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Sjogrens Topics => Living With Sjogren's => Topic started by: lizzi on October 22, 2010, 05:55:47 AM

Title: weird feeling?
Post by: lizzi on October 22, 2010, 05:55:47 AM

         hi everyone,

                        ive been having the most awfull feeling the last week or so and i just wondered if anyone else was experiencing this,as well as the usual pain everywhere and severe fatigue ive been experiencing a tingly pins and needles type feeling from top to toe,my arms and hands feel numb and weak and i just feel like yuk,i spoke to my gp on the phone yesterday and all he said he didnt know what it was and just to give it a few days more and then see how i am,
   i just wanted to know if anyone else had this and what it was
Title: Re: weird feeling?
Post by: bloodless on October 22, 2010, 05:59:10 AM
Sounds like peripheral neuropathy. It you search on it in this forum you'll find you have described the symptoms. Call your rhuemy.
Title: Re: weird feeling?
Post by: inga on October 22, 2010, 08:39:26 AM
Several things come to mind.

One is the PN.

The other is all the meds and their potential synergistic effects.

Why amitriptyline with restless leg?  That usually aggravates it.

Meds usually don't do much to mitigate the symptoms of PN.  I have basically had to make friends with it....every med I take makes me have some other symptom that was more distressing than what it is supposed to be treating.
Title: Re: weird feeling?
Post by: lizzi on October 22, 2010, 10:28:31 AM



              thanks for your replies

                         the amitriptiline is for my atyipical facial pain,which i cant do without it ,ive been on it for 5yrs now,i was thinking PN also ,im seeing

                          my rheumy on 12th november next so i will mention it then
Title: Re: weird feeling?
Post by: inga on October 22, 2010, 10:35:32 AM
Yes, I see you have genniculate neuralgia, which is similar to trigeminal neuralgia, very painful.  I imagine the pramipexole solves the RLS issue.  How much pramipexole are you on?
Title: Re: weird feeling?
Post by: Babs659 on October 22, 2010, 05:12:59 PM
I get the tingling stinging pains too.  I have just been able to semi-ignore it.  Good luck...
Title: Re: weird feeling?
Post by: lizzi on October 23, 2010, 02:00:54 AM


     hi inga,

               yes the GN is very very painfull.have had it for over 6yrs now,there is no cure either,i take 2 x 0.088mg pramipexol on an evening x
Title: Re: weird feeling?
Post by: Epson on October 23, 2010, 03:45:54 PM
Lizzi,

I don't know what you have, but I have so many strange neurological anomalies it's not funny.  When I tell the doctors they just look at me funny, never herd of that, is what they tell me.  Now I don't tell them, don't want to be classified a hypochondriac, then they stop listening to anything you say.  Best not to over load a doctor with too much information, they can't handle it.

Some of your symptoms sound very familiar, let us know what the doctor thinks is going on.