After suffering with all this weird pain,, the burning skin and everything else,, I guess I need to realize that some of this is prob due to fibro,, although I really dont believe in it,, I think its a subset of neuropathy,, but anyway,, after doing some reading,, they mention cortisol a lot and low readings of it can be a symptoms of fibro,, I guess the fight or flight part of our brains drains us of cortisol, and some other much needed stuff,, making our muscles burn and ache to the point you want to hack off body parts looking for relief
I;m sure a lot of this is old reading , but when our bodies are tense from chronic pain,, the body never gets achance to heal, the muscles cramp up constantly,, although a Low Vitamin D can cause this too,, so I think taking a suplement for that is advisable, and learning to relax,, which I cant seem to do,, I want to go outside,, but the cold cuts right through my body,,
Been up since 4;30am again,, had to get up due to the burning in my arms,, and the twitching, I dread getting a shower,, it hurts to even have the water run on me,, my family has to think i;ve lost my mind,,
The house is so dry,, I am having a lot of problems seeming to get enough air,, even rollinig over in bed has me gasping for air,, sort of that I cant catch my breath feling,, we do have a humidifier,, but it needs a new thing that soaks up the water,, I was going to use it the other day the thing is all funky,
I guess the hardest part of this whole thing is the lonilness ,, stuck in the house, no energy,, no feeling of contact witht he outside world, I dont remember the last time I have been out of this house to go anywhere,, may have been right before thanksgiving,, other then walking across the road to go hunting,, thats about it,, and I had to force myself to do that,,
I would go out,, but I cant,, as I said I cant tolerate the cold,, and all I got from the neuro was to dress in layers,, well I guess thatwould help if I fall down which I am finding myself close to doing a lot,, its lie my legs jsut dont want to work,,
So I guess I need to figure out a way to do something,, anything that doesnt involve me killing myself,, no more electrical work,, or anything that requires fine motor skills,, like wrapping xmas presents,, I made a mess of teh few I did saturady,, Man I love overstock,, stuff jsut comes to the door,, I like that :-),,,
Even Bo the red boned doxie hates these days,, he runs outs,, pees on Mrs Clauses dress and comes back in,,
I suspect our Oil bll is going to be high this winter,, I used to keep the house around 65,, now I have to keep it at least 72 to even fel remotely warm,, burned half a tank allready,, anyway I;m rambling,, so for those who are in chronic pain, I know what your going through,, yu just feel like pieces of flesh are being hacked off,, and you get to a point that you dont even care,, you jsut sit there and let it happen,, if it were a form of torture,, I would have given more then my name rank and serial number by now,,
So try to remain calm,, calm and relaxed,,, ya right,,, LOL,,
:-* hey sweets...well ta 1 HERMIT ta 'nother...i feel ya hon!
went ta wally~world yesterday &um...wasn't fun 4 my lil' body...noggin'or soul!
agoraphobes nightmare is what it was!
(besides the pains)
i will just say...i have yet ta find ANYTHIN' ta eleviate the lonliness & fustration that is my prison i have made 4 myself! :-\
that is up 'til i found peeps like ※U※ & this board that is a wealth of info!
u contribute ta these boards w/ur
understandin' & 4 lack of better words...ur STRAIGHT~UP~IDNESS!
i wish i could give u ur hands back @least! so u could be the electrician u once were!
(or ta hold on ta those pesky lightbulbs @ least!)
hope u find sum relief soon bebe!
if ya need a vent session...w/cussin'u know where i'll be! ;D
~*flutterfly...in'er lil' home prison cell*~
I'm with you Navydad.
Sometimes it's just so hard to figure out what is going on with our bodies.
Many things are still a 'mystery' to me.
Even if we have a diagnosis or a name put on some symptomps.
We still get freaky and scary things and don't know where they come, nor do doctors sometimes.
Then we just get told to live with it.
I definitely understand the feeling lonely or isolated part.
Especially the frustation of not being able to do things you could -amount of months/years-ago.
It's hard to let go and accept you need to give up certain things.
There have been times I would get really sad because I cannot just go out whenever I want to.
I had to quit school and I am getting homeschooled.
Sometimes makes you feel like the 'odd 'one out, because you can't just go to school like everyone else or go out and have fun, be carefree.(Especially at my age)
But I have found peace with it now.
I figured that being upset over everything I cannot do and let the daily chronical pain I have get to me or make me cry-
That just won't work, and I definitely never want to end up getting depressed.
We are so grateful to have you here on the boards.
Believe it or not, but you are a rolemodel to me.
So much pain you have and yet you are still here today.
Wanting to keep going, although sometimes it is really hard to.
Chronical pain is hard to accept or cope with, no matter what age you are.
I hope you find a way that works for you, finding peace with it is the first step.
