Are any of you troubled with bile acid diarrhea? Just wondered if this is part of Sjs.
Yes. It has gotten better since my rheumy told me to cut back from 400 mg/day plaquenil to 200 mg. When I'm feeling better in that respect, she told me to slowly work my way back up to 400 mg/day. HOWEVER - I had my gallbladder removed about a month before I was diagnosed with SjS and I was having the same intestinal issues after that so I don't know if that is part of the problem or not.
Before my Sjs dx, the gastro said it was because I did not have a gallbladder. But now I am wondering if it has been Sjs all along.