Hi, I was wondering if anyone had any suggestions on memoirs written about dealing with chronic illness. I'm trying to learn about ways other people cope with SjS and other autoimmune diseases and am looking for good books as well. Any suggestions?
I have not read anything that I liked. I believe that we are at war with autoimmune diseases. I even remember reading a 1963 article in Mechanix Illustrated about AI diseases being developed as a bio-weapon by a Japanese researcher during WWII.
We have to take our blinders off and see beyond or doctors solutions. 1999 Popular Science article "The Cell from heck" is an interesting start.
http://books.google.com/books?id=gJfxBTKptj0C&pg=PA66&lpg=PA66&dq=the+cell+from+heck+popular+science&source=bl&ots=Swza_Hg13G&sig=7aB3svqREQ0UCIxauzitI_oKqHw&hl=en&ei=zgifTfniDYjYgQeombzqDw&sa=X&oi=book_result&ct=result&resnum=1&ved=0CBUQ6AEwAA#v=onepage&q&f=false
The 2010 article from Discover Magazine suggest a link to Mitochondria DNA and L-Bacteria in AI diseases:
http://discovermagazine.com/2010/jun/03-the-insanity-virus
I enjoyed the book "You Don't Look Sick" written by Joy H. Selak.
I liked (you dont look sick) also,,, but now I get,, my god what the he!! happened to you,, you look horibble
These were recommended to me as I am a reader and friends are on the lookout for informational books. I haven't read them so I don't know if they would be a help to you or not.
(I'm not sure about some of the spelling)
The Autoimmune Epidemic by Donna Jackson
A Body Out of Balance: Understanding and Treating Sjo Syndrome by Ruth Fremes and Nancy Carteron
The New Sjo Syndrome Handbook by Steven Carsons and Elaine K Harris
Dancing the Rivers Edge (don't have an author) I think this is a memoir.