But I know that's easier said than done.
If you knew you had a caring doctor for example that will do everything to ease your pain and make it more bareable to live with, that would help A LOT already.
Really hope you find one of those.
But for now, hang in there and be strong.
"Even Bo the red boned doxie hates these days,, he runs outs,, pees on Mrs Clauses dress and comes back in,,"
That comment made me crack up! ;D
It is hard to accept,, my wife just called,, she calls me every day at lunch time to check up on me, she always wants me to go to the hospital,, but like I tell her,, what can they do in a ER,, there meant to treat and either admit or shove you out the door with a scrip and see your GP
Well Bo the Red Boned hound is nicely curled up in front of HIS electric heater which earlier I had shut off,, now he shoves it around till I turn it back on,, hes out of it for a while now,, never saw a dog sleep so much,
Back to Pain,, its offending, insidious, invisible and if you did go to a doctor about it,, and try to describe it,, I am sure they would size you up for a jacket with the long sleeves, I;ll never understand some things,, guess its a good thing to not understand a lot of things,, you get this kind of pain and you begin to wonder if your body is actually coming apart,, is thre something seriously worng,, have you finnaly lost your mind,, but you know you havent,, when you get up and almost fall over
When My wife called she asked if I wanted some Jeans,, I told her no,, I cant stand the feel of the fabric on my legs,, she didnt understand,, she doesnt understand neuropathy or what it means,,
I am about ready to kick Bo out and move in front of the heater myself,,
AND I:M TICKED<<MY STEELERS GOT BEAT YESTERDAY,,,
can TOTALLY relate ta the clothes! i wanna go naked...but um NO! 2 cold!
actually mines more the shoes are ~pain traps~!!! (even the loose 1's) adds ta the already funky pains!!! ;)
i also understand NOT wantin' ta spend more $$$ on a ~band*aid~ visit that goes NOWHERE!
thats what the e.r. peeps make me feel like when i'm in excrusiatin' pain!!!
it goes sumthin' like this...oh here's sum fluids & more tests! all 4 an answer like...um nope everythin's fine in labs...
BUT...we are movin' ya ta icu ta rack up mor bills & end result is...follow up w/doc!!!
by then i'm better but still no answers! & alot of bills!!!
i call my self the walkin' bill!
BLAH BLAH BLIPPITY BLAH! hey...if u want i can bring sissors (ta cut the long sleeves off ya)
& have a wheelchair on standby so we can make a quick escape...if it cums ta that! :P
(hope the humor was taken the way it was MENT!)
~*flutterfly puttin' on runnin' shoes!!!*~
Yeah, I hear ya on the pain. That burning, feels like your flesh is being torn off, I am getting more of that it is not fun.
It's very sad to have to give up things that we still should be able to do:
I miss the closeness with my hubby. Everyone needs to be touched it is a part of love. When a person is sick they need
it more, but when you are like us you can't stand it. (We would love to have it, just can't)
I am fortunate I have an Ortho doc who has known me for 30 yrs. and gives me vicoden when ever I need it. Otherwise I'd go nuts.
The clothes are becoming a problem too! If a cloth is to rough I can't tolerate it. Lately my jeans have been bothering me, never put it together til I read your post.
Navydad, even though you are in so much pain I hope you have the best Christmas possible.
I don't know if you or your computer can handle it but MMORPG games are nice to help avoid feeling totally isolated. I play one and there are people there I've known for more than a year. I can take pets for a virtual walk and see a sunset. Obviously the real world is better but when one doesn't have energy for that it is much better than nothing. Plus humting virtual stuff is a great way to blow off steam without have to dress anything or feel any guilt. Sometimes something to wrap your mind up in if only for distraction is worth a lot. Just a thought.
Quote from: Cricket on December 20, 2010, 12:33:32 PM
Yeah, I hear ya on the pain. That burning, feels like your flesh is being torn off, I am getting more of that it is not fun.
It's very sad to have to give up things that we still should be able to do:
I miss the closeness with my hubby. Everyone needs to be touched it is a part of love. When a person is sick they need
it more, but when you are like us you can't stand it. (We would love to have it, just can't)
I am fortunate I have an Ortho doc who has known me for 30 yrs. and gives me vicoden when ever I need it. Otherwise I'd go nuts.
The clothes are becoming a problem too! If a cloth is to rough I can't tolerate it. Lately my jeans have been bothering me, never put it together til I read your post.
Navydad, even though you are in so much pain I hope you have the best Christmas possible.
I didnt even bring up that aspect of it, a hug hurts, its not a way to live, I have a closet full of new jeans I cant wear, to rough
hi navy dad,
i so tottaly get everything u say,u always describe exactly how i feel,yet why can no-one help us end this pain?
sending gentle cyber hugs to u xxx