cant walk,, cant swallow, bowels not moving at all,, salivary glands now just making pus, trouble breathing,, whole body spasms, neuro nurse called,, suposed to call back,, ENT call put in,, no call yet,, I cant wait,, these people are going to kill me,, if you donthear from me,, God Bless you all,, I tried,, tried so hard
Good luck, you poor thing.
Praying for you. :(
Hope they can FINALLY help you
Just unbelievable. I hope you can get some answers this time. Hopefully, you find someone who really cares and will step up to the challenge.
Sending you the most positive vibes I can muster! Please stay strong.
My heart goes out to you. I'm praying that you have answers on the way.
Be strong.
Please keep us posted as we care what happens to you.
Praying for you and hope to hear from you soon!
Take care - Our thoughts and prayers are with you.
Genko
Prayers for you!
Deb
Let us know what's going on with you! I'm really worried about you, my friend!
I'll keep praying!!
mebog
Please stay strong!! Praying you get some help
Cricket
staggered in, got looked at,, told to go home, life is cheap here,, wasent thre a half hour
I got so sick of being told that I was not an appropriate patient for ER. One has to be in dire straits with a chance of dying soon to be treated and taken seriously at ER's.
I have gotten so I usually go to urgent cares now and I try to avoid them as much as possible. The bottom line it that no one knows what to do with us. They don't understand what we have and they can't "see" what is wrong with us. My specialists also tell me to avoid ER cause they acknowledge that I won't get appropriate treatment.
We have to learn to know when we are in danger of dying. Really!,You just have to keep on going to the doc to find someone who will get the picture. I would hope that you are trying to find which patient behavior to use. Sometimes we can be our own worst enemy when we go to the doc. I have all these diagnosis and still get the so-called cold shoulder from new docs because they can't see what I am complaining of. Every few years or so a doc may discover that they can see what I am complaining about. Yeaaa!!!!Hang in there kiddo. Irish ;D
Really? I hope you are feeling better today.
Cant you talk to your doc and deman IVIG or plasmapharesis? if your doc doesnt agree, think you need to find a new doc. Whaever is going on with you, these types of treatments should only help? Im finding most hospitals dont have a clue about autoimmune, and the ER docs only seem to treat the basic emergencies. If all your testing comes back normal on alot of things, like mine usually does, guessing its autoimmune related. Have you tried plaquenil yet?
Gursie
No,, i;mnot any better,, in fact the glands have gotten worse, nothing but thick foamy stuff draining out of them, the neuropathy has gotten 10 fold worse,, I am sureits from teh stress of not being able to eat or sleep,, weird that it gets worse,, when I walk,, (the foamy thick stuff), now I am terrified that my pancreas is involved in all this,, I have had stomach problems for along time now,, and have now only convinced my gastro to check for AIP,, what stool I am makingis getting paler and paler,,
Stay strong Really. Maybe your new tests will help you get your stomach problems resolved. I hope so.