Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: Loon-Lover on December 07, 2010, 01:57:59 PM

Title: Hello everyone:
Post by: Loon-Lover on December 07, 2010, 01:57:59 PM
I have been reading posts here for over a year. This forum has been so helpful to me and my family. I would like to say that like alot of you I have been ill for years. I have

had a total of 23 surgeries. I'm 49 years old. I have been to so many Dr's, I couldn't begin to count. I LOVE my GP, he believed in me and in fact saved my LIFE! When we ran out of IST"S he sent me to the U of M. There I met the nicest Rhuemie. He ran a ton of tests. As long as I can remember I have had blood in my urine. He sent me

over to the kidney Dr. the same day. He in turn sent me for a CT-SCAN. Last Febuary I found out I had Kidney cancer. He called me the next morning! The end of April I

had the cancer removed! This april I was one year cancer FREE!! I also was Dx'd with Sjogrens at that time. Also last year I eneded up in the hospital with an absessed

tooth that almost killed me. I was in hospital for 16 days & three surgeries! My Gp said the puzzle has finally come together.  I'm a custodian for a large high school. I was

on sickleave for 1 year. I went back to work and lasted 9 months. I'm now back on sickleave. I have much more to tell, but wanted to jump in and finally introduce myself.
Title: Re: Hello everyone:
Post by: Loon-Lover on December 07, 2010, 02:00:02 PM
Sorry, Dx'd Sjogrens Feb. 09 and Cancer April 09.
Title: Re: Hello everyone:
Post by: Cheryl on December 07, 2010, 03:02:44 PM
Wow, congratulations on the cancer-free status!!!!  I hope it is permanent for you!  You had a couple of rough years, didn't you? 

Welcome to Sjogrensworld.   We're glad to meet you.   I hope your immune system gets straightened out and that your Sjogrens is manageable.  Best wishes!
Cheryl
Title: Re: Hello everyone:
Post by: ohiolady on December 07, 2010, 03:14:33 PM
Welcome to Sjogrens World.  I, too, am a kidney cancer survivor.  My cancer was diagnosed two years ago and I had my surgery 1-15-09.   I think you will find everyone here to be kind and helpful.

Anna
Title: Re: Hello everyone:
Post by: sugarbugar on December 07, 2010, 03:40:59 PM
Welcome Loonlover! I am so glad you're cancer free! Welcome to
the forums and I'm glad you introduced yourself! I pray you can get your Sjogren's under control too!
Title: Re: Hello everyone:
Post by: Dolly Dimples on December 07, 2010, 03:52:22 PM
  Wow! 23 surgeries!
                               Is there any part of you untouched Loonlover?

                    Glad to hear you got over the cancer! and enjoy this place/
                        Welcome ,            Dolly x
Title: Re: Hello everyone:
Post by: Joe S. on December 07, 2010, 04:01:54 PM
Welcome Loon-Lover. Find what works for you. Take care of yourself.
Title: Re: Hello everyone:
Post by: Scottietottie on December 07, 2010, 04:14:46 PM
Hi Loon-lover  :)

Welcome to Sjogren's world. Wow - you've had a lot to contend with! I hope you find the site useful. You'll certainly find it friendly and supportive.  :)

Take care - Scottie  :)
Title: Re: Hello everyone:
Post by: Patze on December 07, 2010, 05:16:56 PM
Hi Loon-Lover,

Let me also welcome you to the SJS World and family!  I'm glad that you've been able to do some looking around as you've seen the scads of topics and the tremendous amounts of information.

Wow, 23 surgeries?  Whew, I'm glad you came through it all!

Hang in there and I hope to be able to chat with you soon.

Take care of yourself -

Patze
Title: Re: Hello everyone:
Post by: Sha on December 07, 2010, 05:51:49 PM
Welcome! Im new too...don't let the posts number fool ya....I just talk a lot:p

Congrats on being a survivor! :)

Ask away..everyone is really helpful and friendly!

Sha
Title: Re: Hello everyone:
Post by: Loon-Lover on December 07, 2010, 08:03:11 PM
Thank you all for the welcome. Yes, 23 surgeries. They started when I was about 12 with cysts deep under the skin. Female problems. I had a ovarie that was attached to an artery, Dr. left a small piece and 6 weeks later grew another tumor on it. He went back in to get it off and cut the artery!!

Because of that they had to call in a trama surgeon, now I have three titanium clips holding it together.

I was told by a orthopedic Dr. last week ( very rudley ) that my sprained ligament in my knee was from Sjogrens and he can't do anything for me.

By the way, My name is ~Laura~
Title: Re: Hello everyone:
Post by: Shani on December 07, 2010, 08:33:06 PM
Hi Laura!

Welcome to the boards.
This is  great forum full of information and helpful people.
If you have any question, don't hestitate to ask.
You may always come chat with us.:)

And congratulations on being cancer free for a year, yippee! ;D
Title: Re: Hello everyone:
Post by: Catilee2 on December 07, 2010, 08:38:19 PM
Dear Loon-Love aka Laura,

  Like the others I send you a welcome. Some Drs. just don't get it. We do normal things that can sprain knees and ankles and......  Oh, well. I am glad for you that you celebrated your 1 year annv. for being cancer free.  May it multiply to many many years!   Rest that sprain so it heals.  Like you I read these messages for quite a while before I came on board.
I hope the drs. can keep your Sjogen's so that it has a minimal effect on your life.

Catilee 2