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Sjogrens Topics => Living With Sjogren's => Topic started by: echofuzz on December 21, 2010, 06:22:21 PM

Title: Neuro Appointment Tomorrow
Post by: echofuzz on December 21, 2010, 06:22:21 PM
so i have a neuro appointment tomorrow. it's for the blackout/dizzy/falling spells i've been having, but i was thinking about running through all my symptoms with him. i figure if i'm there, i might as well make the most of it, right? i'm hoping for some advice as to what tests i should ask for.

the symptoms i have that i suspect are neurological are:

-tingling/numbness, mostly of my hands and feet
-muscle weakness
-muscle spasms

any suggestions for what tests to ask about?

many thanks in advance!
Title: Re: Neuro Appointment Tomorrow
Post by: Shani on December 21, 2010, 06:48:23 PM
I hope your appointment goes well.
The black out/falling could be brain related.
It's possible they might want to do an MRI of your head or a CT san.

About the other issues it's possible they might want to do an EMG.
It's to check up on your nerves and muscles, check for abnormalities.

Aswell sometime a muscle/nerve biopsy, not everything shows up on an EMG.
They often to this to 100% rule out Neuropathy, there are many kinds of Neuropathy.
Some can even not show up on an EMG.

There are more tests a Neuro sometimes does but I think one/a few of these might be needed.

Gentle hugs. :-*
Title: Re: Neuro Appointment Tomorrow
Post by: Joe S. on December 21, 2010, 06:58:23 PM
Bring a list, bring an advocate.
Title: Re: Neuro Appointment Tomorrow
Post by: genko_b on December 21, 2010, 07:27:48 PM
I would bring a list of all your symptoms, even the ones you don't think are neurological, so the doc has a full picture of what is going on. Sometimes things that seem insignificant or unrelated to us fit a pattern that the doc sees.

Let us know what they find out. I'm glad you will see the doctor so soon.

Take care,

Genko
Title: Re: Neuro Appointment Tomorrow
Post by: Patty on December 21, 2010, 08:50:11 PM
After 18 months of frustration trying to get a diagnosis, I told my neurologist ALL my symptoms, even though I thought some of them sounded totally crazy. It was a light bulb moment. He said "Oh! You have vasculitis." I have read that you should not throw too much out at a dr as well, but concentrate on the main 3 symptoms. Maybe start with your top 3 and then see what the dr thinks about your other symptoms. It is a big help to bring a spouse or close friend along if you can. It was my husband who pushed me to tell all my symptoms. I didn't want to because I was certain the dr would think I was a hypochondriac. I hope it goes well for you.
Patty