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Sjogrens Topics => Living With Sjogren's => Topic started by: tedebear710 on June 05, 2010, 11:21:40 AM

Title: Rosacea?
Post by: tedebear710 on June 05, 2010, 11:21:40 AM
I am one of the unlucky people who has rosacea.  It seems to get worse when in a flare.  I saw several posts on the board about it.  Has a poll been done to ask how many people have it?  I've used prescription and OTC ointment and had laser treatments done, and nothing seems to help.  Of course I avoid sun exposure as it gets much worse, and the rest of my body will break out in a rash.  Does anyone have any other suggestions for treatment?
Title: Re: Rosacea?
Post by: Daisy1234 on June 05, 2010, 02:39:49 PM
I too suffer from Rosacea as well as primary severe Sjs.  I use a prescription cream on my face twice daily, it is called Metro-gel or Metro-cream.  When I get a bad rosacea flare rash, I take a oral prescription of Erythromiacin (sp?) and I use a SPF 60 sun screen as well as avoid spicy foods and alcohol.  I also stay away from hot baths which seem to be another trigger for me.  Sometimes drinking a hot beverage can also be a trigger.  I kept a food/habits diary for a couple of months which helped me determine which things were triggering my flares and now I am able to avoid them.  So sorry that you're experiencing this.
Title: Re: Rosacea?
Post by: Babs659 on June 05, 2010, 04:13:06 PM
I was dx with Sjs Dec 08 and started getting "flushed" that next spring.  I was dx with Rosacea this past winter and use the Metrogel.  I just learned that Rosacea is an autoimmune condition.
Title: Re: Rosacea?
Post by: LeoLady on June 06, 2010, 02:20:18 AM
Tedebear:

I guess I still have rosacea but it hasn't flared in several years.  I started noticing the things that irritated it.  (as you probably know, it's a chronic inflammatory condition)  I stopped using soap on my face and switched to a good herbal cleanser.  I also stay out of the sun and away from heat.  Also, NO alcohol - darn, I really like margaritas.   Of course a fever or a flare can make it crop back up again, but mostly it's gone now.  I'm really fair and can't use sunscreen or the red light appears on my face.  I also use Imsomer's Australian harvest cleanser once a week to really clean things out and a super moisturizer like Elizabeth Grant bio-collosis or Skinn brand products.  I'll be 60 in August and people say I look like I'm in my late forties or so.  Must be doing something right!  Good luck with it.   :)

LeoLady