Sjogrens World Forums

Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: saranski on January 18, 2010, 07:04:17 AM

Title: Lip biopsy coming up
Post by: saranski on January 18, 2010, 07:04:17 AM
Hey everyone,
having the lip biopsy on Thursday morning!!!! Anyone ever have one?  any tips????? will i be able to talk on friday, i have a simulation to do at school (nursing simulation)????? Is this a definitive test????
Title: Re: Lip biopsy coming up
Post by: Heather on January 18, 2010, 09:37:45 AM
Hi Saranski,
Take some ice with you that will help against the swelling.
I had not much pain the next day but I didn t want to talk much.
I liked it most to sit quiet on a chair the next two days.
Good luck!
Title: Re: Lip biopsy coming up
Post by: Patze on January 18, 2010, 04:48:42 PM
Hi Saranski,

Oh boy, the lip biopsy.  Yes, I had one done, and the doctor that did mine botched it up (wound up with silk stitches, and a permanently numb area on my lower lip); and don't get me started on the lab, ack!  The rheumy wants me to have another one done, and my answer to him would be a bit x-rated for this board!

The only thing I can suggest to you about the biopsy is that you have a good doctor that knows how to get a good sample (with no damage to your lip), and a lab that reads enough samples every month so they know what they are looking for.

Take care -

Patze
Title: Re: Lip biopsy coming up
Post by: lynnmarie219 on January 18, 2010, 06:43:41 PM
Sarah,

There have been so many threads/posts on lips biopsies....your best bet would be to put those words in the search box above and you will see a ton of topics come up that you can read....some have had good experiences and some have had bad ones. I personally had a good doc ..a good lab...and a good experience.

The most important thing to remember is what Patze said...make sure you have a good doc that has done many of these procedures and a good lab that has read many of these biopsies. And remember that even if the biopsy turns out to be negative...that still doesn't mean that you definitely don't have sjogrens!

Good luck and let us know how it goes!

Title: Re: Lip biopsy coming up
Post by: Heather on January 21, 2010, 12:56:30 PM
Hi Sara,
How was your lipbiopsie?
I hope you have not much pain.
Bye
Title: Re: Lip biopsy coming up
Post by: saranski on January 21, 2010, 06:19:33 PM
Hi,
Lip biopsy was fine at the time, the doc was great (and extremely good looking)!!! However, after the numbing medicine has worn off I have a lot of pain, not only where he took the 4 glands from but all the way down the jaw line on that side and into that ear.  I have taken tylenol, ibuprofen, and tramadol.   At least now it is tolerable.  I am now going to e-mail my nursing instructor to let her know that I am NOT going to be able to make it tomorrow's simulation.  I thought i was a tough cookie, apparently not!!!!  ENT also said that my salivary glands and lymph nodes were "very generous in size" and regardless of what the biopsy says (1/3 come back negative) it doesn't mean it is sjogren's and my symptoms still need to be treated.  So now it is a waiting game, again.  I'll let you know what the results are.  Thanks for asking.
sarah
Title: Re: Lip biopsy coming up
Post by: Patze on January 22, 2010, 02:35:36 AM
Hi Sarah,

Sorry to see that you're having pain from the procedure, and I hope that you feel better soon!


Patze
Title: Re: Lip biopsy coming up
Post by: Heather on January 22, 2010, 05:14:45 AM
Hi Sarah,
I m sorry to hear that you have some much pain.
Hopefully tommorrow is a better day.
Take good care of yourself.
Bye

Title: Re: Lip biopsy coming up
Post by: lynnmarie219 on January 22, 2010, 04:47:53 PM
Any better today Sarah?? I hope so!!
Title: Re: Lip biopsy coming up
Post by: saranski on January 23, 2010, 10:27:19 AM
yep, doing better today.  I was actually able to eat some eggs.  Lip is very swollen and my kids tell me i look like "fat albert" (aren't they sweet?)  I hope the swelling is down by monday, i have to go out to school to get some stuff done and tuesday i have clinicals.  Still can't talk the greatest and forget laughing!!!! But it is getting better, thanks for asking.
Title: Re: Lip biopsy coming up
Post by: Chickpea on January 23, 2010, 01:05:00 PM
Good to hear that you're doing better today.  Don't kids say the most helpful things?!

Take care - Chickpea
Title: Re: Lip biopsy coming up
Post by: Heather on January 26, 2010, 08:08:50 AM
Hi sarah,
How are you?
And when do you get the result of the biopsy?
Please let us know.
Bye
Title: Re: Lip biopsy coming up
Post by: saranski on January 26, 2010, 04:49:57 PM
hey,
missed the phone call today, I was at clinicals (at the hospital for nursing school) message said she won't be back until thursday, so now i have to wait until then.  I was actually able to eat a chicken sandwich for dinner tonight!!!!! :) i will miss the excuse for not having to eat ice cream :(  Will post the results when i know)
thanks,
sarah