ways:
I love the extended field of itchy skin across my tummy, that needs lavish and loving application of LacLotion (an Rx lotion).
I love the huge white flakes on the skin of my ankles, that showed up in the latest flare and really scared me. It responded to a. Prednisone, b. lavish application of LacLotion, followed by a coating of vaseline. Actually, b came first, and it wasn't until I was taking Prednisone that it disappeared. "Huge" above means fingernail size (not thumbnail).
I love the chronic itch on a small area below my left breast, that doesn't respond to *anything,* not even Prednisone.
I love the vajayjay (labia) itch that baffled the best dermatologists, who told me to use Desenex. That slows it down for a day or two, is all. (New thought: it may be lichen planus, or lichen sclerosis, both associated sometimes with SjS -- like so much else, sigh.) Now *THAT* itch did respond to Prednisone as though Prednisone were a miracle drug.
I love the overall bumpy skin on my arms and legs that *would* itch, except it's eclipsed by all the other itches.
–I love thee with the breath,
Smiles, tears, of all my life!"
after Elizabeth Barrett Browning "How Do I Love Thee? Let Me Count the Ways"
best,
Soycoffee
Is it possible it could be paresthesia? I keep getting goosebumpy and then tingley and then itchy.... I was diagnosed with rosacea years ago this too is flushing with the goosebumps.
I just ready over grafxmakr's original post. One way to check whether the itchiness is neuropathy is to increase the gabapentin a bit and see if the itchiness stops. It would be a kind of paresthesia, especially if it doesn't stay put in one spot.
Also, if there is a new medicine you have been taking, read the literature on side effects of it.
For me, living in an apartment building, when the heat goes on for the building, I begin to itch.
Soycoffee
Quote from: Sooki on October 28, 2011, 02:51:53 PM
lol ! Pretty much by the time you're making frosting with coconut butter, cream cheese isn't on the table :)
Here's a recipe with coconut butter, honey, and coconut flour:
http://www.thespunkycoconut.com/2011/05/coconut-buttercream-frosting-gluten.html
You could probably make a tasty frosting with coconut butter, vanilla, and powdered sugar, though.
-
Here comes the yeast!! lol
Sounds like me as well I get the itchy scratchey's especially on my fingers, and there is no rash to show for all the scratching.
Cheryl
I'm itchy all the time too, and I hate it. I take an antihistamine that helps quite a bit.
Soycoffee, you're hilarious! I also like your idea with the Gabapentin. I had my neurologist give me a prescription for it due to neuropathy, but I just hate starting another new medicine. Maybe it will help the itches and e shooting pains.
I'm lying here in bed feeling itchier by the minute . . .
This is a bit like when someone head lice everyone start scratching!
Cheryl
Nara,
Where did you order the coconut butter?? I'm very interested in trying it. Jill
Quote from: gold55 on November 25, 2011, 04:15:57 AM
Nara,
Where did you order the coconut butter?? I'm very interested in trying it. Jill
I ordered them from amazon dot com.
I am the same way! Thank God shorts season is over. I would scratch so hard that I would give myself bloody scratches and you could see bruise finger prints all over. My mom bought me some Nerve pain/anti-itch cream that has helped. I she has reordered it several times for me. My family hates the smell. But Mental and mint don't smell bad at all to me:)
I'm itchy all the time too, but my antihistamine really helps so I think that most of mine is allergies. Of course it's dry skin too, and who knows what else. My Claritin D may be drying, but necessary for me if I want to stay sane. If I don't include the decongestant, I end up with sinus infections, like I did recently.
I read somewhere once that itchiness and pain are very closely related. That they both use the same nerve endings, but just manifesting indifferent ways. Before I had my hip replacement, I had a lot of pain in my hip, but I was very suprised that it itched all the time!