I am still waiting on the go ahead to start the Methotrexate, I have had so many tests lately and I still have not heard from the Rheumy to go ahead and start the Meth. I am so mad at all this stuff. I feel like I am at a standstill with treatment and the desease is progressing. I am hurting all over since they took me off of Lyrica. I just want to be able to do the same things I use to do and not pay for it the day after. I am sick of all this!!!! I don't want to be sick anymore!!!!
I had the pulmonary function test and I can get air in and get air out but it doesn't circulate very well. Waiting on the Pul dr to call.
And to top it all off. I can't have my bath tonight. We are out of water. Some idiot who is replacing the guard rails on the main road busted our water lines in about 6 places. I need my bath so I can sleep!!!! I am mad!!
Sorry to drag you all into this but I am so mad. My daughter says I am in denial! You think??
I don't want this anymore. >:(
I know you all feel the same way and I don't mean to complain but I cannot keep it in anymore!!
G'day harlin, go ahead vent to your heart's desirer. We all have those times where we just want to scream. You scream here and We'll listen.
Methotrexate, wow that is some really potent stuff. I hope it will do the job for you.
Take care and vent away
Seeker
VENT all you want Harlin..I understand!!!!! I love the Rhumy we go too, but good lands she stays so booked. I don't go back until Oct. 20..which means nothing has really changed as far as my treatment goes. SO, JUST VENT again if you want.
harlin, I hear you about being sick of this stuff but it sure sounds like you are more mad about the idiot who broke you water main. You need your bath you said so you can sleep. Any time there is interruption in water it drives me crazy. Spoiled people we are in this day and age. Hope you can sleep in spite of it all.
How about a gallon of drinking water from store heated on this stove for a sponge bath???? Anything to help a person feel better. Irish ;D
I hope your water is fixed by now. We had a water pipe burst a year ago and had no water for days. You don't realize how much you use it until you have none.
I hate waiting on doctors and tests. They should get paid according to turnaround time.
Hear anything yer Harlin,,? Hope your water is back on,, we have some shredded guard rails right up the road from us,, and the state has yet to fix them,, were just waiting on the next wreck to do a header into the pile of metal that used to be a guardrail,,, and we have deer constantly that constantly jump onto the road here,,
AND at 5PM you can set your clock by this idiot,, he has one of those crotch rocket motorcycles,, hes hitting 5th gear about the time hes going past our house,,, hes nothing but a blur,, I know hes doing a 100,, at least,, so one day i;m just waiting for that deer to jump out in front of him,, I;ll call 911 and tell them to just send the pumper trouck to hose him off the road,,, wont even need a body bag,,, just a bucket will do
Good luck Harlin. I hope you don't get jumped by saying you're mad.
harlin, You are just fine!!!! It is ok to be mad on this site. You vented your anger really well and I don't blame you for being mad. Irish ;D
Oh, Harlin,
I understand how you feel about the water issue. I arrived home today, smiling Dixie because it's Friday. Then, oh,oh! I see a HUGE mess and GIANT hole in front of my house. I guess the water line broke and we have no water :'(
Interesting about all the broken water mains. Must be the cold winter we had last year and then the sudden heat of summer.
Our main street has 2 broken water mains within a block and right in front of a restaurant. I almost have to laugh as our city is so broke cause they spent all the money on really stupid things over the past couple of years and these things have come back to haunt them. Could be a big financial problem for them. Irish ;D
Harlin, Sweet Harlin, Trust you heard from the rheumy today. And, you can file yesterday in the file and move onto Saturday and the cooler weather that due.
And, find that one special thing in your day tomorrow. 3 minutes by my counting and it will be Saturday....midnight nears here ;)!!! Time for me to go to bed.
Trust this finds you in a 'better frame of mind' with a good warm bath taken and snoozing your game.
Love, Joy
I hope your water is back on. We had a storm last month and my husband told my son in law who was living with us at the time to report the power outage. He called and listened to half the message, and never reported it. We are on a well, so we need power for water. Four hours later my husband called and listened to the entire message and reported our outage and we were the FIRST ones to call it in, in our area!! It took 4 more hours to get power.
Last week my phone and net went down...the guy told me it was my interior wiring....so, I needed to pay to get it fixed. Hubby and I were on a drive to the nearest home improvement store and there were 2 TDS trucks. Later they called me, some dum dum had cut a cable with 100 lines.
Again my phone was out yesterday....ugh....I am ready to get a woodburner and prepare for armagedon.
Nothing is worse than feeling sick, needed HEAT and not being able to get it.
Quote from: inga on September 04, 2010, 05:58:25 AM
I hope your water is back on. We had a storm last month and my husband told my son in law who was living with us at the time to report the power outage. He called and listened to half the message, and never reported it. We are on a well, so we need power for water. Four hours later my husband called and listened to the entire message and reported our outage and we were the FIRST ones to call it in, in our area!! It took 4 more hours to get power.
Last week my phone and net went down...the guy told me it was my interior wiring....so, I needed to pay to get it fixed. Hubby and I were on a drive to the nearest home improvement store and there were 2 TDS trucks. Later they called me, some dum dum had cut a cable with 100 lines.
Again my phone was out yesterday....ugh....I am ready to get a woodburner and prepare for armagedon.
Nothing is worse than feeling sick, needed HEAT and not being able to get it.
Inga,, I suggest getting a small generator,,, somewhere around 2500 to 3000 watts,, that will easily run a furnace,, and a few lights
Boy, I hope this get you up and running cause it is rotten to be without the electricity. We have a well also and if a person doesn't have advance notice you can't even draw up some water for short term use. Stnading in the lantern light trying to find the number of the electric company is fun, isn't it. Also, standing in kerosene lantern light in your pj's while you use a pail to empty the sump hole isn't fun either!!!!
