Got a new symptom...pulsing tingling in hands? sjogrens or could it be ms? I am not taking any new meds to cause this.
Anyone have any experience with this? I will be seeing my doctor soon but just wondered.... thanks, Wally
Pulsing? ??? Tingling, understand... Are they cold? Raynaud's make hands cold and numb! :( In wrists?
feels like pulsing electricity....kinda numb but not really...more tingly. It is affecting the fingers evenly on both hands now but not at first. It started in my left wrist.
My hands are not cold.
I've had a constant tingling in my hands and feet for years. Most of the time I'm used to it by now, but I especially notice it at night when I'm in bed and quiet. It can be a Sjogren's thing, to answer your question.
Hi :)
My hands used to do that a lot and then I discovered I was deficient in Vitamin D. Once I took the prescribed supplement the hand tingling went away.
Take care - Scottie :)
My feet tingle all the time, sometimes they burn. My hands and arms frequently tingle. Both are decidely worse on exercise or otherwise getting warmer than usual. Vitamin D and B supplementation has had no effect.
I completely understand the pulsing. I have it more in my feet and legs. Literally, a bzzzzz, off, bzzzzz, off over and over again. I had one neurologist that could actually feel and hear (yes, he used a stethoscope) it in the bottom of my foot. Said it was from the neuropathy. So maybe that's what is going on in your hands. I also get it in my hands but nearly as often as in the feet.
Mention it to your neurologist for evaluation.
Sjogrens mimics MS.
For the past year I thought I had MS.
Turns out to be Sjogrens.
Numbish legs.
Tingling face and tongue.
'Thick' or swollen feeling tongue not speaking correctly.
Burning hands.
'spose I could have MS too. Haven't been checked.
But I definately have Sjogrens.
I have numbness with tingling in my hands and feet often. Comes and goes. Have always attributed this to Sjogren's. When I was first diagnosed (several years ago) I was also worked up for MS which was negative, and Sjogren's does have a neurological component. It can be a bit irritating - evaluate all your meds including vitamins and supplements. Things like CoQ 10 and Niacin can cause these issues as well.
Hi Wally,
I think that it's a Sjogren thing.I often get tingling in my feet and hands and it feels weird when I hold something sometimes.
Like I don't actually feel like I am holding a brush or a towel etc.
I get burning aswell sometimes but it usually goes away eventually.
I also have tingling/pulsing senstions in the arches of my feet all the time. This just began about 6 weeks ago. I also have it in my knees and from elbows down to wrists, but sometimes my whole foot tingles.
A new one in the last few days: (oh joy) just above my left ear tingles (not painful, just annoying like a crawly sensation) but when I touch my head it feels numb.
BYW, another new problem I've had is blood draws. I've been to 3 different places in the last 2 weeks to have blood drawn and each person (one from a hospital, one at doctor's lab, and one at CT imaging) has had a very difficult time finding a vein to use or the vein found doesn't give much blood. This is odd for me since I've always been easy to draw from. Any ideas, anybody??
Hi Meld256,
I also have had problems with them finding a vein. I was told to drink water before having blood drawn. I think it might be not being well hydrated which is caused be the Sjogren's.
Hi drylady, (love that name, BTW ;))
Yes, that makes perfect sense and just more proof that I am DRY all OVER, huh?
I thought about that with the CT draw; I was having a contrast dye so told to just take a few sips of water before the test. The tech couldn't get anything in my arms and went to my hand. I'll try to remember to hydrate well before the next draw.
Thanks,
Melinda
Wally:
I have small fiber neuropathy, or peripheral neuropathy, Mine started in my fingers, then through the wrists now up to my elbows. Then it started in my toes and feet, now up to my knees. Many, many SjS patients wind up with either PN or autonomic neuropathy (bladder, bowels, hearing, etc.) or both. Be sure to tell your doc about it. P.S. I had an MRI to check for MS, but it was negative.
Hugs,
LeoLady
Yes I sometimes have it in my arm when sleeping. I think in MS it is bilateral. Anyone know?
yes I have all the above and when I recently explained all the symptoms to my specialist he said its text book sjogrens.