Hi my name is Nicola and im new to the board and newly diagnosis with sjogrens.
Im not very impressed with my rheumatologist after receiving the copy of the letter she's sent my GP,seems to have missed out completely some of the problems I mentioned then no mention of treatment or medication.
She mentioned fybromyalgia when talking to me,nothing in the copy to my GP, but ive since done some internet research and *think* I probably have this also.
I have lots of reading to do so I can go to my GP armed with information
Hi Nic - so glad you decided to join - people are great here, very supportive and knowledgeable. I'm sure others will be along soon to say welcome. xx
Hi Nicola,
Let me also welcome you to the SJS World and family! Please do look around when you can, and don't be shy if you have a question or two as there is usually someone about that might be able to help.
I'm another one with both SJS and fibro, and there are days that I'd wish one or the other would just go away; alas, no luck so far. ;) :D
Again, welcome, and I hope that you can join us soon in the chat room.
Take care of yourself -
Patze
Hi Nicola and welcome to Sjogrens World!
Add me to the list of those with both sjogrens and fibro...I think you will find many here that have both of these lovely diagnoses...blah! They seem to go hand in hand for many of us!
Did your rheumy mention that she is going to run any more tests or blood work? Did she want you to schedule a follow visit or see any other docs in the meantime like an ophthalmologist or dentist to check for dry eyes or mouth issues? If you are not happy with her....can your GP recommend another rheumy to see?
I hope you get some satisfaction and more answers soon...keep us posted and come here often for information and friendship! It's all here and we all really do understand!
Hellooo and thankyou ;D
No rheumy doc said nothing about nothing really just felt my joints sent me off for the Schirmer's test and xrays and didnt see her again ???
The letter says she's refering me to the dental hospital so I should hear from them at some point but thats it. The Schirmer's test came back at 2 which im told is pretty dry so I dont understand why she didnt even mention eye drops and I told her my mouth felt dryer than my eyes,im having real problems sleeping my mouth is so dry. :-\
Ive made an appointment at my GP's on Thursday so will see what happens there!
Hi Minky
Welcome aboard. You have come to the right place if you need support and information. Are you in the Uk also? I'm in West Yorkshire.
Kathyx
Nic - there are some really good questions you could ask your GP when you go on Thursday. If you go on the main discussion section and do a search (questions to ask the doctor or something like that), they should come up. People on here recommend (and I always do it now) to keep a symptom diary, and to take this with you to your appointments, or at least to have a note in your handbag so that you don't forget to ask about things. It really, really helps me when I get there, as I sometimes forget to ask about important things ::)
The main thing I learned, off the great folks on here, is to ask the doctor "please could you treat my symptoms". Cos, in this way, at least they then give you something to help with at least your comfort levels. Good grief, I am so shocked you weren't at least given eye drops ::) Hang on in there!!! xx
Hi Nicola :)
I see you've had good advice already so I just want to say welcome to sjogren's world.
Take care - Scottie :)
Hello and welcome from me too!
Janna