:o SOOOOO...i think its sorta ironic that now for the last year i've been havin' these odd wierd sensations like water truly runnin down my legs!
but as u prob. guessed there's no frickin' h2o! (no piddle either) just the sensation! i tell my diabetic doc & he says that he doesn;t think its due ta my diabetes!
than what IS IT? um i dunno was all i got out him! thanx doc...here's sum more $!
i also do have neuropathies in hands & feet...BUT THIS IS WAY DIFFERENT! i also get these wierd firey waves like all of a sudden my foots on fire!
any 1 else w/weirdies?
thanx ~*flutterfly*~
Hi Flutterfly :)
I saw my neurologist last week on an annual visit and told him "Well - my skin is still lying to me!"
I haven't had the 'water down the legs' but I have had 'my shoes are full of cold water' (when they are NOT)
I get burning patches of skin that I could pretty well draw lines round but they come and go. My feet usually burn now rather than feeling wet. I'm not diabetic.
I think its a type of neuropathy that goes along with Sjogren's but I'm not medical - its just my opinion.
Take care - Scottie :)
For years I have had spots that feel "wet" when they are not. To me they are just weird feelings. As Scottie says, "my skin is lying to me". I have put it off as part of RLS or Neuropathy.
Wow...I've been recently having the same feeling. I'm going to keep tabs on your post to see if anyone comes up with a good answer. Thanks for asking it.
Deb
I'm not quite sure either.
But it could be Neuropathy related still.
such a long fustratin` day @ hospital 4 our papa ALL DAY...
BACK AGAIN tamorrow...so i will bidcha a good night folks &
i will hope 4 the pillows ta be cold on BOTH SIDES 4 ALL!
much luv commin`atcha!
~*flutterfly takin` fieldtrip ta dreamland hopefully!*~
I am thinking that perhaps what you are describing may be a type of Paresthesia. My neurologist explained it as a sensorial neuro disturbance in the nerve endings being out of whack that may give us sensations that are not actually happening.
There are several causes for this issue some of which are:
Alcoholism
Atherosclerosis
Autoimmune disorders
Fibromyalgia (FMS)
Guillain-Barre Syndrome (GBS)
Herpes zoster (shingles)
Hyperventilation
Hypoglycemia (low blood sugar)
Lyme disease infection
Menopause
Metabolic disorders (diabetes, hypothyroidism, hypoparathyroidism, etc.)
Multiple sclerosis (MS)
Nerve irritation
Neuropathy
Vitamin B deficiency (specifically, B5 and B12)
Whiplash
I don't know if this will help anyone but I would suggest talking to your neurologist about this problem to see if there is a remedy available for you.
Hugs, Daisy
hi,
my old neurologist said these weird sensations could be part of the neuropathy as everyone's experience while somewhat similar is also individual.
I'm glad to read someone else has experience the water running down the leg sensation.
Catilee 2
It doesn't happen anymore, but a couple of months before I got the SjS Dx, I had what felt like something taking tiny bites up and down my legs. The rheumy said it was PN. I get some tingling in my feet at times now but the nipping hasn't come back, so I think Plaquenil "nipped" it in the bud.
I was lucky to be Dx'd just 7 weeks after my first dr's appt - the "nipping" was the reason I made the appt. It was my first major symptom. Then the super-dry mouth kicked in. I'd had dry eyes for 11 years before all this happened. The eye doc at that point said it was "quite common for women my age", but I think now it was the first sign of SjS.
Hi :)
My skin started telling me lies in my early thirties - way before menopause and too financially challenged with young children to be an alcoholic. MS was tested for - as a possibility and was discounted.
I was therefore deemed to be a hypochondriac.
This was way before any dryness started. It felt real however. Good news - my skin still lies to me but it hasn't got a whole lot worse than it was then.
Take care - Scottie :)
I believe this is just part of FUJS. I get the feeling of cold water being poured down my back. I also get the feelings in my arms an legs.
My face gets numb too. Lyrica does help me with this somewhat. Lucy
WELL HELLO THERE MY FUNK SENSATION~SKIN LYIN' TA THEM PEEPS!
GOTTA MAKE THIS QUICK...HUBBY NEEDS TA DO QUICKBOOKS & IS HO~HUMMIN' 'BOUT ME GETTIN' OFF!
k...so what's parathesia~PN~ & FUJS?(last 1 sounds naughty) HUH...HUH...HUH?
