I just happened on this website yesterday and I've already learned that a lot of my symptoms are familiar to everyone. Sweating, for one, is a BIG problem for me. It is uncontrollable and can come on in AC or not. I did not know Sjogren's could CAUSE sweating. I have asked my rheumatologist repeatedly and all he said was "it's not the Plaquenil".
Also, sun exposure. I use to be a sun worshipper but my doc told me to avoid it. Then I read that it actuallly makes some tan faster/better. Who knew? I can't go back to being out all the time but am going to try a few minutes at a time and see what happens.
Thanks so much, I'll be visiting this site frequently!
Colly
;D
welcome colly. this is a great place. i'm glad you found it. the information and support you will find here is amazing.
cheers :)
Welcome to the Forum Colly. You will find a lot of good information here.
You may wan to avoid the sun as much as possible and support your body with D3. There are a number of supplements that can help you feel better and they have been discussed a lot on the forum.
Welcome!
We all know what you are going through; we may have some different symptoms; but we all feel for each other. Come back and join us any time.
I, too, have to avoid the sun. Even a few minutes makes my arms hurt and i break out in hundreds of tiny red blisters! So, i'm a "pale face"! Have to wear a hat, sunglasses and long sleeve shirt if I am going to be outside for any length of time. My hubby says I look like a real character ;D :( :'(. Oh well----- For some strange reason, my legs don't seem to be affected that way- but they don't tan either- just get ugly brown and white spots.
I guess it's called photosensitive-- my eyes are extremely sensitive to sun and wind, too.
Hi Colly,
Welcome to Sjogren's World! ;)
I'm glad you happened along and found us here. I think you'll find loads of great info. and some friendly and caring people. One of the great things about the forum is that some of our issues may differ a bit, but you'll find lots of people who have some of the same as you.
We also have chat times you may want to check into, too. Just stop by, and see who's there. We discuss all kinds of things.
We all look forward to hearing more from you. Please keep posting; comment or ask any question at all. We all support one another here like family.
Again, welcome!
Take care,
Melinda
Hi Colly,
Let me also extend my welcome to the SJS World and family!
Look around the board as you'll find oodles of topics and scads of information that it would make my head spin if it could! ;) :D
Take care of yourself -
Patze
Welcome, and a good place to be if you have sjogren's.
susanep
Hi Colly and welcome to Sjogrens World!
I hope that you continue to find this place useful and make a few great friends along the way too! Everyone here is very friendly, knowledgeable, and willing to offer comfort and advice to others.
Make yourself at home here and ask any questions that you may think of...
Hi Colly :)
Welcome to Sjogren's world! :)
Take care - Scottie :)