Im not sure if any of you used face book or are apart of this, ive mentioned this site MANY TIMES, but its not a big group but a lot of the same ?'s on here are on there, and this group has so many people to offer advice and answers, i think this is the link.....
http://www.facebook.com/home.php?sk=group_183903361644055&ap=1
if I didnt do it right please let me know, but I think that so much of the amazing comfort and knowledge I get from you guys, these people could benefit.
my favorite thing is what we arent alone and theres no better feeling than when we read someone saying something we could have written word for word ourselves, thank you
Tanya
I have an acocunt but I am not facebook friendly. Too much information is available to advertisers, spammers, hackers, and alphabet government agencies.
Thanks Tanya. I asked to join.
I like the idea, but I'm not yet willing to deliberately reveal information about my health to the online world. I can just imagine somebody seeing that when I'm trying to get a job or something. Anonymous online communities like sjogrensworld.org seem much more practical.