PRAIRIE GAL~ is the sensation of ~bitin'~ sorta like creepy crawlies that are worse when ur standin'still & feels like maybe bugs under skin & restless leg syndrome WITH SHOCKS all rolled inta 1? like maybe if u move 'em it'll get better...BUT DOESN'T...JUST DRIVES ME BATS%*T CRAZY!
thats the best i can explain it (but not really...hard ta put inta words!)
if not...couldcha explain the nippin/'bitin' please!
okay gotta give up my laptop...check in later! thanx guys! i don't feel like i'm hallucinatin' or a hypochondriac as much now!
U GUYS ARE REAL RIGHT? UR NOT A FIGMENT OF MY IMAGINATION ARE YA? please be real...please be real... ::)
~*FLUTTERFLY*~
Flutterfly, it really just felt like something small nipping me up and down my legs. There was no electric shocky feeling and it didn't matter if I moved around or not; it came and went as it pleased, though seemed a bit worse if I sat still for long periods.
I get "jumpy" legs at times in the middle of the night in bed if I've gotten up to go to the bathroom. Since this apparently isn't what usually happens with "restless legs", I don't know what to call it.
Until you mentioned it just now, I'd forgotten I do get the sensation at times that there's a little bug walking around on my arm -- but there's nothing there when I look. It goes away in a few minutes. I also used to get the "pins and needles" feeling regularly at the tip of my nose. That hasn't happened in 3-4 years now.
I figure as long as this stuff doesn't stick around too long and doesn't drive me batty, I won't worry.
Flutterfly, I have often considered if I am a figment of my own imagination. But then where does my imagination exist if I am a figment of it?
JOEY~ GOOD POINT SWEETNESS! TEHEHE! ;D
PRAIRIE GAL~(what prarie? my friend calls me 1/2 pint...so i think of lil' house when i see ur name!) thanx 4 the explanation!!!
yupper i get the crawlies...like a hair or an ant travelin'down the same lil' part of my body (1 ta 6 inches usualy) just drives me nuts so i keep tryin' ta wipe it away ta no evail!
but my leg thingys r more like there's sumthin' crawlin on the INSIDE! (if i rub them & sit down it helps) but its weird it seriously is just from my knees down ta my toes on that sensation! i gotta say its even more maddenin' then the neuropothies!
& the water floodin under the surface & warm sensations r just funky funk funk thingys but not bothersome @ all...no pain or nothin' just the feelin'!
thanx again!
MODS...WHAT HAPPENED TA ME? WAS I REALLY A FIGMENT? I JUST KNEW IT! (SHA HELP ME!!! BRING ME BACK TA THE SJOGRENS WORLD PERTY PLEASE!!!)
~*LOST A WHOLE FLUTTERFLY*~
How did I miss this thread,, I started out exactly like that,, I would be standing there,, next thing I kow I;m grabbing my leg,, I swore there was water running down it,, then the weird stuff,, feet on fire,, more water runnng down the other leg,, EMG studies,, theres nothing wrong with you,, ok,, why dont my feet work,, more emgs,, nothing worng,, I could go on,, but if you havent been checked for SMALL FIBER NEUROPATHY,, get it done,, its alot easier then having them shoot your nerves full of electricity
I have had this sensation a few times...thought I was going crazy...
Nah - your skin is just telling you lies! :)
NAVY DAD~ DIDCHA THINK U WERE WETTIN' URSELF THE 1ST TIME?
i did! the thought of how it got from my whoo~who ta the mid~inside thigh w/out me feelin' it til it was down there WASN'T even a thought! i just KNEW i piddled! thats how REALit felt!
then didn't happen @ all 4 awhile & then b4 i knew it it was happenin' more & more in random places in legs & then in my arms & a few days ago in my face!
(already have trig on left side of face & weird random numb spots all over my face & tongue! like i was a couple hrs from dentist visit!)
TEHEHE!!! MY FRIEND HAD THE NERVE ELECTRICITY SHOTS!!! HE ALSO FARTED ALMOST EVERY TIME THEY SHOCKED HIM! even had the doc bettin' if this would be a ~silent~ or ~crack reverb~! was halarious cause the said friend was a big bad biker! snicker snicker...OH I THINK I SNORTED!!!
~*FLUTTERFLY NEEDED THAT LAUGH*~ XO
anybody else? please chime in! done w/ caps...unless ta pop 1 or 2 words! ;)
just wanted thoughts 'bout this subject b4 i go ta virginia mason please! it happens ALL the time now! & also the warmth floodin' inta feet like they have a warm fire just lingerin'! so weird cause i'm describin' 2 totatly different things but could happen back ta back also! welcome ta my wacky weirdness!
thanx whole bunches!
