Hi all my name is Philip, Im 26 year old male recently diagnosed with SJS. Just wanted to say these boards are great!!! Lot of good information here and great support. I had a few questions but i think i will post them under the sjogrens topics. Just wanted to introduce myself here. Anyone else find it silly how the spell checker on computers doesn't recognize the word sjogrens ::). Its a shame there isn't more awareness about this disease.
welcome. i am also new to this site, but not to Sjogrens. was diagnosed over 10 years ago........
i am here if you need anything..............
Welcome, you will find some good information here.
Hello Philip and welcome. As you are probably discovering as you are learning abou this disease is that it can manifest itself in a wide variety of manners. Though the number say that 90% of people with SJS are women, there are other guys here, too. I can tell you that everyone who has dropped a note to me to make me feel very welcome to this community of which you are also a welcome member.
Lots of great resources here to help you learn and explore.
Grace and peace to you,
Bill
Hello, my name is Ronna. I was wondering if any of your family has had sjogrens or something else like lupus? My son is almost 18 and has had a lot of symptoms like me since around 8 or 9. He was just recently checked but blood work came back negative. Just curious about how your symptoms started. Thanks! Keep you in thoughts.
Phillip,
Your spell check comment made me giggle. I hate when I meet a new DR/PA and they act like I don't know how to pronounce Sjogrens correctly. lol Of cousre it is worse when they have never heard of it before
Thanks everyone.......yeah i know what you mean sleepy. Seems like a lot of nurses and doctors don't even know what SJS is? They say whats that? And then I explain for 5 mins and they go, huh well thats interesting ::). Hey Ronna, well my symptoms were present ever since i was a child. My mom always said i would wake up with bloody noses all the time. I was always more tired then normal growing up. Always had dry skin, dry scalp, dry nose. Dry eyes started in high school, but mouth was not an issue until about 23. And then thats when i said something isn't right. Never had joint pains or muscle aches until about 2 years ago. My mother does have a thyroid autoimmune disease but it does not effect her a whole lot. Rest of my family is healthy. Hope that helps
Hi Philip,
I'm chiming in late as usual, but I also wanted to welcome you to the SJS World and family!
I'm so glad that you're finding the board helpful and friendly!
Take care of yourself -
Patze