Also, phone service in the country can get dicey at best. We have the big junction box at the end of our driveway and whenever we have problems they always try to blame it on our phone, etc. They never want to admit that it could be the service running up to the house. I can't think of one time that it has been "our fault". Have to call more than once and gets really old because there is no "live person" anywhere answering these service center phones. Sometimes I think the old days didn't demand such high expectations from us---but man would we every miss all our gadgets!!!
Stay warm and well. Irish ;D
Why is it ALWAYS the wiring in the house? Could it be they want their $80 per hour fee?
Well, some good news here. The water went back on around 2 PM. That was the best shower I've had in a long time!
Hi my friends,
Our water came back on but had to boil water until Saturday. All is well on that front.
Spoke with Rheumy's nurse on Friday and she said I could start the Methotrexate. Scares me to death. I don't want to loose all my hair. Has anyone else experienced this?
I had a great weekend with family and friends. The nights have been rough from pain but I am managing. I sure hope the Methotrexate kicks in before long. I don't know how much of this I can take. We walked around a craft show on Sat and boy oh boy did my hips and legs hurt. I guess I don't know my limits. I hate to think that I can't do a simple thing like that. My hands are so stiff in the morning that I can't bend my fingers. I didn't realize that that the Lyrica helped so much until she took me off it. I can't believe I am getting so much worse.
If summer hurts this much what will winter bring. I am so much worse in the cold.
Thanks my friends for all the kind comments, It is so nice to know people who actually care.
Love you all, harlin
My fingers lock over at night,, I dont know whats up with that,, but they jsut bend over at the knuckles and I cant get them straight,,, and my legs just dont work,, and to think I used to run up and down my hills without even thinking about it,, now i;m lucky to walk across a flat yard
I think our dove season opened up on the 1st of Sept,,, I never got into that,, I have a hard time shooting them when I feed them all summer, or rather they take what I put out for the other ones,, thankfully my Doxie doesnt go after birds, just chipmonks mice and otehr four legged creatures,,,
Our fall season usually comein at the end of Oct for turkey,, deer comes in always the first monday after thanksgiving,,
Truthfully I dont see myself hunting this year,,, I cant hold up a gun,, my hands wont wrap around it and my fingers just dont work that well,,,, My oldest sonloves to flyfish and does hunt deer and fall turkey when he gets the time,, I was alwys in the woods from turkey season till the end of deer season,, Last year my brother had to drag out the 2 deer I shot,, along with the 2 he shot,,, we dont waste any of it,, I make ground meat out of the whole deer and make jerky,,, but its going to be tough,, I had to turn the furnace on this morning,, it was only 50 degrees and I felt like I was in the artic,,, its not fair,, the things Ilove most slowly being taken from me,, Iloved being a electrician,, running conduit,, pulling wire,, hooking up stuff,,, working with high voltage,, doing side work for friends,, and sleeping good at night knowing what I did was done right,, I was and am very anal about that kind of work,, I wanted it right and wanted to be proud of my work,, now I cant even hook two wires together,, its just not fair
Hi, Why did the doctor take you off the Lyrica if you are in more pain without it? Can you get the Lyrica back? Did you make a list of concerns and talk to your doctor? Why don't you call the office back and ask to be placed back on the Lyrica? No need to suffer with lots of pain. I take Lyrica and tramadol also for pain. Lesley
Harlin, I would reccomend that you call your PCP for some kind of pain meds to help for the next few months. I've been taking MTX since last March. It took a good 2 1/2 months for it to really kick in for me. For some people it may take longer or shorter. About the hairloss, again it varies from person to person. I was already losing my hair to begin with, I can't say I've had any more or less since starting MTX. As far as the overall effect of MTX, it does have to build up in system. You may have no side effects at all for the few weeks, when it starts to build up in your system, depending on your dose you may have some nausea. I did post my entire experience with both plaquenil and MTX in a separate post in case anyone was interested. So I won't drag this out too long. I will say it's worth it, but you may still need something for pain and don't be afraid to ask for it. Pain medication is there for a reason, it has very few side effects, I take Lortabs and they actually seem to give me a little more energy. You can start at a low dose of 5mg, 7.5mg or 10mg. There are others as well, I know many people here are happy with Ultram, but I'm highly allergic to it as well as all NSAIDS. So that also leaves out Vicodan which has Ibuprofen in it. I don't like Percocet or oxycoden because I get horrible night terrors with those and refuse to take it, plus it makes me way to dopey to manage two young kids. I also refuse to take morphine or any of it's derivatives because of the severe constipating effects. There is no reason to suffer with pain and it will sap your energy very quickly. If your pain is better managed you will find you have more energy and MTX does take a while to start working and for me I still had to take pain meds, only less of them. Hope this helps and I hope you're feeling better soon.
The doctor took me off Lyrica when she put me on the Methotrexate. I didn't know how bad I was until the Lyrica was out of my system. My GP put me on Ultram the other day but my pharmacist daughter said not to take it with the Savella. It could kill me. I called the pharmacist back that filled the prescription and she said it would be ok to take. Is she nuts????? I am not taking something that could kill me!!! I called the doctor back today and have not heard from her yet.
Navydad, I feel so bad for you. You are so much worse than me but I can see myself following in your footsteps. The only difference is I have a dx of RA and Sjogrens. My hands hurt so bad in the mornings. I cannot bend my fingers. I usually have to run them under hot water or get into a hot bath to be able to move. I am still fighting with SS for my disability.
It is cold here today. I am about to freeze. I need to go to the store to get some sweat clothes. I am not looking forward to winter. I handle the hot weather much better.
Hang in there. We are all in the same boat without a paddle.
harlin