Sjogrens World Forums

Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: wiccagal on October 24, 2010, 04:15:50 AM

Title: You know you have Sjogrens when...
Post by: wiccagal on October 24, 2010, 04:15:50 AM
Your handbag contains more lip balms moisturizers and chap sticks than a chemist

You are the first person people at work turn to for painkillers.. and you can accommodate for  most requests

You have more sugar free gum in your, bag, purse, pockets than an Orbit gum factory

You have a deep sympathy for the Tin Man and wonder why that idiot Dorothy, doesn't buy him some Biotene

Your bathroom cabinet looks like a pharmacy

Your drinks come in pint glasses and there is always at least two on your bedroom side table

when you rummage though your handbag you pull out at least 5 different painkiller packets which all are half empty.. and have to stuff the wad of tissues that just fell out back into the bag.. after you move the vials of eye drops that are currently obscuring your view into the bag...

and now your turn...

Title: Re: You know you have Sjogrens when...
Post by: Rhonda on October 24, 2010, 05:53:13 AM
You have to plan your day around your aches and pains and rest periods.....

You have to check your calendar before you schedule anything to make sure you don't have a medical appointment that same day.....


Great post!  I look forward to others' responses! 
Title: Re: You know you have Sjogrens when...
Post by: Katybarstool on October 24, 2010, 07:28:26 AM
Wiccagirl

I know exactle where you are coming from! My workmates come and ask me all sorts of medical questions - particularly if they are going for some test or other - they know that I've had most of them!  They also know where to find painkillers, heatpads and such like when they need them.

Also, when you go into hospital and the junior staff ask you about ALL your ailments, and what your meds are for. Feels like I'm the weirdo, who would make a good case study!

Well, we might as well put our experiences to good use :)

Kathyx
Title: Re: You know you have Sjogrens when...
Post by: Pisces24 on October 24, 2010, 07:30:21 AM
I have a tote that I carry along with my purse to work.

Other than consumables for lunch I almost swear I got a pharmacy in there.
I have tylenol, ibuprofen, immodium, pepto, tube of antiseptic and bandages.

Work place just don't have that available anymore to employees.
When I had to take an early lunch once to get to the store for immodium, I learned.

An I once used to kid my mother that she had everything imaginable in HER purse. LOL  ::)
How times change!   :D :D
Title: Re: You know you have Sjogrens when...
Post by: Patze on October 24, 2010, 07:50:10 AM
And have three different type of eye drops just in case.

Open up a drawer on your desk and have more types of OTC pain killers just in case (embarrassing when the boss is looking for a pen).

And there is always an extra large full drink on the desk every day (I swear, it never gets empty - always refilling it! :D).


Patze
Title: Re: You know you have Sjogrens when...
Post by: Bucky on October 24, 2010, 08:47:04 AM
You do a mental check-off list before you leave the house:  eye drops - check, kleenex - check, chapstick - check, pills - check, jacket/sweater - check.  Don't forget the water.

You back down the driveway and run in the house because you forgot to bring along your bottle of water.   ::)

Bucky

Title: Re: You know you have Sjogrens when...
Post by: Rhonda on October 24, 2010, 09:00:58 AM
when people ask you why your eyes are so red?

or when you have a nosebleed out of the blue because your nose is so dry

or when you feel frustration when someone tells you  how tired they are... and you think "tired? you don't know tired..."   
Title: Re: You know you have Sjogrens when...
Post by: newhorizons on October 24, 2010, 04:29:10 PM
Just happened yesterday... 8)

Hurried out to go with hubby in car with my little sachall, you know, bag of goodies in hand.How you spell the bold word?

Got in car and hubby heartily laughed and said, "Honey, you have your sunglasses on upside down!"   Truly, my no-brainer...

LAUGHED, AND SAID BACK TO HIM, ONLY SJOGGIES DO SUCH DUMB TIHINGS!!  HE SWEETLY SMILED!! AND, WE WENT ON OUR WAY... ;D

I just had a 2 hour nap and for the 'life' of me, I'm GOOFY!!!! Going to go out and walk around outside a few minutes and see if my 'head will clear;! Can't even type, have to look at keys...

I  HAVE SJOGREN'S AND I'LL NEVER FORET HOW TO SPELL SJOGREN'S!!!

Lordy oh Lordy, LOL, Joy

Title: Re: You know you have Sjogrens when...
Post by: wiccagal on October 25, 2010, 03:59:35 PM
people ask you if you want food with your gravy or sauce...
Title: Re: You know you have Sjogrens when...
Post by: Joe S. on October 25, 2010, 06:51:14 PM
When your Dr tells you that you were referred to him for Sjogren's and instead of saying I have what, or yes, or what's that, you think that sounds right.
Title: Re: You know you have Sjogrens when...
Post by: DanzGrl on October 25, 2010, 08:37:07 PM
When your boss laughs at you because you have 4 different types of beverages on your desk.  She calls me double-fisted all the time now!
Told my husband I was going to buy a dorm room size refrigerator so I could have cold water, restasis and probiotics in our bedroom.
I also considered putting a case of bottled water in the decorative part of my night stand.
Title: Re: You know you have Sjogrens when...
Post by: jordozmom on October 27, 2010, 01:46:30 PM
Walgreens calls and asks if you can bring some of your medicines back because they've run out.
You have to spell your disease and medications to nurses (sometimes you even have to tell them what the disease is).
The list of medications you take is longer than your Christmas Card list.
There is a 50/50 chance you attend any function you RSVP to.
You can pronounce complex words like Hydroxychloroquine with no problem.
You know what ANA stands for.
You buy Ibuprofen in gross.
You can pretty much tell anyone your Vit D, Potassium, Calcium and ANA levels at any given moment.
Your insurance provider sends you hate mail.
You can recite the Family Medical Leave Act word for word.
Title: Re: You know you have Sjogrens when...
Post by: jordozmom on October 27, 2010, 01:50:15 PM
P.S. Wiccagal - this just made my day!!!  Thanks for the laughs!!!
Title: Re: You know you have Sjogrens when...
Post by: quilt4fun on October 27, 2010, 03:48:45 PM
you go to a wedding carrying that cute little black bag with what you really might need---the rest is in the car, just in case!
Title: Re: You know you have Sjogrens when...
Post by: Blue Kat on October 30, 2010, 01:32:07 PM
You can't plan much of anything in advance because you don't know how tired or achy you're going to be that day/evening. 
Title: Re: You know you have Sjogrens when...
Post by: Meld256 on October 30, 2010, 03:34:38 PM
Yes, yes, to all! How great we have a place here where others understand!

jordozmom,
Your list is hilarious ;D And sssooo true.
I started realizing I had a real problem partly because my small cup of coffee on my desk turned into a large thermos, plus a juice bottle and a water bottle at all at the same time. I was in a call center and had to swig as fast as I could in the 3-10 seconds before the next call.

I do the mental check every time I leave the house: cellphone, chapstick, biotene spray, chapstick, ibuprofen, checkbook, chapstick, bottle of water, Restasis, chapstick, hand lotion, kleenex, chapstick. Do you see a theme here?!  8)