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Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: LizPetillo on September 01, 2011, 04:34:32 AM

Title: Man .. I want some COFFEE!!
Post by: LizPetillo on September 01, 2011, 04:34:32 AM
I want what I can't have anymore .... I WANT SOME COFFEE!  I want some spaghetti with tomato sauce .... I want a loaded pizza with japalenos .... I want some ritz crackers and vermont white cheese ... I want some 'Great Grains' cereal for breakfast .... I want some chocolate cake with a scoop of coffee icecream on the side ... I want a Panera bread bowl of french onion soup ...  I want some IHOP pancackes with warm maple syrup ...  But mostly ... I WANT SOME COFFEE!

I know others have it worse in the world, but .... I miss eating like I used to.  I really do.    I miss having energy to be able to be 'normal' in the world too; I miss feeling good;  but right now it's just a freak'n cup of coffee that I want ... with french vanilla creme .. no sugar ...

I tried drinking warmed up water just to get the feel of coffee in my stomach, but that did something to my tongue .. I think it washed away what little liquid coating I had on it .. and it took 3 days for the feeling of hot painful sand on my tongue to lessen.

This being endlessly ill is getting TIRESOME and OLD!!
I WANT COFFEE .. DAGGUMMIT!   

Okay .... WHINE OVER 
Title: Re: Man .. I want some COFFEE!!
Post by: Katybarstool on September 01, 2011, 05:36:09 AM
Liz, if you are so desperate - and are willing to cope with any consequences have a coffee.

If you do, hope you enjoy it!

Kathyx
Title: Re: Man .. I want some COFFEE!!
Post by: Joe S. on September 01, 2011, 06:38:05 AM
I am so sorry that I do not have any real cheezy comments to add to your whine. If I did we could make a meal of it.
Title: Re: Man .. I want some COFFEE!!
Post by: Scottietottie on September 01, 2011, 08:46:14 AM
Hi Liz  :)

Has your incredibly restricted diet actually helped you to feel better? You may well have said before, in which case I apologise for asking - but I can't remember things from one day to the next!

I cut right back on coffee but I enjoy a cup of it with a good friend once a week.

Take care - Scottie  :)
Title: Re: Man .. I want some COFFEE!!
Post by: LizPetillo on September 01, 2011, 02:20:08 PM
Quote from: Scottietottie on September 01, 2011, 08:46:14 AM
Has your incredibly restricted diet actually helped you to feel better?
I feel worse when I'm off it. 
Even drinking warmed up water does something to the tongue.
It turns it to painful hot sand for 3 or 4 days.
Like the warm water washes away what protective liquids I have or something.
It has to be room temp water for me to drink.  (SIP)

It's not worth going off the AI diet for just a minute or two of pleasure.
Then I get whacked with 3 or 4 days of more intense YUK.

I just wish it would go away .... I'm so freak'n tired of this ...

I WANT COFFEE!
WHINE OVER (again)
Title: Re: Man .. I want some COFFEE!!
Post by: Joe S. on September 01, 2011, 03:29:37 PM
:) Would an IV caffeine drip help? :)
Title: Re: Man .. I want some COFFEE!!
Post by: Scottietottie on September 01, 2011, 05:33:24 PM
Hi Liz  :)

Well I guess it has made you feel better then! Have to admit - I couldn't do it myself - but I'm also the first to admit that I've got off lightly with this compared to many of you.

Take care - Scottie  :)
Title: Re: Man .. I want some COFFEE!!
Post by: 4Kids on September 03, 2011, 03:12:44 PM
When I first got sick, I had no meds and no saliva and terrible thrush. I am better and if it helps to live vicariously, I have spent the summer drinking coffee, eating cheezies, Mexican food with jalepenos, and guacamole, chipoltle spiced bbq baby back ribs, cheese of all types, bread ( I am a fantastic baker) , cheese dip, seafood, prime rib and steak, you name it.  I find i have lost my taste for sweets but that is ok, carbs hate me and I love them, so I will eat a Ritz if I can and so what. I suspect my days are numbered at that, so smoke em when you got em, right.

Ps-the other day I ate a Ritz without a drink of water. The angels practically sang.

You are a strong woman and I repect you for not giving into to a two second gratification.

Title: Re: Man .. I want some COFFEE!!
Post by: really? on September 04, 2011, 01:10:03 PM
maybe thats what I ned to do,, just eat anything I want,, burn my mouth burn my throat rot out my guts some more,, throw half of it back up,, liten to my guts rebel, and maybe I;ll hear the Angels sing too,, ya I think my days are numbered too,, it dontmatter,, according to teh Mayans,, its all going to end on 12-21-2012,, whats a few months before the end