Print Page - An FYI for the Undiagnosed

Title: An FYI for the Undiagnosed
Post by: Lily on December 11, 2010, 08:35:31 AM

Hello all -

For those who are in diagnosis limbo and frustrated after going through the testing mill with no answers jumping out at anybody,

this link was posted elsewhere. Maybe it will be of interest to some of you.

http://rarediseases.info.nih.gov./Res...aspx?Page ID=31

Good luck,

Lily

P.S. If it doesn't work, would get onto the National Institutes of Health website.

P.S. I am a Sjogren's.

Title: Re: An FYI for the Undiagnosed
Post by: Daisy1234 on December 11, 2010, 08:46:32 AM

Thanks for posting this link Lily. I've been diagnosed with primary Sjs for years now, but just this week was told that I might also have CREST, so will check out this link with alot of interest as a result.

Daisy

Title: Re: An FYI for the Undiagnosed
Post by: Sha on December 11, 2010, 10:26:05 AM

Lily~

Thanks for posting the link! It worked...and has a lot of info on it;)

Thanks again!

Sha

Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: Lily on December 11, 2010, 08:35:31 AM