~*flutterfly*~
Hey bebe~
Ok, I was doing some research for you guys and this site describes the sensations really good but I didn't see that they gave it a name...the descriptions of the feeling will make you guys snicker though;)
http://www.everydayhealth.com/blog/trevis-life-with-multiple-sclerosis-ms/multiple-sclerosis-is-getting-under-my-skin-a-new-sensory-symptom/
Flutterfly~ I will admit this one was harder to research....been at it for a couple of hours and this page explains it the best;)
http://www.medhelp.org/tags/health_page/7687/Multiple-Sclerosis/Paresthesias---Things-That-Go-BUZZ-in-the-Night?hp_id=378
Hope this helps someone!
Sha
SHA BEBE~ i appreciate u so much dearheart! i don't know why i hadn't had u look this stuff up b4 this! (feel like a dummy) but yeh i always say stuff well similar ta what was said on the links u just posted!
like i call 'em ~snowday hands~ when i drop things 'cause i thought i had ahold of it! i say man water's tricklin' down a random spot on me!
or yay my feet don't know their touchin' the floor! i get the random numb chin...the always tingly cheek that has a zap inta my skull or this 1's grand...
the feelin like u came from the dentist & the nummin' is ~just~ startin' ta go away but not really!
man when i posted ta this last night my always numb feet (i'm used ta my feet bein' numb & not feelin' touch & not bein' able ta tell hot & cold difference! but they were extra tingly & full of warmth & i was gettin h2o trickles down my arms & thighs (i call it the ~pee factor~) but i dunno how the pee trickle end up in my arms! tehehe! not painful unless it's accompanied by the horrid 3 ta 40 second zaps! those lil' buggers STING! even tho they're short lived it gets a pixies attention pronto! :o
the itchy/scratchy effect drives me crazy~er! get done itchin' 1 spot & b4 i get done...another 1 pops up! made 4 futile attempt @ sleepytime!
plus that link said it best...itchin' the tingly numb spots do absolutely NO good! (but i still try)!
as much as i felt validated that others explain the same feelin's that i have...(it is REAL...daggumnit!)...i'm sorta flustered!
now tryin' ta stop the water works from my eyes! :'(
i just get so dang mad that my docs didn't know this & wouldn't catch on that THAT was what i was describin'! ya know!?!
~*flutterfly wonderin if docs need ta go back ta school!*~
;D ~^UPDATE^~ ;D
K...so this is what i found out...i have SEVERE carpal tunnel in both hands that need surgery ta stop more damage!!!
i have polyneuropathies in both hands & both feeters & no reflexes in ankels...risk 4 drop^foot & allready have sum of those signs!!!
(1st bein' NO REFLEXES in ankels!)
i have a pinched nerve in elbow (tennis elbow i think) & a frozen shoulder syndrome! they call it impingement syndrome of the shoulder!!!
i just got x~ray of that & will find out more later!!!
i got mri of my noggin & it show change ta the white matter inside there!!! doc asked if i get severe migraines or have had head trauma!!!
i say well...no headaches but i was beat by ex/a$$^hat on a daily basis!!!16 years ago
(broke up w/him when i smarted up & took a break from duders completely up 'til i found this hubbs that is!!!)
& her response was...YUP...THAT COULD DO IT!!! >:(
oh & all those wooky h2o sensations & creepy/crawlies & such...he says thats a very common description!!!
also peeps say they feel like they're walkin' on rocks!!!
oh & i have myopathies & tendonapathies that i have ta have muskel doc 4 but i will be puttin' that off as well 4 the time bein' @ least!!!
all this stuff i've been complainin' 'bout 4 a decade & up 'til i went postal pixie on their tushes...
i had NO ANSWERS & NO1 cared!!! BUT now oh boy is every1 scamperin' usin' words like ASAP & u NEED ta & blah blah blippity blah!!! & i say...unless ur payin' me back 4 all the appt's that u dissmissed my ailments in...
i need ya ta slow down on tests & docs & specialists & such 'cause i can't afford ta be me!!!! :-\
so yup thats my wacky^wookiness so far!!!
tamorrow i get ta see colon doc 4 high cea levels & pre colonoscopy appt!!! yaya can't WAIT 4 THAT!!! :o
lil' background...
i have diabetic gastroperisis & it SUCKS when u have no mobility & they give ya all that MOBILITY SH#t...
u would think it would move...but alas just sits there balloonin' me up ta look 6 months pregnant & yup...
'bout the time it's time ta get scope...THAT'S wehen it moves!!! hurts a bunch & just plain...NOT FUN OR FAIR!!! :(
much luv ta all the skin lyin' ta 'em peeps!!!
~*flutterfly sayin' no ta surgery & neurontin 'til i can get other sh#t^storm takin' care of!!! OH BOTHER!!! ::)*~